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So done with this
Hi everyone.. I was diagnose with Giant Cell Arteritis in Sep 2018 so I haven't had it for long it feels longer I hate the headaches,tiredness,body akes,and the weight gain from the prednisone ugh! 😢😢
Hi everyone.. I was diagnose with Giant Cell Arteritis in Sep 2018 so I haven't had it for long it feels longer I hate the headaches,tiredness,body akes,and the weight gain from the prednisone ugh! 😢😢
vicky561
in
PMRGCAuk
5 years ago
Stem Cell Treatment
A little while ago I mentioned that liver transplants could one day become a thing of the past. Day by day the use stem cell treatment and research brings us closer to finding a cure for liver disease. HIV positive man in London becomes second person ever to be cleared of virus after stem cell transplant
A little while ago I mentioned that liver transplants could one day become a thing of the past. Day by day the use stem cell treatment and research brings us closer to finding a cure for liver disease. HIV positive man in London becomes second person ever to be cleared of virus after stem cell transplant
Hidden
in
British Liver Trust
5 years ago
Why is this necessary?
Diagnosed GCA, on Pred , however Consultant has recommended an Endoscopy and Colonoscopy. I do not have any symptoms and feel bad enough, so I declined?
Diagnosed GCA, on Pred , however Consultant has recommended an Endoscopy and Colonoscopy. I do not have any symptoms and feel bad enough, so I declined?
Seagu11
in
PMRGCAuk
5 years ago
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Hot Flushes increasing
I reduced my prednisolone from 10mg to 9mg at the beginning of February and just about coping with the soreness but have noticed an increase in facial hot flushes and night sweats. Has anyone else felt these side effects have got worse as you reduce?
I reduced my prednisolone from 10mg to 9mg at the beginning of February and just about coping with the soreness but have noticed an increase in facial hot flushes and night sweats. Has anyone else felt these side effects have got worse as you reduce?
Godrevy1960
in
PMRGCAuk
5 years ago
Donating bone marrow to cure sickle cell anaemia
A bone marrow transplant is the only complete cure for treating sickle cell anaemia. This is a kind of treatment in which the patient’s bone marrow is changed to new healthy bone marrow. This is done either by collecting the patient’s own bone marrow or that of a donor. In the case of sickle cell disease
A bone marrow transplant is the only complete cure for treating sickle cell anaemia. This is a kind of treatment in which the patient’s bone marrow is changed to new healthy bone marrow. This is done either by collecting the patient’s own bone marrow or that of a donor. In the case of sickle cell disease
anjana_indheal
in
Living with Sickle Cell Disease
5 years ago
SICKLE CELL NEWSWEEK
FATIMAH had a stroke at the age of 7. She recovered 100% and graduates May 2019 with a degree in Public Finance http://bit.ly/2FAO2KD Zandra Chidinma Nwogu’s first pain crises in eight years - ‘Water Marathon Therapy’ to the rescueh ttp://bit.ly/2HvAi5k Folks with SCD can only TAKE but not GIVE blood
FATIMAH had a stroke at the age of 7. She recovered 100% and graduates May 2019 with a degree in Public Finance http://bit.ly/2FAO2KD Zandra Chidinma Nwogu’s first pain crises in eight years - ‘Water Marathon Therapy’ to the rescueh ttp://bit.ly/2HvAi5k Folks with SCD can only TAKE but not GIVE blood
sicklecellnews
in
Sickle Cell Society
6 years ago
Love is : Valentines Day Together in Clinic. . 💘
It's been some time since I posted but I keep in touch with the posts. It's part of me moving on in my lengthy recovery. I know from what I see that there are many new Forum members since I was active and that's great because we know it's one of the best sources of information , support and help for
It's been some time since I posted but I keep in touch with the posts. It's part of me moving on in my lengthy recovery. I know from what I see that there are many new Forum members since I was active and that's great because we know it's one of the best sources of information , support and help for
JediReject
in
MPN Voice
6 years ago
Hey There
Hi everyone this is just a post of me introducing myself, I'm not sure how close of a community you guys are but it's nice to be a part of something where people can really relate. My name is Kelsey I was born and diagnosed with Sickle Cell Anemia and I'm just trying to keep my shit together lol.
Hi everyone this is just a post of me introducing myself, I'm not sure how close of a community you guys are but it's nice to be a part of something where people can really relate. My name is Kelsey I was born and diagnosed with Sickle Cell Anemia and I'm just trying to keep my shit together lol.
sunshinee
in
Sickle Cell Society
6 years ago
Dad in ICU fighting pneumonia and is slow to wake up from induced coma
Hi everyone. I’m wondering if anyone has any encouragement for our situation. My dad is 78 but has always been extremely healthy - a marathon runner until his back stopped him from running and now he’s been an avid swimmer for years and has had no real medical issues. He had a stem cell transplant
Hi everyone. I’m wondering if anyone has any encouragement for our situation. My dad is 78 but has always been extremely healthy - a marathon runner until his back stopped him from running and now he’s been an avid swimmer for years and has had no real medical issues. He had a stem cell transplant
WhitneyS18
in
ICUsteps
6 years ago
Seeking people with experience of Stem Cell Transplant for Richter's - I have a decision to make!
Hi All Have been reading lots of posts since my diagnosis of CLL 9 months ago - what a great community, which I have found really helpful. I was diagnosed with Non-Hodgkins DLBCL which is a Richter's transformation from previously undiagnosed CLL. I am a healthy 50 year old female, with no symptoms
Hi All Have been reading lots of posts since my diagnosis of CLL 9 months ago - what a great community, which I have found really helpful. I was diagnosed with Non-Hodgkins DLBCL which is a Richter's transformation from previously undiagnosed CLL. I am a healthy 50 year old female, with no symptoms
Buddhababy
in
CLL Support
6 years ago
Private B12 injections in London please?
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
GastritisB12
in
Pernicious Anaemia Society
6 years ago
Cutaneous Vasculitis
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
lou1972
in
Vasculitis UK
6 years ago
Dyskeratosis Congentia
Hi Everyone, I am so pleased there is a link to connect all families who are suffering with this sad and devastating condition. My son was diagnosed back in 2011 just by having a routine blood test. Our world fell apart when we finally got the diagnosis that my son along with my daughter have such
Hi Everyone, I am so pleased there is a link to connect all families who are suffering with this sad and devastating condition. My son was diagnosed back in 2011 just by having a routine blood test. Our world fell apart when we finally got the diagnosis that my son along with my daughter have such
Hidden
in
DC Action
6 years ago
Job interview - dealing with embarrassing sweats
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and bearable EXCEPT I suffer from red hot flushes to the face and terrible head sweats. I have noticed that these occur spontaneously but they are definitely
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and bearable EXCEPT I suffer from red hot flushes to the face and terrible head sweats. I have noticed that these occur spontaneously but they are definitely
EscapedtoWales
in
PMRGCAuk
6 years ago
O-CHOP
Hi everyone. Back with an update. New diagnosis: Follicular B, Stage IV, Grade 2. (was Grade 1) Previous treatment was Rituxan and Bendamustine, remission, shingles and it's baaaaack. Has anyone had O-CHOP? Obinutuzunab, Cyclophosphamide, Doxorubicin, Vincristine. Am scheduled for infusion 1\29,30,31
Hi everyone. Back with an update. New diagnosis: Follicular B, Stage IV, Grade 2. (was Grade 1) Previous treatment was Rituxan and Bendamustine, remission, shingles and it's baaaaack. Has anyone had O-CHOP? Obinutuzunab, Cyclophosphamide, Doxorubicin, Vincristine. Am scheduled for infusion 1\29,30,31
kstan8
in
Non Hodgkin's Lymphoma Friends
6 years ago
Sickle Cell News
Telemedicine Mobihealth (UK) is set to revolutionize healthcare delivery for SCD and other health conditions in Africa ‘But you don’t look sick!’ Looking OK is worlds apart from Feeling Ok – why people with SCD need better understanding and acceptance, by Lady Anne Welsh, former Chairperson, Sickle Cell
Telemedicine Mobihealth (UK) is set to revolutionize healthcare delivery for SCD and other health conditions in Africa ‘But you don’t look sick!’ Looking OK is worlds apart from Feeling Ok – why people with SCD need better understanding and acceptance, by Lady Anne Welsh, former Chairperson, Sickle Cell
sicklecellnews
in
Sickle Cell Society
6 years ago
Stem cell transplant appointment for post PV MF
My husband met with the transplant team yesterday. They went through pros and cons of a transplant. The only option offered to him for his post PVMF was ruxlitnib. We wanted to know about Pegasus and interferon but these two weren't an option. So for now he's going to take ruxlitnib for as long as he
My husband met with the transplant team yesterday. They went through pros and cons of a transplant. The only option offered to him for his post PVMF was ruxlitnib. We wanted to know about Pegasus and interferon but these two weren't an option. So for now he's going to take ruxlitnib for as long as he
tracey13
in
MPN Voice
6 years ago
Sickle Cell News Week
SICKLECELLNEWSWEEk He will probably be 72 years old before he has another major sickle cell crises … a day in the life of a lab scientist http://bit.ly/2EItuzp Nigeria 2019 – Presidential Candidate Hooks Up With SCD Group on Whatsapp – says Sickle Cell not a barrier to a purposeful life http://bit.ly
SICKLECELLNEWSWEEk He will probably be 72 years old before he has another major sickle cell crises … a day in the life of a lab scientist http://bit.ly/2EItuzp Nigeria 2019 – Presidential Candidate Hooks Up With SCD Group on Whatsapp – says Sickle Cell not a barrier to a purposeful life http://bit.ly
sicklecellnews
in
Sickle Cell Society
6 years ago
Therapy y Sickle Cell
Hi everyone. I am 41 years old and I have sickle cell anemia. I would like to share something which is the Bemer therapy that is helping my blood to flow better and that relieves the pain in my shoulders as I have had several infarcts in both of my shoulders. I continue with my medications every day
Hi everyone. I am 41 years old and I have sickle cell anemia. I would like to share something which is the Bemer therapy that is helping my blood to flow better and that relieves the pain in my shoulders as I have had several infarcts in both of my shoulders. I continue with my medications every day
Sabata
in
Sickle Cell Society
6 years ago
SICKLE CELL NEWSWEEK
Young medical graduate tells Paediatrics Professor, YOU KNOW NOTHING ABOUT SICKLE CELL!!! http://bit.ly/2QAqM59 Seven-year-old diagnosed with spinal cord stroke – long road to recovery http://bit.ly/2RZTJnL UK-based Richard Coker Foundation takes sickle cell awareness seminar to Girls’ College
Young medical graduate tells Paediatrics Professor, YOU KNOW NOTHING ABOUT SICKLE CELL!!! http://bit.ly/2QAqM59 Seven-year-old diagnosed with spinal cord stroke – long road to recovery http://bit.ly/2RZTJnL UK-based Richard Coker Foundation takes sickle cell awareness seminar to Girls’ College
sicklecellnews
in
Sickle Cell Society
6 years ago
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