Experiences with

Alzheimer's disease

PSA 139 @ DX1-2024 started Orgovyx and Nubeqa dropped PSA to 62.93. Started Chemo 1st infusion..PSA 23.3 2nd infusion..PSA 11.26 3rd infusion.. PSA 7.45 Just got my labs back for the 3rd infusion. Just feel disappointed as I was hoping for a larger drop and seemed to have stalled out. Does it look

Hello everyone Just to let you know that our Lupus group has started having morning and afternoon meetings in the area. Anyone interested in joining our meetings please contact me. We are based in the North East. Lets meet for a chat and coffee. Keep on keeping on xxx

Hi all, I'm 73 with no weight, diabetes or BP ailments. A CT scan at a Targeted Lung Check last year revealed mild emphysema and "coronary artery calcification". The ensuing ECG indicated heart block (LAFB). Following an ultrasound last Thursday (during which I was told that there was an anomaly that

A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one

My mom was diagnosed with gliblastoma (brain cancer) in 2000. I was diagnosed with PD in 2015, If I understand it correctly, the folloing article indicates both conditions apparently can involve the same set of genes. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7468383/ I am wondering if I might

Well i went for my first walk round the close and felt like i had ran a marathon. I am exhausted now. I keep forgetting i have had major heart surgery. I was only in theatre for an hour yet in that time they repaired my heart. The trouble is i forget i have other health problems to deal with. I want

My fiancé suffered a major stroke two weeks ago a day after being diagnosed with atrial fibrillation which caused two blood clots. He was in Addenbrooke’s for six days where the doctor told me if he survived this as it’s likely he could have another stroke that he would end up in a care home. I’m absolutely

My new neurologist started me on Selegiline 10 mg/day. In two weeks I reduced my Sinemet from two pills per day to one. My tremor is much calmer and I feel more clear. So far no negative side effects and I take the first 5 mg on an empty stomach.

Good Morning Everyone, I have been diagnosed with early cirrhosis last summer (July 2023) and have a Child Pugh A and a meld of 9. I have done two Elastology ultrasounds - first in July was 11.8 kpa and the second Nov 1st was 9.0 kpa. My liver enzymes are all in line and came back in line within

Global survey highlights urgent need for treatments with fewer side effects About 91% of lupus patients report they are currently taking or had been using oral steroids to manage their symptoms, according to a global survey of more than 7,700 patients. The World Lupus Federation (WLF) released findings

I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure

Hi, Has anyone experienced loss of taste after transplant? My partner says everything tastes absolutely horrendous. Will this come back?!

On World Lupus Day, we launched a brand new diagnosis awareness video featuring Beth, Khiry and Maryann who kindly shared their experiences receiving a diagnosis for lupus. We are holding a free webinar on Tuesday 21st May at 6:00pm - 7:30pm (BST) featuring Beth, Khiry and Maryann as they discuss their

Hiya everyone. Here, as I have recently, by accident really, been to the doctor to see if I might qualify for weight loss drugs, having heard such good things about ozempic or the tablet version Rybelsus. Dr said no, I don't qualify for it. But BP was 185/172 which shows hypertensive crisis, heading

I was diagnosed with Parkinson's in July 2020. In the last year I have lost weight by around 3.5 kg I went to a nutritionist because of the weight loss and, in particular, the loss of muscle mass.In addition to a diet and the recommendation to continue going to the gym twice a week for bodybuilding,

I need to apologize to so many of our newer members. Beginning in this role February 1st, I am still learning. I just found out, being new as the facilitator of this amazing group, how to find the names of the 'new' members..... let me introduce myself to all of you. Hi - and welcome! My name is

Hi I have afib, not usually too often but have had a few episodes this year. On all the usual meds. Have just been given an inhaler as hyperinflated patches were found on my lungs in a chest x ray. Anyway had the results of my latest echocardiogram yesterday and was wondering if you good people can interpret

Hi All, I have Low resting heart rate, regardless of upping dose. I’ve upped my T3 meds from 20mcg to 25mcg and I take 100mcg of Levo and my resting hr stays at 52/51bpm my resting heart rate was the same at 15mcg T3 too. Initially when I up the dose for 2-3 days resting heart rate will increase to

I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because

Hi All Its been a while since I last posted but basically my AF kicked in again over a year ago and it was problematic, after swapping and changing my medication i am now on amiodarone which seems to be keeping it under control but I'm told this is not a long term fix because of the side affects of