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Experiences with
Androgen deprivation therapy (ADT)
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Constipation
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Groda
in
PMRGCAuk
9 months ago
Very slow start getting treatment and diagnosis
Hi everyone, My dad went to the doctor recently and discovered he has a psa of 255. His doctor ordered him a psma pet scan for a week later which was supposed to be today. He shows up and Kaiser cancelled the scan. They told me it happens a lot that radiology appointments need to be cancelled (? Not
Hi everyone, My dad went to the doctor recently and discovered he has a psa of 255. His doctor ordered him a psma pet scan for a week later which was supposed to be today. He shows up and Kaiser cancelled the scan. They told me it happens a lot that radiology appointments need to be cancelled (? Not
AppleTree43
in
Advanced Prostate Cancer
1 year ago
Can I get Armour Thyroid or NDT from Crete without a prescription? Can I get it with a private prescription if not?
Hi everyone, I have been on Armour Thyroid for 22 years , I’m now 44. I was originally trialed on levothyroxine but there was absolutely no improvement, I was severely ill from a teenager, bed ridden with chronic pain and it was only when I was put on Armour Thyroid in my early 20s that I started to
Hi everyone, I have been on Armour Thyroid for 22 years , I’m now 44. I was originally trialed on levothyroxine but there was absolutely no improvement, I was severely ill from a teenager, bed ridden with chronic pain and it was only when I was put on Armour Thyroid in my early 20s that I started to
ScooterNoden79
in
Thyroid UK
10 months ago
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ndt source
Is it possible please for someone to message me. I am wanting to purchase some NDT. Probably not Armour as too expensive,
Is it possible please for someone to message me. I am wanting to purchase some NDT. Probably not Armour as too expensive,
1lolabear
in
Thyroid UK
10 months ago
ndt am/pm
Hi, I am starting my ndt with a 1/4 of a grain am and pm on a slow build. I wanted to know if ndt is best taken both morning and afternoon or can I take just morning? Fitting it around an Emory stomach in the afternoon is a bit tricky.
Hi, I am starting my ndt with a 1/4 of a grain am and pm on a slow build. I wanted to know if ndt is best taken both morning and afternoon or can I take just morning? Fitting it around an Emory stomach in the afternoon is a bit tricky.
TheresaGreen1967
in
Thyroid UK
10 months ago
Help getting Thybon Henning in France
I have been trying to get better for nearly a year now. I was on Thyroid s NDT for over seven years and felt very well. All that changed last Sept when the NDT changed and my FT3 dropped from over 6 to 2 I started falling over. When I had a blood test it confirmed it. I have Levo and T3 Cynomel prescribed
I have been trying to get better for nearly a year now. I was on Thyroid s NDT for over seven years and felt very well. All that changed last Sept when the NDT changed and my FT3 dropped from over 6 to 2 I started falling over. When I had a blood test it confirmed it. I have Levo and T3 Cynomel prescribed
Brightness14
in
Thyroid UK
10 months ago
Finishing up my SBRT treatment this week. Now What?
Choose SBRT + 18m
ADT
as treatment. Finishing up SBRT(week of 12/9/22). My questions are: 1. How do we know that the RT was successfully executed/delivered? I understand the timeline and how to monitor the outcome of PSA recurrence.
Choose SBRT + 18m
ADT
as treatment. Finishing up SBRT(week of 12/9/22). My questions are: 1. How do we know that the RT was successfully executed/delivered? I understand the timeline and how to monitor the outcome of PSA recurrence.
SierraSix
in
Advanced Prostate Cancer
2 years ago
Timing of NDT doses
I will be switching from Levothyroxine to NDT in the next few weeks. How do people manage to eat if we need to split the dose into 2 separate times, and leave 2 hours either side of taking an NDT dose, particularly avoiding magnesium, calcium and iron? So for example 9am breakfast followed by supplements
I will be switching from Levothyroxine to NDT in the next few weeks. How do people manage to eat if we need to split the dose into 2 separate times, and leave 2 hours either side of taking an NDT dose, particularly avoiding magnesium, calcium and iron? So for example 9am breakfast followed by supplements
Magpie5
in
Thyroid UK
10 months ago
never loose hope upping NDT!!
bit of back story, I have been on 1 grain of NDT for 3.5 years (with added t4). Every time I upped 1/4 grain I would get hyper symptoms and it would push my t3 over range. So I had no choice but to add levo in (tirosint). T4 seems to make me feel worse and worse the higher I go in doses with extreme
bit of back story, I have been on 1 grain of NDT for 3.5 years (with added t4). Every time I upped 1/4 grain I would get hyper symptoms and it would push my t3 over range. So I had no choice but to add levo in (tirosint). T4 seems to make me feel worse and worse the higher I go in doses with extreme
Ajva
in
Thyroid UK
10 months ago
Long-Term ADT With Radiation
QUOTE: [i]"It seems clear that some patients will benefit from short
ADT
versus no
ADT
, and some from long
ADT
versus short
ADT
," said Gillessen. "So the real question is, how do we better personalize therapy?"
QUOTE: [i]"It seems clear that some patients will benefit from short
ADT
versus no
ADT
, and some from long
ADT
versus short
ADT
," said Gillessen. "So the real question is, how do we better personalize therapy?"
Don_1213
in
Prostate Cancer Network
2 years ago
Workouts and ADT
Lifting is where I need help, Specifically related to
ADT
. I have PSMA test coming in a couple weeks, then
ADT
/Radiation. I lift random.
Lifting is where I need help, Specifically related to
ADT
. I have PSMA test coming in a couple weeks, then
ADT
/Radiation. I lift random.
runtrails
in
Advanced Prostate Cancer
2 years ago
stage 4, PSA .8 and psma shows nothing, what to do now?
Did prostectomy and radiation and
ADT
so far. No treatment currently and PSMA was clear. Was thinking of going overseas to get Lu-177 since not able to in US. Thoughts?
Did prostectomy and radiation and
ADT
so far. No treatment currently and PSMA was clear. Was thinking of going overseas to get Lu-177 since not able to in US. Thoughts?
Jroc1
in
Advanced Prostate Cancer
2 years ago
bed wetting has stopped but now child is highly emotional?
hi, just wondering if anyone here that’s had a child that wets the bed had any emotional problems when they stopped? I certainly didn’t expect that stopping bed wetting would cause us any problems 🤦🏼♀️. So this last wee my 9 year old girl has been dry at night. Great news… but now she’s so emotional
hi, just wondering if anyone here that’s had a child that wets the bed had any emotional problems when they stopped? I certainly didn’t expect that stopping bed wetting would cause us any problems 🤦🏼♀️. So this last wee my 9 year old girl has been dry at night. Great news… but now she’s so emotional
Skyfullofstars1
in
ERIC
9 months ago
Recurrence and Arasec Phase 3
In August his PSA started creeping up from .02 after a 2.5 years
ADT
vacation and remission. He is still hormone sensitive. It tripled in September but still just under 2.0. October came in at 2.1. Yesterdays number is 8.1 At this point, is 8.1 predictive in any sense?
In August his PSA started creeping up from .02 after a 2.5 years
ADT
vacation and remission. He is still hormone sensitive. It tripled in September but still just under 2.0. October came in at 2.1. Yesterdays number is 8.1 At this point, is 8.1 predictive in any sense?
Emmett50
in
Advanced Prostate Cancer
2 years ago
T3 monotherapy people
Just a quick question for those on T3 only out of curiosity - what is your overall dose, your split dose (if any) and how long did it take you to get there? I know it’s different for everyone but would be interesting to see how others work their dosing ☺️ So far gradually up to 65mcg, definitely
Just a quick question for those on T3 only out of curiosity - what is your overall dose, your split dose (if any) and how long did it take you to get there? I know it’s different for everyone but would be interesting to see how others work their dosing ☺️ So far gradually up to 65mcg, definitely
Beau55
in
Thyroid UK
10 months ago
Is it the NDT (Thailand)
Have taken 2.5 grains NDT for many years. Recently started suffering from burning feet pads and tongue swelling late evening. Have noticed that the batch number for the NDT I currently take was hi-lighted for some reason on a facebook page but cannot find the page and reason why. The GP has referred
Have taken 2.5 grains NDT for many years. Recently started suffering from burning feet pads and tongue swelling late evening. Have noticed that the batch number for the NDT I currently take was hi-lighted for some reason on a facebook page but cannot find the page and reason why. The GP has referred
dyfrdwy
in
Thyroid UK
10 months ago
ADT and IBS symptoms worse
My Consultant asked that I also have a one of shot of another
ADT
(in addition to the tablet) immediately prior to start of RT. Since I had the shot ( 4 days ago) my IBS seems worse than ever - it's very bad anyway. Terrible diarrhoea, cramps etc.
My Consultant asked that I also have a one of shot of another
ADT
(in addition to the tablet) immediately prior to start of RT. Since I had the shot ( 4 days ago) my IBS seems worse than ever - it's very bad anyway. Terrible diarrhoea, cramps etc.
Nomojo56
in
Prostate Cancer Network
2 years ago
Is surgery usually the only option?
Hi, I have a history of Endo and possible Adenomyosis - previously had cysts and lesions removed during laparoscopy (not sure if it was ablation or excision - it was over 10 years ago & I was quite uninformed at the time). I am approaching menopause age (no sign yet) - I was hoping this would alleviate
Hi, I have a history of Endo and possible Adenomyosis - previously had cysts and lesions removed during laparoscopy (not sure if it was ablation or excision - it was over 10 years ago & I was quite uninformed at the time). I am approaching menopause age (no sign yet) - I was hoping this would alleviate
Rose244
in
Endometriosis UK
1 year ago
iron test results help please
I must admit that even after a few years, while I mostly understand my thyroid test results, my iron tests continue to confuse me - I just can’t seem to get my head around the significance of the different parts. So I wondered if someone who actually understands could please explain in really simple
I must admit that even after a few years, while I mostly understand my thyroid test results, my iron tests continue to confuse me - I just can’t seem to get my head around the significance of the different parts. So I wondered if someone who actually understands could please explain in really simple
Mazes
in
Thyroid UK
10 months ago
NDT Named Patient basis
Hello everyone. I'm just seeking an update: Is NDT still only prescribed on NHS on a named patient basis? I was listening to the interview of Lynn last year and there was talk this may no longer be required. Am thinking of moving GP surgeries as its barely functioning but don't want to jinx my NHS NDT
Hello everyone. I'm just seeking an update: Is NDT still only prescribed on NHS on a named patient basis? I was listening to the interview of Lynn last year and there was talk this may no longer be required. Am thinking of moving GP surgeries as its barely functioning but don't want to jinx my NHS NDT
waveylines
in
Thyroid UK
10 months ago
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