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Adrenal cortex extract (ACE)
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Living with glaucoma
Hi All I've had glaucoma and Uveitis in both eyes for many years and have had numerous procedures and drains put in both eyes like many other glaucoma patients , I was told yesterday that a cornea transplant is not viable now because of the complications with my eye and that all they can do is monitor
Hi All I've had glaucoma and Uveitis in both eyes for many years and have had numerous procedures and drains put in both eyes like many other glaucoma patients , I was told yesterday that a cornea transplant is not viable now because of the complications with my eye and that all they can do is monitor
LondonStadium
in
Glaucoma UK
1 year ago
1 Year Anniversary (Nov 16)
Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very
Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very
Jayhawker
in
Kidney Dialysis
8 months ago
looking for a neurologist
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
etchea33
in
Restless Legs Syndrome
4 months ago
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Fibromyalgia help! Please
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
sunflower022
in
Fibromyalgia Action UK
10 months ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Kidney Dialysis
8 months ago
From a Gleason 9 to a clean CT scan in 18 mos.
18 mos ago, my husband was told by his dr. that he "most likely had two or three good years left." (WHY do they say stupid things like that?) I think that a lot of people believe whatever the dr. says and subconsciously program themselves accordingly. I, on the other hand, thought to myself, "We'll
18 mos ago, my husband was told by his dr. that he "most likely had two or three good years left." (WHY do they say stupid things like that?) I think that a lot of people believe whatever the dr. says and subconsciously program themselves accordingly. I, on the other hand, thought to myself, "We'll
jtango
in
Advanced Prostate Cancer
8 months ago
Prednisone tapering
I've been tapering off prednisone which initially was 30 mg daily by 1 mg every 3 days on dr's and rheumatologist advice. (Was diagnosed with PMR then changed to fibromyalgia). I was also taking tumeric supplements which i stopped on saturday. As of today I am on 7 mg. My question is: the last 2 days
I've been tapering off prednisone which initially was 30 mg daily by 1 mg every 3 days on dr's and rheumatologist advice. (Was diagnosed with PMR then changed to fibromyalgia). I was also taking tumeric supplements which i stopped on saturday. As of today I am on 7 mg. My question is: the last 2 days
Monkey321
in
PMRGCAuk
10 months ago
Cortisol help
I have consistently had low blood cortisol on pre 9am tests (around 220) and my two saliva tests showed lower than optimal cortisol, especially in a morning. However, a recent cortisol test showed it as 593 serum (101-536). This was a retest from one the previous month, which was around 300, the
I have consistently had low blood cortisol on pre 9am tests (around 220) and my two saliva tests showed lower than optimal cortisol, especially in a morning. However, a recent cortisol test showed it as 593 serum (101-536). This was a retest from one the previous month, which was around 300, the
CornishChick
in
Thyroid UK
1 year ago
Vitamins/supplements for cll?
I found out AFTER I was diagnosed with CLL that low vitamin D is a risk factor for getting CLL. I have had chronically low vitamin D even though I worked outside for half my working life. I was haphazard in supplementing the past 30 years. With recent research, I'm seeing all kinds of supposedly helpful
I found out AFTER I was diagnosed with CLL that low vitamin D is a risk factor for getting CLL. I have had chronically low vitamin D even though I worked outside for half my working life. I was haphazard in supplementing the past 30 years. With recent research, I'm seeing all kinds of supposedly helpful
Vivikaye1
in
CLL Support
9 months ago
CBD Capsules
Can I take this while on the Pred My anxiety is through the roof and this used to help Also are we allowed Tumeric capsules to help with immflamation?
Can I take this while on the Pred My anxiety is through the roof and this used to help Also are we allowed Tumeric capsules to help with immflamation?
Northernnugget
in
PMRGCAuk
11 months ago
My enocrinologist appt today - first in 6 years
I have been having very clear high cortisol problems. My private saliva tests showed this. But my GP was only interested if it was Cushings. I have been on T3 only since 2016, 20mcg prescribed by my original endo and the rest self funded. When the cortisol problem became severe (very high BP and periods
I have been having very clear high cortisol problems. My private saliva tests showed this. But my GP was only interested if it was Cushings. I have been on T3 only since 2016, 20mcg prescribed by my original endo and the rest self funded. When the cortisol problem became severe (very high BP and periods
jezebel69
in
Thyroid UK
1 year ago
Trialling magnesium
Been looking for an answer to RLS since my twenties. At one stage I thought the cause might be beer but managed to eliminate that as the prime suspect, thank goodness. Tried ginko biloba tablets, thought we were doing well but eventually lost faith in that. Over the years it was only intermittent and
Been looking for an answer to RLS since my twenties. At one stage I thought the cause might be beer but managed to eliminate that as the prime suspect, thank goodness. Tried ginko biloba tablets, thought we were doing well but eventually lost faith in that. Over the years it was only intermittent and
50568789
in
Restless Legs Syndrome
11 months ago
Blood tests, Evenity, Forteo etc.
What blood tests do you have taken while you are on Evenity, Forteo etc. and how often? Eg. Calcium, Vitamin D, Renal etc. Thanks
What blood tests do you have taken while you are on Evenity, Forteo etc. and how often? Eg. Calcium, Vitamin D, Renal etc. Thanks
cmoc
in
Bone Health and Osteoporosis UK
1 year ago
Mild aortic stenosis...is this normal?
A heart mumur was picked up when I was at the a&e back in June. Had an echocardiogram done September. Finally after trying to chase the a&e cardiologist who checked the echocardiogram he said my results were all normal. So I requested my results to check for myself as I feel rotten daily and it's says
A heart mumur was picked up when I was at the a&e back in June. Had an echocardiogram done September. Finally after trying to chase the a&e cardiologist who checked the echocardiogram he said my results were all normal. So I requested my results to check for myself as I feel rotten daily and it's says
Charts
in
Hughes Syndrome APS Forum
9 months ago
Opioids can cause adrenal insufficiency
Hi everyone, It appears that opioids can cause adrenal insufficiency. This is something I have not seen mentioned here. Does anyone know about this? Here are a few articles. I think this has relevance to anyone trying to taper through the lower doses of pred if they are taking opioids for pain or any
Hi everyone, It appears that opioids can cause adrenal insufficiency. This is something I have not seen mentioned here. Does anyone know about this? Here are a few articles. I think this has relevance to anyone trying to taper through the lower doses of pred if they are taking opioids for pain or any
sferios
in
PMRGCAuk
9 months ago
Questions
The time has come when I need to make a decision about whether to go with hemo or peritoneal dialysis. That brings up many questions. If on peritoneal dialysis do you ever get a decent nights sleep or are you constantly awakened with alarms pain etc. Is the machine very loud - I have a hard time
The time has come when I need to make a decision about whether to go with hemo or peritoneal dialysis. That brings up many questions. If on peritoneal dialysis do you ever get a decent nights sleep or are you constantly awakened with alarms pain etc. Is the machine very loud - I have a hard time
Oceanviewed
in
Kidney Dialysis
9 months ago
2nd short term Ginkgo trial underway
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
Ray200
in
Tinnitus UK
8 months ago
Adrenal insufficiency or thyroid disease?
Hi All, Recently I was diagnosed with adrenal insufficiency, so I’ve been spending a lot of time canvassing lots of different addisons & adrenal insufficiency forums and communities to get a gauge of what people think of my test results… I’ve made a slightly shocking revelation during this time -
Hi All, Recently I was diagnosed with adrenal insufficiency, so I’ve been spending a lot of time canvassing lots of different addisons & adrenal insufficiency forums and communities to get a gauge of what people think of my test results… I’ve made a slightly shocking revelation during this time -
Hidden
in
Thyroid UK
1 year ago
Cortisol questions
As I've just done my cortisol tests I've been pondering things. 1) How quickly do cortisol levels change? I know they change throughout the day but do they change week to week? Could my cortisol, for example, come back ok this week but if I do it next week the results would be dreadful? 2) if my results
As I've just done my cortisol tests I've been pondering things. 1) How quickly do cortisol levels change? I know they change throughout the day but do they change week to week? Could my cortisol, for example, come back ok this week but if I do it next week the results would be dreadful? 2) if my results
Hidden
in
Thyroid UK
1 year ago
Distribution of medication and supplements throughout the day.
In my efforts to optimise the effect of C/L medication and oral supplements, I would like advice on this, to promote positive drug / supplements interactions if possible and to prevent any negative interactions. For example, I am familiar with the interaction carbidopa <> B6, but what is the best time
In my efforts to optimise the effect of C/L medication and oral supplements, I would like advice on this, to promote positive drug / supplements interactions if possible and to prevent any negative interactions. For example, I am familiar with the interaction carbidopa <> B6, but what is the best time
Esperanto
in
Cure Parkinson's
1 year ago
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