NDT or porcine thyroid

[ChickieBaker]

Hello

I have had Hashies for about 2 years now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I've had constipation, bloating and gas for many years. Muscle and joint aches, absolutely no libido and weight gain. I’ve just bought some 40mg porcine thyroid tablets but only because I thought they were NDT. I now understand that they aren’t. Can anyone tell me which they have tried and whether their antibodies went down. Any other suggestions for lowering antibodies greatly appreciated.

[SlowDragon Administrator]

Always test thyroid early morning, ideally just before 9am, and only drink water between waking and test to get highest TSH

What were most recent Ft4 and Ft3 results

What are your most recent vitamin D, folate, and B12 results

Exactly what vitamin supplements are you taking

With two tests with TSH over 5, and high thyroid antibodies and symptoms you should be started on levothyroxine

Starting levothyroxine - flow chart

gps.northcentrallondonccg.n...

List of thyroid specialists and endocrinologists who would consider starting you on levothyroxine

healthunlocked.com/thyroidu...

Better to start on levothyroxine initially……ideally on prescription

[ChickieBaker in reply to SlowDragon]

Hi and thanks for getting back to me. The private GP list isn't working for me, it says the form can't be submitted ? I always do my tests by 8am after plenty of water.

My TSH is 4.87

FT3 is 4.0

FT4 is 13.3

Thyroglobulin 462

Peroxidase 113

Vit D is 139

Folate is 40.7

B12 is 150

Ferritin is 272

I am working with a naturopath and am on a variety of supplements and herbal capsules.

I did see a different doctor at my surgery and took a list of my symptoms and asked to try Levo for just 3 months and she agreed. ( my named doctor would let me until my TSH got to 10 🤬 ). Of course on the Levo my TSH went down to approx 1.7 if memory serves ! She then emailed the endocrinologist who told her to take me off the Levo. Couldn't understand why I had my antibodies tested and sounded quite angry about it. My surgery doesn't do antibody blood test as they don't treat Hashies, even though it's an autoimmune disease, it beggers comprehensive 😱

I thought about trying NDT as I read about it in Be Your Own Thyroid Advocate and the author has very good results with it. I've just bought a bottle of 40mg porcine thyroid to try.

If I take Levo I'll have to get it privately as my doctor won't prescribe it until the TSH gets to 20. Being a proactive person rather than reactive this frustrates me. O.K rant over 😂😂 Thanks again.

[SlowDragon Administrator in reply to ChickieBaker]

TSH over 5 and antibodies and symptoms will get started you a prescription of levothyroxine

This link is for 2 lists for thyroid specialist endocrinologists and doctors

thyroiduk.org/about-thyroid...

[RedApple Administrator]

Baboon2721, Your post may trigger personal messages being sent to you about where you can buy thyroid medications without prescription.

If you haven't already done so, please read this post so that you are aware of the potential for scammers to take advantage of people in your situation. healthunlocked.com/thyroidu...

[ChickieBaker in reply to RedApple]

Thanks for that. I have had a couple of private messages but they've only suggested brands that they have been using and I'm a naturally suspicious person so will be careful 😊 Thanks again.

[RedApple Administrator in reply to ChickieBaker]

If anyone tells you where you can buy these brands and it's not one you've used before, do contact admin to see if we have any feedback about the source.

[ChickieBaker in reply to RedApple]

Will do, thanks 🙏