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Aicardi-goutieres syndrome (AGS)
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Using Lactulose long term
Does anyone know if it is safe to use Lactulose long term? I have IBS-C and have tried all the other remedies such as kiwis, psyllium, prunes ,linseeds, chia seeds and I drink plenty of water but find they either don’t work or give me terrible griping pains. Although I’d prefer to take a natural product
Does anyone know if it is safe to use Lactulose long term? I have IBS-C and have tried all the other remedies such as kiwis, psyllium, prunes ,linseeds, chia seeds and I drink plenty of water but find they either don’t work or give me terrible griping pains. Although I’d prefer to take a natural product
Ella59
in
IBS Network
1 year ago
Pain control with PLMD
I take 100 mg Lyrica for PLMD, the lowest possible dosage as I never have been able to shake the daytime sedation. Now I have some kind of pinched nerve that has been causing chronic pain. Tylenol is not sufficient (I am going to try a lidocaine patch today for the first time and hope that will help
I take 100 mg Lyrica for PLMD, the lowest possible dosage as I never have been able to shake the daytime sedation. Now I have some kind of pinched nerve that has been causing chronic pain. Tylenol is not sufficient (I am going to try a lidocaine patch today for the first time and hope that will help
wantokporo
in
Restless Legs Syndrome
2 years ago
any experience with vitex / agnus castus / herbs? Help!
I’m in a real panic. I took the Holland and Barrett vitex/Agnus castus supplement for about a week in December (at a high dose). I immediately experienced sore boobs and my period came dramatically a week early. The two cycles after this i have not ovulated but had a period. As I’m TTC this is the
I’m in a real panic. I took the Holland and Barrett vitex/Agnus castus supplement for about a week in December (at a high dose). I immediately experienced sore boobs and my period came dramatically a week early. The two cycles after this i have not ovulated but had a period. As I’m TTC this is the
CarlottaD27
in
Fertility Network UK
2 years ago
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Magnesium salts and RLS: malate, glycinate or citrate
Just following up on a recent post recommending magnesium malate for RLS, quoting recommendations made by Californian company Pure Biogenics in promoting their RLS supplement Seratame. Looking into this, experiments on rats suggested that malate may be the most bio-available form of magnesium; there
Just following up on a recent post recommending magnesium malate for RLS, quoting recommendations made by Californian company Pure Biogenics in promoting their RLS supplement Seratame. Looking into this, experiments on rats suggested that malate may be the most bio-available form of magnesium; there
ChrisColumbus
in
Restless Legs Syndrome
2 years ago
Trisomy 22 - POC result. Anybody been in same boat but eventually succeeded? Plz share
Hi ladies So my 4th MC POC was tested and result came back with trisomy 22. No ivf yet. My heart aches to read that it was defective. Good stories always make me feel positive and give me belief that I can carry on. Has anybody in this circle had same issue but eventually succeeded. Did you do
Hi ladies So my 4th MC POC was tested and result came back with trisomy 22. No ivf yet. My heart aches to read that it was defective. Good stories always make me feel positive and give me belief that I can carry on. Has anybody in this circle had same issue but eventually succeeded. Did you do
Preety1983
in
Fertility Network UK
2 years ago
Anovulatory medicated FET success rates
Hello ivf warriors, I am having doubts before our FET. I am currently not ovulating (still breastfeeding my ivf double rainbow). Clinic is happy to induce ovulation by medication for the purposes of the transfer. I am having doubts whether there could be less chance of success given my body has not returned
Hello ivf warriors, I am having doubts before our FET. I am currently not ovulating (still breastfeeding my ivf double rainbow). Clinic is happy to induce ovulation by medication for the purposes of the transfer. I am having doubts whether there could be less chance of success given my body has not returned
pink_lemon
in
Fertility Network UK
2 years ago
Oxycodone not working well
I have been alternating between Tramadol and Oxycodone for awhile now. I do pretty well on the Tramadol but after a month or so,, sometimes sooner, it isn’t as effective so I switch off to oxycodone. I don’t do near as well on the oxy and am wondering if it’s a dosage issue, a timing issue, or maybe
I have been alternating between Tramadol and Oxycodone for awhile now. I do pretty well on the Tramadol but after a month or so,, sometimes sooner, it isn’t as effective so I switch off to oxycodone. I don’t do near as well on the oxy and am wondering if it’s a dosage issue, a timing issue, or maybe
SleeplessinOR
in
Restless Legs Syndrome
2 years ago
THC and augmentation
In researching THC use and RLS, it is described as a dopamine agonist. Is there evidence it can also produce augmentation? . It works very well for me and does not produce the side effect that makes Gabapentin, Lyrica or opioids unacceptable options. However I can’t use it much because of my line of
In researching THC use and RLS, it is described as a dopamine agonist. Is there evidence it can also produce augmentation? . It works very well for me and does not produce the side effect that makes Gabapentin, Lyrica or opioids unacceptable options. However I can’t use it much because of my line of
Hidden
in
Restless Legs Syndrome
2 years ago
Dad admitted to ICU with Sepsis on 31/12/22
my dad was admitted to the ICU on New Year’s Eve, he’s had pneumonia, strep a and sepsis, he’s currently got the Trachi and is on the kidney filter machine. The doctors are saying that they need to sedate him 100% now so he can get the rest he needs as everything is failing on him. They’ve talked about
my dad was admitted to the ICU on New Year’s Eve, he’s had pneumonia, strep a and sepsis, he’s currently got the Trachi and is on the kidney filter machine. The doctors are saying that they need to sedate him 100% now so he can get the rest he needs as everything is failing on him. They’ve talked about
Omwils
in
ICUsteps
2 years ago
Twitching running eye...
I have Hashimotos and wondered if any of you lovely people with this also have this happen to you.My left eyelid is kind of flickering and has been on and off for the last 4 weeks, it's not noticable if I look at it in the mirror but when I try sleep I can definitely feel it. Yesterday it was watering
I have Hashimotos and wondered if any of you lovely people with this also have this happen to you.My left eyelid is kind of flickering and has been on and off for the last 4 weeks, it's not noticable if I look at it in the mirror but when I try sleep I can definitely feel it. Yesterday it was watering
Diamond61
in
Thyroid UK
2 years ago
Methadone + Pregabalin + Trazodone - So far so good
Hi everyone, just wanted to share a good story. Sorry for the telegraphic style, I'm just saving everyone's time. I'm 33, living in Canada. I guess I've had RLS my whole life, but it started affecting my sleep about 10 years ago. I'm very active (cycling everyday, rock climbing & calisthenics). No other
Hi everyone, just wanted to share a good story. Sorry for the telegraphic style, I'm just saving everyone's time. I'm 33, living in Canada. I guess I've had RLS my whole life, but it started affecting my sleep about 10 years ago. I'm very active (cycling everyday, rock climbing & calisthenics). No other
GuillaumeL
in
Restless Legs Syndrome
2 years ago
sensitive post about early loss
Hello all I had been elated that after our third frozen transfer I had a positive pregnancy result and a heart beat at 7 weeks. At an early reassurance scan this wknd no heart beat was found. I should be 11w5days but foetus measured 10weeks and no heartbeat. They’ve booked me an appointment with
Hello all I had been elated that after our third frozen transfer I had a positive pregnancy result and a heart beat at 7 weeks. At an early reassurance scan this wknd no heart beat was found. I should be 11w5days but foetus measured 10weeks and no heartbeat. They’ve booked me an appointment with
ShelleyBalders
in
Fertility Network UK
2 years ago
RLS - Suboxone - PLMD
I have had RLS for years. Last year I weaned off ropinirole. In doing so, the doctor prescribed opioids. When I started Suboxone, I developed PLMD. Has anyone had this happen with Suboxone? Did nothave PLM before.
I have had RLS for years. Last year I weaned off ropinirole. In doing so, the doctor prescribed opioids. When I started Suboxone, I developed PLMD. Has anyone had this happen with Suboxone? Did nothave PLM before.
DogBella
in
Restless Legs Syndrome
2 years ago
blood test results
blood test on Monday . These are some of the results SCR 8.3 no further action required. ESR 2 ditto above. Both outside references range Platelet count 463 as above NFA Basophil 0.17 NFA ORR Can you tell me what they mean please
blood test on Monday . These are some of the results SCR 8.3 no further action required. ESR 2 ditto above. Both outside references range Platelet count 463 as above NFA Basophil 0.17 NFA ORR Can you tell me what they mean please
Suffererc
in
PMRGCAuk
2 years ago
Weaning off Ropinirole
I am currently in the process of Ropinirole withdrawal. I was on 3mg per day having started on .5mg. My legs had started to play up as early as 11am in the morning, and I guess I was augmenting. My GP has put on Gabapentin 200mg at night and am reducing the Ropinirole by 0.25 each week. At the
I am currently in the process of Ropinirole withdrawal. I was on 3mg per day having started on .5mg. My legs had started to play up as early as 11am in the morning, and I guess I was augmenting. My GP has put on Gabapentin 200mg at night and am reducing the Ropinirole by 0.25 each week. At the
mickeyrose
in
Restless Legs Syndrome
2 years ago
Collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
hunkyd0ry
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Lactobacillus reuteri , Mucuna Pruriens , and magnesium malate to treat RLS
Hello, Newbie to the forum wondering if Mucuna Pruriens is used by people on this forum? Magnesium Malate , which helps the iron cross the BBB? And Lactobacillus Reuteri? (Recommended for RLS by Dr. Will Davis)
Hello, Newbie to the forum wondering if Mucuna Pruriens is used by people on this forum? Magnesium Malate , which helps the iron cross the BBB? And Lactobacillus Reuteri? (Recommended for RLS by Dr. Will Davis)
Little_apple
in
Restless Legs Syndrome
2 years ago
Hello. I’m new here.
Hello RLS forum. I’m new here. I’m already learning a lot from reading your posts and responses. I could quickly tell that it is mostly women on this forum. It is a kinder and gentler place than the Parkinson’s forum with predominately older men. What a relief! I have anxiety which is greatly worsened
Hello RLS forum. I’m new here. I’m already learning a lot from reading your posts and responses. I could quickly tell that it is mostly women on this forum. It is a kinder and gentler place than the Parkinson’s forum with predominately older men. What a relief! I have anxiety which is greatly worsened
Little_apple
in
Restless Legs Syndrome
2 years ago
Hypermobility/HEDS recommendation?
Hi there. Thanks for taking the time to read my post. I posted on the EDS forum but it’s not very active and no response yet. I have recently been diagnosed with PoTs and have fibromyalgia and erythromelalgia. I’m in the watch and wait category I believe for auto immune inc lupus but at my recent autonomics
Hi there. Thanks for taking the time to read my post. I posted on the EDS forum but it’s not very active and no response yet. I have recently been diagnosed with PoTs and have fibromyalgia and erythromelalgia. I’m in the watch and wait category I believe for auto immune inc lupus but at my recent autonomics
Winter_night
in
LUPUS UK
2 years ago
Recommendations for an EDS specialist in London?
Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent autonomics appointment my hyperflexible joints were mentioned and I was asked if I'd been assessed for hypermobile EDS. I would like to find someone
Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent autonomics appointment my hyperflexible joints were mentioned and I was asked if I'd been assessed for hypermobile EDS. I would like to find someone
Winter_night
in
Ehlers-Danlos Support UK
2 years ago
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