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Experiences with
Amyotrophic lateral sclerosis (ALS)
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Alk Phos ticking up after being normal...
Hi friends - I've been gone for a couple of years, actually. I was diagnosed with PBC in 2016, with Alk Phos then at 388. Upon taking URSO my numbers dropped to a normal level, but now are trending up. I've jumped from a 120 to 146 in 6 months. I've had several bouts with diverticulitis - not sure if
Hi friends - I've been gone for a couple of years, actually. I was diagnosed with PBC in 2016, with Alk Phos then at 388. Upon taking URSO my numbers dropped to a normal level, but now are trending up. I've jumped from a 120 to 146 in 6 months. I've had several bouts with diverticulitis - not sure if
JennyCville
in
PBC Foundation
4 years ago
Next step: Jevtana or Xofigo?
Hi all, Asking on my behalf of my 71 year old dad who was dx'ed in April 2018 with numerous bone mets all over, no activity in soft tissue. He's been on Zoladex from the start, did Docetaxal between July and October 2018, Zytiga+prednisone from August 2019 til now, and Xgeva since May 2020 as well as
Hi all, Asking on my behalf of my 71 year old dad who was dx'ed in April 2018 with numerous bone mets all over, no activity in soft tissue. He's been on Zoladex from the start, did Docetaxal between July and October 2018, Zytiga+prednisone from August 2019 til now, and Xgeva since May 2020 as well as
Nettie8200
in
Advanced Prostate Cancer
4 years ago
ALS markers in children's teeth.
ALS
markers in children's teeth. Summary: Researchers have identified a new, early biomarker for amyotrophic lateral sclerosis (
ALS
) on the teeth of children.
ALS
markers in children's teeth. Summary: Researchers have identified a new, early biomarker for amyotrophic lateral sclerosis (
ALS
) on the teeth of children.
aspergerian
in
Cure Parkinson's
4 years ago
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T3 / weight gain
Hi everyone I currently take T3 75mcg in one single dose. I have under active thyroid / hashimotos. My biggest symptom is weight gain. I have put quite a bit of weight on this last year which has caused me to become type 2 diabetic again. I have had some bloods taken & got the results. Please note
Hi everyone I currently take T3 75mcg in one single dose. I have under active thyroid / hashimotos. My biggest symptom is weight gain. I have put quite a bit of weight on this last year which has caused me to become type 2 diabetic again. I have had some bloods taken & got the results. Please note
Hippyhappy234
in
Thyroid UK
4 years ago
TDP-43, a common cause of neurological diseases
He may be in the process of entirely upending the current scientific view of
ALS
and other neuronal diseases.
He may be in the process of entirely upending the current scientific view of
ALS
and other neuronal diseases.
SilentEchoes
in
Cure Parkinson's
4 years ago
Would really like some help interpreting my son’s first blood test please
Over recent times I’ve consulted this forum and got a real education with my Hashimoto’s. More recently you helped my daughter who you established is borderline hypo. This got me thinking about my son who has always been “lazy” but skinny. Lately though he has been putting on weight that is shifting
Over recent times I’ve consulted this forum and got a real education with my Hashimoto’s. More recently you helped my daughter who you established is borderline hypo. This got me thinking about my son who has always been “lazy” but skinny. Lately though he has been putting on weight that is shifting
Noelnoel
in
Thyroid UK
4 years ago
Zytiga Not Working
Looking for advice. I was diagnosed in December. PSA 250, With mets on bones and tumors on Lymph nodes. Was put on Lupron and Zytiga and saw PSA drop to 5 in May, rise to 7in early June. My blood test this week shows my PSA rising to 14 and Alk Phos up also. Oncologist has ordered CT and bone scans
Looking for advice. I was diagnosed in December. PSA 250, With mets on bones and tumors on Lymph nodes. Was put on Lupron and Zytiga and saw PSA drop to 5 in May, rise to 7in early June. My blood test this week shows my PSA rising to 14 and Alk Phos up also. Oncologist has ordered CT and bone scans
Newyork6264
in
Advanced Prostate Cancer
4 years ago
What to do
My ex-wife died of
ALS
the same year. I appreciate all of you guys and hope you smile every morning because you are here and you are loved.
My ex-wife died of
ALS
the same year. I appreciate all of you guys and hope you smile every morning because you are here and you are loved.
spkinva
in
Prostate Cancer And Gay Men
4 years ago
Chemo again..it seems to be maintenance.Please give me some insight??. I invite you to read my status and look at my Dads profile for Hx.
My dad did 10 rounds of Taxotere with last one being in Jan. 2020...PSA came down to 52. Had a 4 month break now PSA is up to 142 Alk phos is 200. All labs good otherwise..hemoglobin 11.2(L) Started Jevtana yesterday. He is 77 year old. *Please read profile for history.* Why did his PSA start climbing
My dad did 10 rounds of Taxotere with last one being in Jan. 2020...PSA came down to 52. Had a 4 month break now PSA is up to 142 Alk phos is 200. All labs good otherwise..hemoglobin 11.2(L) Started Jevtana yesterday. He is 77 year old. *Please read profile for history.* Why did his PSA start climbing
savingdaddy
in
Advanced Prostate Cancer
4 years ago
Tounge twitching and als worry😢
When I googled the tounge twitching thing, it talking about
als
, and my grandmother died from it in '96...... I don't know, it's like a catch 22 because I'm reading that stress can cause it, but knowing it's a symptom of
als
is making me stress, like wtf...
When I googled the tounge twitching thing, it talking about
als
, and my grandmother died from it in '96...... I don't know, it's like a catch 22 because I'm reading that stress can cause it, but knowing it's a symptom of
als
is making me stress, like wtf...
DetNative34
in
Anxiety Support
4 years ago
Muscle spasms
My therapist thinks it is related to my anxiety but I can’t help but be worried after my coworker started pointing out to me various disorders that cause muscle spasms such as
ALS
, MS etc. This is causing me to feel even more anxious than I was feeling before.
My therapist thinks it is related to my anxiety but I can’t help but be worried after my coworker started pointing out to me various disorders that cause muscle spasms such as
ALS
, MS etc. This is causing me to feel even more anxious than I was feeling before.
Caito88
in
Anxiety Support
4 years ago
Intermittent fasting for PBC
Hi all! Has anyone here tried intermittent fasting to control symptoms and improve their health? When my alk phos creeped back up into pre URSO levels, I decided to try time restricted feeding because some of the research shows that when the gut is rested regularly for more than 12 hours, repair of the
Hi all! Has anyone here tried intermittent fasting to control symptoms and improve their health? When my alk phos creeped back up into pre URSO levels, I decided to try time restricted feeding because some of the research shows that when the gut is rested regularly for more than 12 hours, repair of the
Dinasmom
in
PBCers Organization
4 years ago
Improper removal of faulty brain cells during neurodevelopment...
https://www.nbc29.com/2020/04/08/uva-researchers-make-key-discovery-that-could-lead-treatments-alzheimers-parkinsons-
als
-other-diseases/
https://www.nbc29.com/2020/04/08/uva-researchers-make-key-discovery-that-could-lead-treatments-alzheimers-parkinsons-
als
-other-diseases/
aspergerian13
in
Cure Parkinson's
4 years ago
LIVER PROFILE - WORRIED?
Hi there, In January I had some blood tests including a bone and liver profile. I received them back a few weeks later and these were my results; everything in range except: Plasma alkaline phosphatase level - above range - 138iu/L (32 - 130) Plasma alanine aminotransferase level 34 iu/L (0 - 35) (not
Hi there, In January I had some blood tests including a bone and liver profile. I received them back a few weeks later and these were my results; everything in range except: Plasma alkaline phosphatase level - above range - 138iu/L (32 - 130) Plasma alanine aminotransferase level 34 iu/L (0 - 35) (not
Cepayne98
in
British Liver Trust
4 years ago
PSA Rising
This site has done well educating me so another question. My PSA started at 250+ in Dec and Alk Phos was 900+. In December I went on Lupron and Zytega. in March, and April my PSA was 6.9 and 5.7, Alk Phos 299 and 220. I had a scan in March that showed tumors shrinking. Today I got my May test results
This site has done well educating me so another question. My PSA started at 250+ in Dec and Alk Phos was 900+. In December I went on Lupron and Zytega. in March, and April my PSA was 6.9 and 5.7, Alk Phos 299 and 220. I had a scan in March that showed tumors shrinking. Today I got my May test results
Newyork6264
in
Advanced Prostate Cancer
4 years ago
B12 deficiency and MND (Motor Neurone Disease)
Article about B12 deficiency and MND/
ALS
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2941760/ Just curious if anyone on the forum has had MND as a suspected diagnosis and then found out they had B12 deficiency. I think MND is mentioned in Sally Pacholok's book "Could It Be B12.
Article about B12 deficiency and MND/
ALS
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2941760/ Just curious if anyone on the forum has had MND as a suspected diagnosis and then found out they had B12 deficiency. I think MND is mentioned in Sally Pacholok's book "Could It Be B12.
Sleepybunny
in
Pernicious Anaemia Society
4 years ago
Blood test results TSH 16 Ferritin 14
Good evening, Clearly my TSH & Ferritin is terrible. I had a TT in Nov was on 125 mg but I started on a dose of 150 mg today. I have been given some Ferrous Sulfate tablets to take too. I have kindly been advised that my Ferritin needs to increase to allow my body to abosord my Levo. Please could
Good evening, Clearly my TSH & Ferritin is terrible. I had a TT in Nov was on 125 mg but I started on a dose of 150 mg today. I have been given some Ferrous Sulfate tablets to take too. I have kindly been advised that my Ferritin needs to increase to allow my body to abosord my Levo. Please could
Lissaok
in
Thyroid UK
4 years ago
Elevated SGPT and SGOT
Hi everyone, My mom who was diagnosed with MNP 2 years ago and has been taking hydroxyurea since then, now has elevated liver enzymes like SGOT and SGPT. Apparently, it has been elevated for the past 6 months. Has anyone here had such an experience? What would be the next step? I know it can be due
Hi everyone, My mom who was diagnosed with MNP 2 years ago and has been taking hydroxyurea since then, now has elevated liver enzymes like SGOT and SGPT. Apparently, it has been elevated for the past 6 months. Has anyone here had such an experience? What would be the next step? I know it can be due
Lovelymom4
in
MPN Voice
4 years ago
Increasing blood levels.
Hello, I understand that medical advice can not be given, I am having pain in my upper stomach and back and noticed an increase in my bloods could someone please cast an eye over them I'm forever asking my GP for help but don't want to at the present time, but will if its concerning. Sep 2018 Serum alanine
Hello, I understand that medical advice can not be given, I am having pain in my upper stomach and back and noticed an increase in my bloods could someone please cast an eye over them I'm forever asking my GP for help but don't want to at the present time, but will if its concerning. Sep 2018 Serum alanine
greengrass100
in
British Liver Trust
4 years ago
Prostar trial results so far
Here are the results of my prostar trial with Xtandi and EZH2 inhibitor. Baseline labs : psa 7.72 and alkaline phos 368 Bone scan showed progression and ct scan was clear of lymph node Mets Started medicine on 3/13. Labs on 4/3: psa dropped to 3.44 and alkaline phos dropped to 121 4/29: bone
Here are the results of my prostar trial with Xtandi and EZH2 inhibitor. Baseline labs : psa 7.72 and alkaline phos 368 Bone scan showed progression and ct scan was clear of lymph node Mets Started medicine on 3/13. Labs on 4/3: psa dropped to 3.44 and alkaline phos dropped to 121 4/29: bone
Peterd110
in
Advanced Prostate Cancer
4 years ago
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