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Forum Updates from 29 February 2024
Hello I would like to share the news with you all that our Charity Forums have recently been rebranded and renamed to reflect the condition to which each Forum provides information and support with. The Health Unlocked Team have assured us that all existing members will be unaffected by these changes
Hello I would like to share the news with you all that our Charity Forums have recently been rebranded and renamed to reflect the condition to which each Forum provides information and support with. The Health Unlocked Team have assured us that all existing members will be unaffected by these changes
TracyAdmin
Partner
in
Atrial Fibrillation Support
4 months ago
Looking for guidance on RLS and Parkinson's Management
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
gardening57
in
Restless Legs Syndrome
1 year ago
Warning Signs Before My Cardiac Arrests
Hi -- after I posted the description of my 4 cardiac arrests, a couple people asked for more details, like what early symptoms or warnings I had. So here goes. In the year before my cardiac arrests in July of 2018 I was awoken 4 times with breathing difficulties. I simply couldn't catch my breath
Hi -- after I posted the description of my 4 cardiac arrests, a couple people asked for more details, like what early symptoms or warnings I had. So here goes. In the year before my cardiac arrests in July of 2018 I was awoken 4 times with breathing difficulties. I simply couldn't catch my breath
goldey
in
AF Association
5 months ago
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Good News
Well I am not sure if you’d call it good news, but it is for me 13th was the FIRST birthday of my new heart so to speak lol that’s what I call it One year ago my EP found a way to save my life. I was unable to walk, and I had had a cardioversion that not only failed, but almost finished me off
Well I am not sure if you’d call it good news, but it is for me 13th was the FIRST birthday of my new heart so to speak lol that’s what I call it One year ago my EP found a way to save my life. I was unable to walk, and I had had a cardioversion that not only failed, but almost finished me off
DawnTX
in
AF Association
5 months ago
who cares for the carer?
Hello lovely people. In July 2023 i found myself needing to go the A and E as i was breathless and my GP sent me there for a chest xray but i ended up calling a ambulance and when they took my HR is was 200 beats a min i was taken straight in to the resuscitation area at the RSCH. I had no chest pains
Hello lovely people. In July 2023 i found myself needing to go the A and E as i was breathless and my GP sent me there for a chest xray but i ended up calling a ambulance and when they took my HR is was 200 beats a min i was taken straight in to the resuscitation area at the RSCH. I had no chest pains
Sindyblue
in
Atrial Fibrillation Support
5 months ago
Caring for mum with severe copd
Been following for a while but this is my first post. Mums a young 76 and had copd for around 15 years, it started deteriorating in 2022 starting with infection after infection and then ending up in hospital for 5 days late July with respiratory failure type 2, with infection they thought, she was put
Been following for a while but this is my first post. Mums a young 76 and had copd for around 15 years, it started deteriorating in 2022 starting with infection after infection and then ending up in hospital for 5 days late July with respiratory failure type 2, with infection they thought, she was put
Oioisaveloy
in
Lung Conditions Community Forum
5 months ago
can heart function improve ?
After my husbands stroke seven months ago he was diagnosed with stage 2 heart failure . I asked the arrhythmia nurse if there was a chance he could have another eco cardiogram to see if this had improved because how do we know how much exercise is safe etc if we don’t know this ? She just sort of stared
After my husbands stroke seven months ago he was diagnosed with stage 2 heart failure . I asked the arrhythmia nurse if there was a chance he could have another eco cardiogram to see if this had improved because how do we know how much exercise is safe etc if we don’t know this ? She just sort of stared
Jackiesmith7777
in
AF Association
5 months ago
sueloo
hi everyone, had AF for 12 years, finally got use to it, stopped worrying and then found I was feeling a lack of strength and energy. ask my GP to check my BNP for heart failure, came back high, that started investigations they said my right ventrical was dilated, talk of pulmonary hypertention not
hi everyone, had AF for 12 years, finally got use to it, stopped worrying and then found I was feeling a lack of strength and energy. ask my GP to check my BNP for heart failure, came back high, that started investigations they said my right ventrical was dilated, talk of pulmonary hypertention not
suebeebee
in
AF Association
5 months ago
Chamberpot
Has anyone had severe breathlessness? I have had heart failure for over a year now, and I had a pacemaker fitted on 16th October last, then a change to my blood pressure tablet from Ramapril to Entresto. After a few weeks I became breathless, and developed atrial fibrillation again, so went back on to
Has anyone had severe breathlessness? I have had heart failure for over a year now, and I had a pacemaker fitted on 16th October last, then a change to my blood pressure tablet from Ramapril to Entresto. After a few weeks I became breathless, and developed atrial fibrillation again, so went back on to
Chamberpot
in
AF Association
5 months ago
Heart Failure diagnosis.
I am an 80 year old female with a history of Atrial Fibrillation. I have had 3 Ablations and am now on rate control drugs which keep me quite comfortable. Recently my breathing became a problem and I am getting generalised weakness . I really do expect this at my grand age but I do like to drive and
I am an 80 year old female with a history of Atrial Fibrillation. I have had 3 Ablations and am now on rate control drugs which keep me quite comfortable. Recently my breathing became a problem and I am getting generalised weakness . I really do expect this at my grand age but I do like to drive and
PhyllisK
in
AF Association
5 months ago
Deleted post with link to AF outcomes
I just wrote a reply to a now deleted post that linked to an external site giving a review of AF and its long-term outcomes. It was from a company called "Medtronic", a maker of medical equipment and other materials. The web page it linked looked like it was a PowerPoint presentation aimed at health
I just wrote a reply to a now deleted post that linked to an external site giving a review of AF and its long-term outcomes. It was from a company called "Medtronic", a maker of medical equipment and other materials. The web page it linked looked like it was a PowerPoint presentation aimed at health
Ppiman
in
Atrial Fibrillation Support
5 months ago
The use of thyroid hormone liothyronine in patients with heart failure - Another Pearce-linked Trial
Fascinating seeing these words in the context of a medical trial: [i]
The use of thyroid hormone liothyronine in patients with heart failure
[/i] [i]Liothyronine (T3) is a safe tablet and has few side effects because it is a synthetic version of triiodothyronine, a naturally occurring hormone
Fascinating seeing these words in the context of a medical trial: [i]
The use of thyroid hormone liothyronine in patients with heart failure
[/i] [i]Liothyronine (T3) is a safe tablet and has few side effects because it is a synthetic version of triiodothyronine, a naturally occurring hormone
helvella
Thyroid UK
in
Thyroid UK
6 months ago
Severe Dilated Cardiomyopathy with heart failure - and now AF - anyone else out there like me?
I have severe dilated cardiomyopathy and heart failure but had been doing well despite the inner chaos. I played tennis 5 times a week, kicked a football with my children, took long walks, and was able to run up the stairs to my flat. After the metapneumovirus triggered AF 6 weeks ago I stopped being
I have severe dilated cardiomyopathy and heart failure but had been doing well despite the inner chaos. I played tennis 5 times a week, kicked a football with my children, took long walks, and was able to run up the stairs to my flat. After the metapneumovirus triggered AF 6 weeks ago I stopped being
Jishuang44
in
AF Association
6 months ago
Palpatations
I attended emergency dept on sunday with palpitations i had all night . But while i was there they stopped . Lots of blood tests but 1 raised a bit ? Heart failure . Ecg showed ectopic beats. Doctor reassured me x said wouldnt change medication bisoprolol 5 mgms twice aday x edoxaban once aday .
I attended emergency dept on sunday with palpitations i had all night . But while i was there they stopped . Lots of blood tests but 1 raised a bit ? Heart failure . Ecg showed ectopic beats. Doctor reassured me x said wouldnt change medication bisoprolol 5 mgms twice aday x edoxaban once aday .
Sawny15
in
AF Association
6 months ago
Why I stopped metoprolol
Quick summary: I’ve had one ablation, for A-fib, August 2022. All was well A-flutter began in August 2023. I’ve had five cardioversions since then, lasting from three weeks to three days. I am now in A-flutter awaiting an ablation on February 6. Success rate statistically is around 95%. Fingers crossed
Quick summary: I’ve had one ablation, for A-fib, August 2022. All was well A-flutter began in August 2023. I’ve had five cardioversions since then, lasting from three weeks to three days. I am now in A-flutter awaiting an ablation on February 6. Success rate statistically is around 95%. Fingers crossed
Sweetmelody
in
Atrial Fibrillation Support
6 months ago
I don't know what to do!!
Here is my situation. I have Atrial Tachycardia/SVT. I had a 14 day Holter that showed a 20% average burden of Supra ventricular Ectopy. I had an 11% burden of SVT. I had, on average, 20-30,000 ectopic beats every day, and 6-700 runs of SVT per day. Most of my episodes occur at night. From 10pm
Here is my situation. I have Atrial Tachycardia/SVT. I had a 14 day Holter that showed a 20% average burden of Supra ventricular Ectopy. I had an 11% burden of SVT. I had, on average, 20-30,000 ectopic beats every day, and 6-700 runs of SVT per day. Most of my episodes occur at night. From 10pm
MeganMN
in
AF Association
6 months ago
Interesting article about Heart Failure and Thyroid Replacement…
Thyroid Replacement Therapy and Heart Failure Anthony Martin Gerdes and Giorgio Iervasi Originally published27 Jul 2010https://doi.org/10.1161/CIRCULATIONAHA.109.917922Circulation. 2010;122:385–393 Heart failure (HF) is a major public health and economic problem in Western countries and is one of
Thyroid Replacement Therapy and Heart Failure Anthony Martin Gerdes and Giorgio Iervasi Originally published27 Jul 2010https://doi.org/10.1161/CIRCULATIONAHA.109.917922Circulation. 2010;122:385–393 Heart failure (HF) is a major public health and economic problem in Western countries and is one of
Batty1
in
Thyroid UK
6 months ago
Heart Failure
Hi 👋 everyoneHappy New Year 🥂 I had a blood test after having chest infection repeatedly. The nurse called me , she said you have heart failure. Surprised they knew through blood. I'm on 3 heart tabs, fluid I'm my lungs is better. I'm not as breathless. Only took them 4 years to realise what is
Hi 👋 everyoneHappy New Year 🥂 I had a blood test after having chest infection repeatedly. The nurse called me , she said you have heart failure. Surprised they knew through blood. I'm on 3 heart tabs, fluid I'm my lungs is better. I'm not as breathless. Only took them 4 years to realise what is
Kristi74
in
Anxiety Support
6 months ago
AF and heart failure
Hi everyone i had some blood tests done just routine but they called me in for an appointment, they said my blood tests were abnormal and that it wasn’t urgent. Anyway have spoken to a doctor today and she said one of the tests is showing heart failure and not to worry and they are booking me in for
Hi everyone i had some blood tests done just routine but they called me in for an appointment, they said my blood tests were abnormal and that it wasn’t urgent. Anyway have spoken to a doctor today and she said one of the tests is showing heart failure and not to worry and they are booking me in for
Gillybean123
in
AF Association
6 months ago
Understanding my GP's message
I am in permanent AF and taking Edoxaban, Bisoporol and Ramipril. Recently, at my GP's request I wore a 24 hour ECG monitor. Looking at the GP's referral for that on the NHS app it seems she suspected heart failure. Have just had a message from the GP which said ' 24hr ECG reported that the rhythm
I am in permanent AF and taking Edoxaban, Bisoporol and Ramipril. Recently, at my GP's request I wore a 24 hour ECG monitor. Looking at the GP's referral for that on the NHS app it seems she suspected heart failure. Have just had a message from the GP which said ' 24hr ECG reported that the rhythm
thinkingaloud
in
Atrial Fibrillation Support
6 months ago
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