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Amyotrophic lateral sclerosis (ALS)
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Alk-phos climbing up... 😔
Hello all, Well, got my labs back. Everything is in normal range except my AMA M2 and my alk-phos. It's elevated yet again. Slowly over the past few months it's been climbing. It was 162 three weeks ago and it's 174 today. I'm taking the mid range level of my URSO for my weight but I'm still within
Hello all, Well, got my labs back. Everything is in normal range except my AMA M2 and my alk-phos. It's elevated yet again. Slowly over the past few months it's been climbing. It was 162 three weeks ago and it's 174 today. I'm taking the mid range level of my URSO for my weight but I'm still within
Ktltel
in
PBC Foundation
6 years ago
Generic URSO & Effectiveness
This is a repost from a PBC patient on the Yahoo forum. It got me thinking about different brands of URSO and their effectiveness. I'm interested in any feedback because I've been on a "generic" URSO for 8 months with no change. My alk-phos fluctuates but has never normalized. Thanks, Stella I was
This is a repost from a PBC patient on the Yahoo forum. It got me thinking about different brands of URSO and their effectiveness. I'm interested in any feedback because I've been on a "generic" URSO for 8 months with no change. My alk-phos fluctuates but has never normalized. Thanks, Stella I was
Ktltel
in
PBC Foundation
6 years ago
Ezetimibe anyone?
My consultant recently wrote to me and advised that she wanted me to start ezetimibe as my alk phos was higher than she was comfortable with at 280. I can find nothing online about the use of this drug in PBC and don't like blindly taking things without knowing a bit more about it. I have an appointment
My consultant recently wrote to me and advised that she wanted me to start ezetimibe as my alk phos was higher than she was comfortable with at 280. I can find nothing online about the use of this drug in PBC and don't like blindly taking things without knowing a bit more about it. I have an appointment
rubyrose15415
in
PBC Foundation
6 years ago
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Why are my LFT rising?
Been a rough week here. We had 2 deaths in our family and I drove from Indiana to Kansas and back to Indiana in the course of 3 days with my elderly mother and my 4 month old baby in tow. Saw my GI Friday, which is why I drove home immediately following the funeral. Anyway, while I was there she said
Been a rough week here. We had 2 deaths in our family and I drove from Indiana to Kansas and back to Indiana in the course of 3 days with my elderly mother and my 4 month old baby in tow. Saw my GI Friday, which is why I drove home immediately following the funeral. Anyway, while I was there she said
IAmTheGlue
in
PBC Foundation
6 years ago
Gotta wonder about God's sense of humor
Wednesday, he was diagnosed with
ALS
. Seriously??? So, now we are making plans for pimped out wheelchairs. Mine will be the TARDIS, his will be a Mini Cooper. Our families think we're crazy! Might as well have fun with it...
Wednesday, he was diagnosed with
ALS
. Seriously??? So, now we are making plans for pimped out wheelchairs. Mine will be the TARDIS, his will be a Mini Cooper. Our families think we're crazy! Might as well have fun with it...
cindyrn68
in
My MSAA Community
7 years ago
Alk phos level and ezetimibe
I have just been told that at 285 my alk phos is too high and I should start another drug called ezetimibe on top of the urso. I have to stop breastfeeding my 15 week old as a result so I just wanted any thoughts on this prior to taking this step which I'm quite upset about.
I have just been told that at 285 my alk phos is too high and I should start another drug called ezetimibe on top of the urso. I have to stop breastfeeding my 15 week old as a result so I just wanted any thoughts on this prior to taking this step which I'm quite upset about.
rubyrose15415
in
PBC Foundation
7 years ago
Oh my God!
It makes me scared the spasms are very powerful and in scared of
ALS
or MS .im only 16 years old why is so much happening with my body???
It makes me scared the spasms are very powerful and in scared of
ALS
or MS .im only 16 years old why is so much happening with my body???
Illboy
in
Anxiety Support
7 years ago
Cause of liver enzymes continuing to rise? ALT and AST
Just an update- when we went for his 3rd chemo last week the blood tests beforehand showed his liver enzymes had risen again- to just under 200. PSA is down to 68. We had gone off all supplements after 2nd chemo due to enzymes being high. Because we went off all supplements (except D3, Omega 3, and
Just an update- when we went for his 3rd chemo last week the blood tests beforehand showed his liver enzymes had risen again- to just under 200. PSA is down to 68. We had gone off all supplements after 2nd chemo due to enzymes being high. Because we went off all supplements (except D3, Omega 3, and
pakb
in
Advanced Prostate Cancer
7 years ago
results help me please much love x
Test resultSerum vitamin B12 level;Bone profile;Serum cortisol level;FULL BLOOD COUNT;Serum ferritin level;Serum folate level;Plasma glucose level;Liver function tests;Thyroid function test;Urea and electrolytes;Serum total 25-hydroxy vitamin D level;GFR calculated abbreviated MDRD Report, Abnormal,
Test resultSerum vitamin B12 level;Bone profile;Serum cortisol level;FULL BLOOD COUNT;Serum ferritin level;Serum folate level;Plasma glucose level;Liver function tests;Thyroid function test;Urea and electrolytes;Serum total 25-hydroxy vitamin D level;GFR calculated abbreviated MDRD Report, Abnormal,
Popsta
in
Thyroid UK
6 years ago
Blood clots and blood in urine (no radiation)
My husband had a TURP 8/4/17 (in history below) but has not had any other surgery. Had second round of taxotere last week...next one in two weeks. He's had mild blood in urine since two days after first chemo. A few small clots. Onc says to keep an eye on it. He's away for business this week and just
My husband had a TURP 8/4/17 (in history below) but has not had any other surgery. Had second round of taxotere last week...next one in two weeks. He's had mild blood in urine since two days after first chemo. A few small clots. Onc says to keep an eye on it. He's away for business this week and just
pakb
in
Advanced Prostate Cancer
7 years ago
Liver Enzymes up
My profile info is below... In our visit for chemo yesterday his bloodwork came back with elevated ALT/AST/BUN-Creatinine ratio- you can see numbers below. Thankfully PSA is going in the right direction. The oncologist wants us to go off of all supplements to get a baseline. We both take some herbal
My profile info is below... In our visit for chemo yesterday his bloodwork came back with elevated ALT/AST/BUN-Creatinine ratio- you can see numbers below. Thankfully PSA is going in the right direction. The oncologist wants us to go off of all supplements to get a baseline. We both take some herbal
pakb
in
Advanced Prostate Cancer
7 years ago
What next? Test results are normal....
Hi all, after many months of lurking, have finally signed up as I'm at my wits end as to what to do. Back in May 2017, after many years of prevaricating for fear of being treated like the village hypochondriac, I finally went to see my GP about the myriad of symptoms I was feeling. He ordered a full
Hi all, after many months of lurking, have finally signed up as I'm at my wits end as to what to do. Back in May 2017, after many years of prevaricating for fear of being treated like the village hypochondriac, I finally went to see my GP about the myriad of symptoms I was feeling. He ordered a full
Hidden
in
Pernicious Anaemia Society
7 years ago
Yet another blood tests results
Hi guys, after my concerns with previous blood results (from endo), I went to see my new GP and asked if any of it can be addressed. Initially I found her to be more perceptive than any other doctor before. After showing her my results and describing my symptoms she ordered her own blood tests altogether
Hi guys, after my concerns with previous blood results (from endo), I went to see my new GP and asked if any of it can be addressed. Initially I found her to be more perceptive than any other doctor before. After showing her my results and describing my symptoms she ordered her own blood tests altogether
Gr8Nica
in
Thyroid UK
7 years ago
looking to go private as NHS waiting is more than 2 months to see specialist.
Hello all, I wonder could anyone spare a few minutes to give me advice. I was admitted to A&E last Friday by a walk-in centre doctor because of my chest pain. The blood test are all normal apart of - Alanine aminotransferase level : 309 iu/l -- normal range should be 0 - 40 My GP contacted me on Monday
Hello all, I wonder could anyone spare a few minutes to give me advice. I was admitted to A&E last Friday by a walk-in centre doctor because of my chest pain. The blood test are all normal apart of - Alanine aminotransferase level : 309 iu/l -- normal range should be 0 - 40 My GP contacted me on Monday
moonieblue
in
Thyroid UK
7 years ago
Newbie - needs advice on blood test results
Hello I am a newbie. Two years on from being diagnosed with bilateral Breast Cancer followed by Mastectomy, Chemotherapy, Radiotherapy, 12-month 3-weekly injections, and tablet for 5 years my on-going bone aching chronic fatigue was always, attributed to these treatments. However, on one of the Doctor
Hello I am a newbie. Two years on from being diagnosed with bilateral Breast Cancer followed by Mastectomy, Chemotherapy, Radiotherapy, 12-month 3-weekly injections, and tablet for 5 years my on-going bone aching chronic fatigue was always, attributed to these treatments. However, on one of the Doctor
MamaRidge
in
Thyroid UK
7 years ago
Its kind of being a little bit pregnant....
In 2009 I returned from Iraq I was crazy itchy. Spent months going back and forth to the doctor, being told to take benadryl etc. etc. then I went to my GI doctor for my 6 month follow up (had elevated alk phos since 2002) and he noticed me scratching. He asked me if I had rashes and I said no, other
In 2009 I returned from Iraq I was crazy itchy. Spent months going back and forth to the doctor, being told to take benadryl etc. etc. then I went to my GI doctor for my 6 month follow up (had elevated alk phos since 2002) and he noticed me scratching. He asked me if I had rashes and I said no, other
Cooper6
in
PBC Foundation
7 years ago
Ultrasound Vs Fibroscan
Hello Everyone, Well, it's been almost 1 year since I was diagnosed with PBC. I couldn't tolerate URSO at first, so I actually didn't get started on it until February of this year. I've had labs done pretty regularly (approx every 3 weeks) at first because they were watching my LFT's, but then my
Hello Everyone, Well, it's been almost 1 year since I was diagnosed with PBC. I couldn't tolerate URSO at first, so I actually didn't get started on it until February of this year. I've had labs done pretty regularly (approx every 3 weeks) at first because they were watching my LFT's, but then my
Ktltel
in
PBC Foundation
7 years ago
Help with test results and what to do...........
Apologies in advance as this may seem a long post. Below are my three recent sets of test results - following the March 2017 results my GP placed me on a low dose (25mg) of Levothyroxine. Following the June results, I saw my GP as I was experiencing dizzy spells and tiredness, which were new symptoms
Apologies in advance as this may seem a long post. Below are my three recent sets of test results - following the March 2017 results my GP placed me on a low dose (25mg) of Levothyroxine. Following the June results, I saw my GP as I was experiencing dizzy spells and tiredness, which were new symptoms
JFD1
in
Thyroid UK
7 years ago
Vitamins d xserumresults
Hi i just look at my print out. And found. Serum alanine aminotransferase level. Is. 38uL(0.0-34.0 .and my vitamin serum total. 25-hydroxy vitamun D level 14 nmol/L (>51.0) .vitamin D TSH 5.2mu/L(.27-42) just going to ring doctor. How much vitamin D doi as for pleas. Someone did answear me other
Hi i just look at my print out. And found. Serum alanine aminotransferase level. Is. 38uL(0.0-34.0 .and my vitamin serum total. 25-hydroxy vitamun D level 14 nmol/L (>51.0) .vitamin D TSH 5.2mu/L(.27-42) just going to ring doctor. How much vitamin D doi as for pleas. Someone did answear me other
cathy1110
in
Thyroid UK
7 years ago
Thyroid help and advice
Hi guys I’d like some help and advice with my current symptoms and situation regarding my thyroid. To start, I was diagnosed as Hypo in Dec 2016 as was started on 25mcg of Levo. As the months continued, my dosage went up to 100mcg. I felt fine and normal up until June when my symptoms started, I
Hi guys I’d like some help and advice with my current symptoms and situation regarding my thyroid. To start, I was diagnosed as Hypo in Dec 2016 as was started on 25mcg of Levo. As the months continued, my dosage went up to 100mcg. I felt fine and normal up until June when my symptoms started, I
ADAM945
in
Thyroid UK
7 years ago
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