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Experiences with
Androgen deprivation therapy (ADT)
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Advice please on blood results
Thyroglobulin 86.3ng/ml High Ref. range 3.5-77 I have hypothyroidism and these are my recent results. Any suggestions please on how I can reduce my thyroid globulin antibodies and TSH? I take 1 NDT per day with a range of vitamins
Thyroglobulin 86.3ng/ml High Ref. range 3.5-77 I have hypothyroidism and these are my recent results. Any suggestions please on how I can reduce my thyroid globulin antibodies and TSH? I take 1 NDT per day with a range of vitamins
Peppermints123
in
Thyroid UK
11 months ago
NDT info request
Dear all, I would be extremely grateful for private messages with information about trustworthy sources of reliable-quality NDT in the UK (non-prescription). Many thanks in advance!
Dear all, I would be extremely grateful for private messages with information about trustworthy sources of reliable-quality NDT in the UK (non-prescription). Many thanks in advance!
lutepavan
in
Thyroid UK
11 months ago
How to add adrenal support (on NDT)
I think I need to add adrenal support to my NDT but looking for some help on the practicalities and open to ideas about whether this is my problem. Specifically, do I need to stop NDT first? If so, how slowly should I taper off? I'd really like to spend as little time as necessary feeling so hypo!
I think I need to add adrenal support to my NDT but looking for some help on the practicalities and open to ideas about whether this is my problem. Specifically, do I need to stop NDT first? If so, how slowly should I taper off? I'd really like to spend as little time as necessary feeling so hypo!
FoggyThinker
in
Thyroid UK
11 months ago
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Using transdermal E2
Ronron's posts about using E2 instead of
ADT
have been interesting. Who else has used? If so: 1. Has anyone switched from using Lupron (or any 1st or 2nd level
ADT
, such as Firmagon, abiraterone, etc.) directly to transdermal E2? 2.
Ronron's posts about using E2 instead of
ADT
have been interesting. Who else has used? If so: 1. Has anyone switched from using Lupron (or any 1st or 2nd level
ADT
, such as Firmagon, abiraterone, etc.) directly to transdermal E2? 2.
dhccpa
in
Advanced Prostate Cancer
2 years ago
Hormonal therapy and Meningioma brain tomors
Back in 2016 I was diagnosed with stage 4A (regionally metastatic) Ductal Prostate Cancer. In addition to surgery and radiation I was on Lupron and Zytiga with prednisone for a couple of years, ending in late 2018. Luckily for me it looks like I was able to make it to remission. Unfortunately in 2019
Back in 2016 I was diagnosed with stage 4A (regionally metastatic) Ductal Prostate Cancer. In addition to surgery and radiation I was on Lupron and Zytiga with prednisone for a couple of years, ending in late 2018. Luckily for me it looks like I was able to make it to remission. Unfortunately in 2019
Dr_WHO
in
Advanced Prostate Cancer
1 year ago
Antidepressants and ED
I've been on
ADT
for 4.5 years. Lupron and Zytiga. We all know the sexual health problems with that. I was getting depressed quite badly at times so I started Citalopram a few days ago. It's already helping but I have noticed a bit more ED. Maybe I have to give it some time to see.
I've been on
ADT
for 4.5 years. Lupron and Zytiga. We all know the sexual health problems with that. I was getting depressed quite badly at times so I started Citalopram a few days ago. It's already helping but I have noticed a bit more ED. Maybe I have to give it some time to see.
gsun
in
Advanced Prostate Cancer
2 years ago
Enzalutamide plus leuprolide reduces risk of metastasis in nonmetastatic HSPC men-from Urology Times, 29 Apr 2023
Findings from the phase 3 EMBARK trial showed that enzalutamide (Xtandi) plus leuprolide reduced the risk of metastasis or death by nearly 60% vs placebo plus leuprolide in patients with nonmetastatic hormone-sensitive prostate cancer (nmHSPC) with high-risk biochemical recurrence (BCR).1,2 "The
Findings from the phase 3 EMBARK trial showed that enzalutamide (Xtandi) plus leuprolide reduced the risk of metastasis or death by nearly 60% vs placebo plus leuprolide in patients with nonmetastatic hormone-sensitive prostate cancer (nmHSPC) with high-risk biochemical recurrence (BCR).1,2 "The
Balsam01
in
Advanced Prostate Cancer
1 year ago
SPLASH Study using Lu-PNT2002 PSMA after second line hormonal treatment
Was diagnosed 16 years ago with advanced prostate cancer and has done
ADT
, Erleada, and the cancer has spread to his spine, and lymph nodes 2 years ago.
Was diagnosed 16 years ago with advanced prostate cancer and has done
ADT
, Erleada, and the cancer has spread to his spine, and lymph nodes 2 years ago.
dadsdrdawn
in
Advanced Prostate Cancer
2 years ago
PSA rising - When to get a PSMA PET scan?
I'm curious what doctors and researchers are saying about when to do a PSMA PET scan in response to recurrent measurable PSA after
ADT
. I had an RP in 2015. That gave me 8 months of undetectable PSA.
I'm curious what doctors and researchers are saying about when to do a PSMA PET scan in response to recurrent measurable PSA after
ADT
. I had an RP in 2015. That gave me 8 months of undetectable PSA.
Revcat
in
Advanced Prostate Cancer
1 year ago
Current PCa treatment options in the UK do NOT include Triplet Therapy!
Apparently, the UK "gold standard" of treatment is to give a de novo APC patient either
ADT
+ AR or
ADT
+ chemo but not all three at the same time. They strongly recommend that I start with Prostap + Enzalutamide.
Apparently, the UK "gold standard" of treatment is to give a de novo APC patient either
ADT
+ AR or
ADT
+ chemo but not all three at the same time. They strongly recommend that I start with Prostap + Enzalutamide.
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Improvement then worsening thyroid
I'm on 3.5 Grain NDT. I get a improment in sleep and depression. In the 5 week my depression worsen and i got daily nightmares. Now I reached week 6 and the worsening is still there.What does this mean? On levo 162 i had the worsening also in week 5 and in week 8 the depression (nightmares and interupted
I'm on 3.5 Grain NDT. I get a improment in sleep and depression. In the 5 week my depression worsen and i got daily nightmares. Now I reached week 6 and the worsening is still there.What does this mean? On levo 162 i had the worsening also in week 5 and in week 8 the depression (nightmares and interupted
charley123
in
Thyroid UK
11 months ago
Endocrinologists and NDT Lancashire
Good morning I wonder if anyone could message me please regarding any endocrinologists who deal with NDT in the Lancashire area and advise me of their experiences. Many thanks
Good morning I wonder if anyone could message me please regarding any endocrinologists who deal with NDT in the Lancashire area and advise me of their experiences. Many thanks
Joeybobs
in
Thyroid UK
11 months ago
Endocrinologists and NDT Lancashire
Good morning I'm just wondering if anyone has any recomendations for endocrinologists preferably East Lancashire otherwise Lancashire in general who have an understanding of NDT. I see Simon Howell a Consultant at Preston is on the list - if anyone could advise me I would be grateful Julie
Good morning I'm just wondering if anyone has any recomendations for endocrinologists preferably East Lancashire otherwise Lancashire in general who have an understanding of NDT. I see Simon Howell a Consultant at Preston is on the list - if anyone could advise me I would be grateful Julie
Joeybobs
in
Thyroid UK
11 months ago
Localized High Risk Pca (G9 4+5) questions
Questions I have: With a PSMA pet scan as being clear, do I need
ADT
therapy? I believe the standard of care is 2 years with radiation with high risk PCa. PSMA Pet scans are new, and not sure if there is clinical evidence, but with a clear scan, perhaps
ADT
therapy should be reviewed.
Questions I have: With a PSMA pet scan as being clear, do I need
ADT
therapy? I believe the standard of care is 2 years with radiation with high risk PCa. PSMA Pet scans are new, and not sure if there is clinical evidence, but with a clear scan, perhaps
ADT
therapy should be reviewed.
SierraSix
in
Prostate Cancer Network
2 years ago
Mum with CBD
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Bobbiejo21
in
PSP Association
10 months ago
NDT or porcine thyroid
Hello I have had Hashies for about 2 years now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I've had constipation, bloating and gas for many years. Muscle and
Hello I have had Hashies for about 2 years now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I've had constipation, bloating and gas for many years. Muscle and
ChickieBaker
in
Thyroid UK
11 months ago
First results after switching to NDT. Help pls ...
Hi beautiful people, I shared a number of posts here about my thyroid journey. I switched to Erfa brand NDT 2 weeks ago after being on levo for 2 decades. I started from 0.5 grain, increased to 1 grain and then to 1,5 grains. I've been on 1,5 grains for about 5 days now. I checked my bloods 2 weeks
Hi beautiful people, I shared a number of posts here about my thyroid journey. I switched to Erfa brand NDT 2 weeks ago after being on levo for 2 decades. I started from 0.5 grain, increased to 1 grain and then to 1,5 grains. I've been on 1,5 grains for about 5 days now. I checked my bloods 2 weeks
Juliet_22
in
Thyroid UK
11 months ago
Porcine supplements or NDT ?
Hello I have had Hashies for about a year now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I’ve just bought some 40mg porcine thyroid tablets but only because
Hello I have had Hashies for about a year now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I’ve just bought some 40mg porcine thyroid tablets but only because
ChickieBaker
in
Thyroid UK
11 months ago
Parkinsons & Prostate cancer
My husband is the PWP and has recently been diagnosed with Prostate cancer. He is having hormone therapy now in the form of Prostap injection every 3 months prior to Radiotherapy.He is now having more difficulty with walking , particularly turning, since the hormone treatment started and wondering if
My husband is the PWP and has recently been diagnosed with Prostate cancer. He is having hormone therapy now in the form of Prostap injection every 3 months prior to Radiotherapy.He is now having more difficulty with walking , particularly turning, since the hormone treatment started and wondering if
Jalia
in
Cure Parkinson's
1 year ago
Short Term or Long(er) Term ADT With Salvage RT
Happy to get off
ADT
(usual side effects, but not terrible), but some risk factors have me questioning the decision not to continue
ADT
in some form.
Happy to get off
ADT
(usual side effects, but not terrible), but some risk factors have me questioning the decision not to continue
ADT
in some form.
C2H5OH
in
Advanced Prostate Cancer
2 years ago
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