Search
Search
About
Log in
Join
Experiences with
Alna
Posts
Communities
945 public posts
Filter results
blood tests
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
Tonkie
in
LUPUS UK
5 months ago
I have my GP appt to discuss getting a diagnosis..... But do I ask for ANA tedt or referral to specialist???
Hi all, you were all so helpful when i first posted at the beginning of Feb! Finally the day is so close to discuss my possible lupus diagnosis (weds). I have took advice from your chats ,and written my symptoms down since start of Feb,and I'm ready to hopefully try to find a way forwards! But I guess
Hi all, you were all so helpful when i first posted at the beginning of Feb! Finally the day is so close to discuss my possible lupus diagnosis (weds). I have took advice from your chats ,and written my symptoms down since start of Feb,and I'm ready to hopefully try to find a way forwards! But I guess
Gingernat20
in
LUPUS UK
5 months ago
Effective Management of Polycythemia Vera With Ropeginterferon Alfa-2b Treatment
Discussion; The results in our study demonstrate that the new dosing regimen of 250-350-500 µg of ropeginterferon alfa-2b is well-tolerated and highly efficacious in patients suffering from PV. This dosing regimen was associated with a rapid achievement of CHR without the need for phlebotomy or erythrocyte
Discussion; The results in our study demonstrate that the new dosing regimen of 250-350-500 µg of ropeginterferon alfa-2b is well-tolerated and highly efficacious in patients suffering from PV. This dosing regimen was associated with a rapid achievement of CHR without the need for phlebotomy or erythrocyte
Manouche
in
MPN Voice
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Requesting advise for chronic inflammation and iron deficiency anemia
My wife is having a nagging health issue that is still unidentified, only visible thing is I have chronic inflammation and iron deficiency anemia but my other tests are normal like Ana test, HPLC TEST, LDH, LFT, KFT, cholesterol, thyroid, hba1c and fasting blood suger everything is normal only lower
My wife is having a nagging health issue that is still unidentified, only visible thing is I have chronic inflammation and iron deficiency anemia but my other tests are normal like Ana test, HPLC TEST, LDH, LFT, KFT, cholesterol, thyroid, hba1c and fasting blood suger everything is normal only lower
Orco
in
Women's Health
6 months ago
Not believed
I was sent to Rheumatology last year as my hand keeps swelling and I can’t bend my fingers. This was after many years of other issues but I never put the puzzle together and thought I could have been suffering with an autoimmune disease. I have suffered with Angioedema since 2017, with my face blowing
I was sent to Rheumatology last year as my hand keeps swelling and I can’t bend my fingers. This was after many years of other issues but I never put the puzzle together and thought I could have been suffering with an autoimmune disease. I have suffered with Angioedema since 2017, with my face blowing
Tonkie
in
NRAS
6 months ago
facial rash
hi there, I have just had a positive ana result and suspected lupus so I am being referred to a rheumatologist. I have a slight red rash on both cheeks but nothing on my nose. Can a lupus facial rash be just mildly on both cheeks and not on your nose? thanks in advance for any replies? Pinkyerin
hi there, I have just had a positive ana result and suspected lupus so I am being referred to a rheumatologist. I have a slight red rash on both cheeks but nothing on my nose. Can a lupus facial rash be just mildly on both cheeks and not on your nose? thanks in advance for any replies? Pinkyerin
Pinkyerin
in
LUPUS UK
6 months ago
Watching House
I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it is never lupus, but the irony is, when you don’t tests positive on ANA - it can’t be lupus. BUT, if people test positive for ANA, you are told
I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it is never lupus, but the irony is, when you don’t tests positive on ANA - it can’t be lupus. BUT, if people test positive for ANA, you are told
Willow7733
in
LUPUS UK
6 months ago
Positive ANA and Symptoms
Hi everyoneI first tested positive for ANA (high) back in 2014 think it was 1:1280 This was never really followed up & I didn't understand it as I was only young then, but in thr last 5 years I've been experiencing symptoms. I have had more blood tests just from a GP who said ANA aas positive and explained
Hi everyoneI first tested positive for ANA (high) back in 2014 think it was 1:1280 This was never really followed up & I didn't understand it as I was only young then, but in thr last 5 years I've been experiencing symptoms. I have had more blood tests just from a GP who said ANA aas positive and explained
JCM1992
in
LUPUS UK
6 months ago
Terrys nails
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
FarahS
in
PBC Foundation
6 months ago
Does this look like a malar rash? Would it be seen as one by a doctor, do you think?
I have had joint pain and tiredness for the last six years. This last year it has got significantly worse and although I am overweight, the pain is felt in my fingers and elbows sometimes. My heel and ankle are also badly affected. The fatigue is debilitating. I have also developed digestive issues
I have had joint pain and tiredness for the last six years. This last year it has got significantly worse and although I am overweight, the pain is felt in my fingers and elbows sometimes. My heel and ankle are also badly affected. The fatigue is debilitating. I have also developed digestive issues
Fluffymella
in
LUPUS UK
6 months ago
Private specialist recommendation?
I’m not sure if this is allowed? I’m looking for a private Lupus specialist in the Gloucestershire / Wales area. Is there anyone that can be recommended? Despite positive ANA & ANCA my gp says she won’t refer me because other tests were ok and I saw one a few years ago that diagnosed fibromyalgia. Most
I’m not sure if this is allowed? I’m looking for a private Lupus specialist in the Gloucestershire / Wales area. Is there anyone that can be recommended? Despite positive ANA & ANCA my gp says she won’t refer me because other tests were ok and I saw one a few years ago that diagnosed fibromyalgia. Most
Puckster01
in
LUPUS UK
6 months ago
Royal Free visit
Hi all, I just thought I would give a quick update. I attended the Royal Free Hospital last Thursday ,I was seen in the Scleroderma clinic by a member of the team. She asked questions and examined me, she then went and got a senior colleague,(not Prof Denton) unfortunately can’t remember their names
Hi all, I just thought I would give a quick update. I attended the Royal Free Hospital last Thursday ,I was seen in the Scleroderma clinic by a member of the team. She asked questions and examined me, she then went and got a senior colleague,(not Prof Denton) unfortunately can’t remember their names
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Is this a lupus rash
Hey everyone.I'll try and keep this short. Ive been diagnosed with fibromyalgia, pernicious anemia, lots of back disc issues, an exploratory lap for endometriosis which came back clear, my thyroid labs are poor but in range so not medicated but I am positive for tpa antibodies. I have had a positive
Hey everyone.I'll try and keep this short. Ive been diagnosed with fibromyalgia, pernicious anemia, lots of back disc issues, an exploratory lap for endometriosis which came back clear, my thyroid labs are poor but in range so not medicated but I am positive for tpa antibodies. I have had a positive
Peppermints
in
LUPUS UK
7 months ago
How long for ANA/ENA results?
I've had quite a few symptoms of what my GP suspects might be a CTD, spanning back about 10 years but lots more cropping up more recently. She's requested (I think) an ANA test and I understand from googling that if the ANA is positive it then gets sent for ENA testing as well? I'm not sure what the
I've had quite a few symptoms of what my GP suspects might be a CTD, spanning back about 10 years but lots more cropping up more recently. She's requested (I think) an ANA test and I understand from googling that if the ANA is positive it then gets sent for ENA testing as well? I'm not sure what the
Helzipop
in
LUPUS UK
7 months ago
Lupus diagnosis yesterday
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
BonnyB
in
LUPUS UK
7 months ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
7 months ago
Need your advice please
For the last 60 years I have been a vigilant weight watcher, daily exerciser and have watched my calorie intake. When I commenced treatment for my Essential Thrombocytosis in January 2021, my weight was 53.5kg. Three years later this has ballooned to 60.3kg, despite my efforts to control any
For the last 60 years I have been a vigilant weight watcher, daily exerciser and have watched my calorie intake. When I commenced treatment for my Essential Thrombocytosis in January 2021, my weight was 53.5kg. Three years later this has ballooned to 60.3kg, despite my efforts to control any
Goosebumps52
in
MPN Voice
6 months ago
Weak positive
Hi there I had a weak positive ANA it said speckled and 1.80 My dr has said no other action needed. Do I have the beginning of lupus. I already have type 1 diabetes, hashimoto and vitiligo. Thanks for any advice
Hi there I had a weak positive ANA it said speckled and 1.80 My dr has said no other action needed. Do I have the beginning of lupus. I already have type 1 diabetes, hashimoto and vitiligo. Thanks for any advice
Demilouise
in
LUPUS UK
7 months ago
Implications of positive if ‘weak ANA test’?
I have dry-eye confirmed by Moorfield’s. I also have dry mouth and my dentist said she suspected I had Sjorgren’s. When tested I proved to have a ‘weak positive ANA test’. What, if anything does that mean?
I have dry-eye confirmed by Moorfield’s. I also have dry mouth and my dentist said she suspected I had Sjorgren’s. When tested I proved to have a ‘weak positive ANA test’. What, if anything does that mean?
Morganalefaye
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
Lupus questions
Good afternoon, My doctor has been helping me with some ongoing symptoms, and following a positive ANA test has now referred me to a rheumatologist, theorising I may have Lupus. Anti-nuclear factor level POSITIVE - Titre > 1:640 ANA PATTERN SPECKLED My symptoms are: - mild arthritis in my neck, back
Good afternoon, My doctor has been helping me with some ongoing symptoms, and following a positive ANA test has now referred me to a rheumatologist, theorising I may have Lupus. Anti-nuclear factor level POSITIVE - Titre > 1:640 ANA PATTERN SPECKLED My symptoms are: - mild arthritis in my neck, back
EllsBells591
in
LUPUS UK
7 months ago
1
2
3
...
48
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
499 results
Thyroid UK
77 results
Scleroderma & Raynaud's UK (SRUK)
47 results
View top 10 communities
Sort by
Most Relevant
Newest