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Has anyonelse had ana positive, dna positive, then equivocal and now negative????????
Is it me or does this really happen? Been rheumy today to see the nurse and been told that my bloods are negative yet been positive before, Im so confussed my crp is normal, esr normal but yet in in sooooo much pain with my joints????? Why does this happen? Anybody know???? Im under my local hospital
Is it me or does this really happen? Been rheumy today to see the nurse and been told that my bloods are negative yet been positive before, Im so confussed my crp is normal, esr normal but yet in in sooooo much pain with my joints????? Why does this happen? Anybody know???? Im under my local hospital
beckybooboo
in
LUPUS UK
11 years ago
Side effects
Hi, new to the forums, so hello everyone. I am taking Seretide 250 and have been since 2010 has anyone else had problems with joint pain or arthralgia? I had a nasty bout of flu in September 2010 and my gp changed me over to seretide as becotide was not as effective. In December of 2010 I began to
Hi, new to the forums, so hello everyone. I am taking Seretide 250 and have been since 2010 has anyone else had problems with joint pain or arthralgia? I had a nasty bout of flu in September 2010 and my gp changed me over to seretide as becotide was not as effective. In December of 2010 I began to
Hidden
in
Asthma Community Forum
11 years ago
Hi there. I am looking for some advice. I was diagnosed with thyroid problem last year and was put on thyroxine also was told that I had a
Autoimmune disorder but nothing specific.My rheumatologist done bloods last July and as I am due to see my pain specialist tomorrow I dug out previous letters and notice that she states 'weakly positive rheumatoid factor and weakly positive ANA antibodies with positive lupus screen' Does this mean that
Autoimmune disorder but nothing specific.My rheumatologist done bloods last July and as I am due to see my pain specialist tomorrow I dug out previous letters and notice that she states 'weakly positive rheumatoid factor and weakly positive ANA antibodies with positive lupus screen' Does this mean that
dawsden
in
LUPUS UK
11 years ago
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What is a 'low grade connective tissue disorder'?
Sorry, me again ;) Prof K said I have borderline bloods like a low positive ANA and symptoms that show I've got a low grade/mild connective tissue disorder, rather than full blown lupus. What does he mean by that? Does this mean I could develop lupus or is it something else? Susie x
Sorry, me again ;) Prof K said I have borderline bloods like a low positive ANA and symptoms that show I've got a low grade/mild connective tissue disorder, rather than full blown lupus. What does he mean by that? Does this mean I could develop lupus or is it something else? Susie x
Paleosooze
in
Hughes Syndrome APS Forum
11 years ago
Does everyone struggle with trying to get diagnosed?
I am struggling to get a confirmed diagnosis for SLE. My consultant agreed with my dermatologist on the evidence provided ie: 2 positive ANA blood results and nearly all the 11 primary symptoms of SLE. He then wanted me to see his dermatologist who looked at my butterfly rash on my face and said straight
I am struggling to get a confirmed diagnosis for SLE. My consultant agreed with my dermatologist on the evidence provided ie: 2 positive ANA blood results and nearly all the 11 primary symptoms of SLE. He then wanted me to see his dermatologist who looked at my butterfly rash on my face and said straight
gingerjanine
in
LUPUS UK
11 years ago
Results !?
Hello all ! I recieved a copy of the letter for my gp . All bloods came out normal exept slightly positive ANA ( 7 th positive ) low vitamin d and calcium, and my eye test was ... bone dry. I am going back to st Thomas in march to discuss these results with dr sanna but i am doubtful that i will
Hello all ! I recieved a copy of the letter for my gp . All bloods came out normal exept slightly positive ANA ( 7 th positive ) low vitamin d and calcium, and my eye test was ... bone dry. I am going back to st Thomas in march to discuss these results with dr sanna but i am doubtful that i will
larissa
in
LUPUS UK
11 years ago
Could these images be Livedo? (Sneddons, Antiphospholipid Syndrome (APS) & Livedo help!)
Hi there. Basically my question is, do the images below look like something that could be related to Sneddons, Antiphospholipid Syndrome or Livedo? Sorry to ask but I'm very confused with my symptoms! Pictures: *Hopefully link now working* https://plus.google.com/photos/110776790922857768864
Hi there. Basically my question is, do the images below look like something that could be related to Sneddons, Antiphospholipid Syndrome or Livedo? Sorry to ask but I'm very confused with my symptoms! Pictures: *Hopefully link now working* https://plus.google.com/photos/110776790922857768864
medsoph
in
LUPUS UK
11 years ago
What now I ask? - politics and medicine
I am dying in disbelief at the lack of patient care due in part by the awful politics that exists in this countries health system. (NHS and Private alike) I was admitted to my local hospital with acute jaundice and diagnosed with Autoimmune hepatitis 4 years ago, and recently half heartily diagnosed
I am dying in disbelief at the lack of patient care due in part by the awful politics that exists in this countries health system. (NHS and Private alike) I was admitted to my local hospital with acute jaundice and diagnosed with Autoimmune hepatitis 4 years ago, and recently half heartily diagnosed
Jarrod
in
LUPUS UK
11 years ago
ANA Results
I recently had blood tests for Lupus, specifically Antinuclear Antibodies, which came out negative, but I still have symptoms which resemble Lupus. Is it possible to have negative ANA blood tests, yet still have Lupus? Many thanks.
I recently had blood tests for Lupus, specifically Antinuclear Antibodies, which came out negative, but I still have symptoms which resemble Lupus. Is it possible to have negative ANA blood tests, yet still have Lupus? Many thanks.
lupienproud
in
LUPUS UK
11 years ago
Feeling Blue .... anyone else?
Has anyone else experienced such frustration between different clinicians? I have been under rheumatology, dermatology and my GP for 10 years now with vasculitis and sub-cutaneous lupus. My "flare ups" have been getting more and more frequent and my symptoms much worse, hydroxycloroquine no longer works
Has anyone else experienced such frustration between different clinicians? I have been under rheumatology, dermatology and my GP for 10 years now with vasculitis and sub-cutaneous lupus. My "flare ups" have been getting more and more frequent and my symptoms much worse, hydroxycloroquine no longer works
Rachy24
in
LUPUS UK
11 years ago
Positive ANA Not referred
Hi, I have been suffering with a myriad of symptoms, the most consistent is joint pain in elbow, wrist and fingers. My hand will claw and lock. My GP recently ran some bloods and I had a positive ANA and anemia show up. Other symptoms are shortness of breath, fatigue, face sensitivity to heat which lead
Hi, I have been suffering with a myriad of symptoms, the most consistent is joint pain in elbow, wrist and fingers. My hand will claw and lock. My GP recently ran some bloods and I had a positive ANA and anemia show up. Other symptoms are shortness of breath, fatigue, face sensitivity to heat which lead
Dawnage
in
LUPUS UK
11 years ago
So annoyed!!
Recieved a copy of a letter sent to my gp today from my old rheumie. Apparently I missed my appointment with him (which I cancelled as I am under a new rheumie now). Anyhow the letter said my recent blood tests results (taken in August!) show that I am ANA positive 1:80 (nucleolar) but everything else
Recieved a copy of a letter sent to my gp today from my old rheumie. Apparently I missed my appointment with him (which I cancelled as I am under a new rheumie now). Anyhow the letter said my recent blood tests results (taken in August!) show that I am ANA positive 1:80 (nucleolar) but everything else
megs_tom
in
LUPUS UK
11 years ago
Could this be Hashis?
From time to time my throat and neck glands are mega sore ...I don't have cold or flu symptoms but I do feel very cold and can't seem to generate any heat. Are there any Hashis people here who have similar? My muscles really ache as well. Last year I asked the GP for an antibody test and afterwards was
From time to time my throat and neck glands are mega sore ...I don't have cold or flu symptoms but I do feel very cold and can't seem to generate any heat. Are there any Hashis people here who have similar? My muscles really ache as well. Last year I asked the GP for an antibody test and afterwards was
dogtired
in
Thyroid UK
11 years ago
Good News ? Bad News ?
Hi everyone, I went for Rheumi appointment yesterday, and today I don't feel any wiser even though he said he would like to end my confusion. In June 2011, with first Rheumi, I began treatment for what were 'Lupus Like' symptoms and ANA 1:320, no official diagnosis. With traveling since then (I follow
Hi everyone, I went for Rheumi appointment yesterday, and today I don't feel any wiser even though he said he would like to end my confusion. In June 2011, with first Rheumi, I began treatment for what were 'Lupus Like' symptoms and ANA 1:320, no official diagnosis. With traveling since then (I follow
Chapter
in
LUPUS UK
11 years ago
Confusion with blood results...
Just got a letter from my consultant with blood results. ANA positive 1:400.Is that high? Also, dsDNA <20 kU/L. What does that mean? Is that positive dna results? I'm so confused. My local rheumatologist told me I had lupus. The rheumatologist in Birmingham said fibromyalgia. I've just read his letter
Just got a letter from my consultant with blood results. ANA positive 1:400.Is that high? Also, dsDNA <20 kU/L. What does that mean? Is that positive dna results? I'm so confused. My local rheumatologist told me I had lupus. The rheumatologist in Birmingham said fibromyalgia. I've just read his letter
purple-lou
in
LUPUS UK
11 years ago
It had to be the 12 days of Turkey
On the first day of Christmas my true love said to me, I'm glad we bough a turkey and a proper Christmas tree. On the second day of Christmas much laughter could be heard As we tucked in to our turkey-a most delicious bird On the thid day of Christmas we'd friends in from next door, The turkey
On the first day of Christmas my true love said to me, I'm glad we bough a turkey and a proper Christmas tree. On the second day of Christmas much laughter could be heard As we tucked in to our turkey-a most delicious bird On the thid day of Christmas we'd friends in from next door, The turkey
KingoftheCocktails
in
Lung Conditions Community Forum
11 years ago
So confused
I've just come out of an appointment with a lupus specialist. I'm more confused than before. He said that even though I have a diagnosis for lupus, he believes I might have fibromyalgia. He said that my steroid injections wouldn't work with fibromyalgia, after I had told him that I'm significantly better
I've just come out of an appointment with a lupus specialist. I'm more confused than before. He said that even though I have a diagnosis for lupus, he believes I might have fibromyalgia. He said that my steroid injections wouldn't work with fibromyalgia, after I had told him that I'm significantly better
purple-lou
in
LUPUS UK
11 years ago
AMA and ANA
Is anyone else both AMA and ANA positive?
Is anyone else both AMA and ANA positive?
Hidden
in
PBC Foundation
11 years ago
Confused after first Haematology Consultant Appointment, please Help
Hi, I just wanted to ask if anyone has had the same experience at their first consultant appointment? Yesterday morning met my haematologist consultant for the first time (Warwick Hospital), and came out after my 20 min consult more confused than when I went in. So far I have had 2 positive
Hi, I just wanted to ask if anyone has had the same experience at their first consultant appointment? Yesterday morning met my haematologist consultant for the first time (Warwick Hospital), and came out after my 20 min consult more confused than when I went in. So far I have had 2 positive
dragtalav
in
Hughes Syndrome APS Forum
11 years ago
You guys could diagnose me but the consultant won't!
Well I got a letter yesterday from the consultant telling me that despite the ANA being 'weakly' positive for the third time running (1st time 1:320 2nd time not sure 3rd time 1:160) he was passing me back to my GP as I didn't show any of the symptoms of lupus! He also said that 5-10% of the population
Well I got a letter yesterday from the consultant telling me that despite the ANA being 'weakly' positive for the third time running (1st time 1:320 2nd time not sure 3rd time 1:160) he was passing me back to my GP as I didn't show any of the symptoms of lupus! He also said that 5-10% of the population
Angelcake
in
LUPUS UK
11 years ago
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