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Omeprazole and Ruxolitinib
Hi all I have recently been changing from Hadroxycarbomide to Ruxolitinib. I also take lots of other drugs including 'omeprazole'. The problem I have is that the omeprazole seems to be less and less effective now and my 'acid reflux' is happening more regular. Does anyone have any experience of this
Hi all I have recently been changing from Hadroxycarbomide to Ruxolitinib. I also take lots of other drugs including 'omeprazole'. The problem I have is that the omeprazole seems to be less and less effective now and my 'acid reflux' is happening more regular. Does anyone have any experience of this
dave117
in
MPN Voice
7 years ago
Anyone have MDS too?
Has anyone else been diagnosed with MDS? (Myelodysplastic Syndrome) A side effect of MDS is chrinically extremely low platelets. My dad was diagnosed with MDS (mild) with 3.5% blasts in his bone marrow biopsy. His platelets are 10 now and we will be doing Nplate next, if needed. But that's for ITP and
Has anyone else been diagnosed with MDS? (Myelodysplastic Syndrome) A side effect of MDS is chrinically extremely low platelets. My dad was diagnosed with MDS (mild) with 3.5% blasts in his bone marrow biopsy. His platelets are 10 now and we will be doing Nplate next, if needed. But that's for ITP and
HappyHopeful
in
ITP Support Association
7 years ago
Question on Complete Stem Cell Transplant
Has anyone out there ever had a complete stem cell transplant? I will be going with my sister in law this coming week to Emory Hospital in Atlanta to find out the details. Would like to hear the good and the bad if you or if you know anyone who has had this done. She has CLL but has the P17 deletion
Has anyone out there ever had a complete stem cell transplant? I will be going with my sister in law this coming week to Emory Hospital in Atlanta to find out the details. Would like to hear the good and the bad if you or if you know anyone who has had this done. She has CLL but has the P17 deletion
evetom
in
CLL Support
7 years ago
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Suej1968
I have had ET fourteen years and I was told by my haematologist that as I take my medication my life expectancy will be the same as anyone else. It took a few years to settle my medication but I have never felt ill. I have check ups and blood tests every 6ish weeks and I now have myelofibrosis as well
I have had ET fourteen years and I was told by my haematologist that as I take my medication my life expectancy will be the same as anyone else. It took a few years to settle my medication but I have never felt ill. I have check ups and blood tests every 6ish weeks and I now have myelofibrosis as well
Coradelphine
in
MPN Voice
7 years ago
CLL and Low estrogen treatments
Does anyone have any information about CLL and taking either Black Cohosh or Estrovera for low estrogen? Or any other insights into managing low estrogen and CLL? Thanks.
Does anyone have any information about CLL and taking either Black Cohosh or Estrovera for low estrogen? Or any other insights into managing low estrogen and CLL? Thanks.
cjspolyar
in
CLL Support
7 years ago
Minimal Residual Disease or Cure in MPNs? Rationales and perspectives on Combo Therapy with Interferon-alpha2 and Ruxolitinib
Cutting edge therapy for PV - MF patients who do not respond to Jakafi or Pegasys alone - http://bit.ly/2tBjHVs
Cutting edge therapy for PV - MF patients who do not respond to Jakafi or Pegasys alone - http://bit.ly/2tBjHVs
PVReporter
in
MPN Voice
7 years ago
CLL in stage zero.
Hello, I am new to this group and wanted to introduce myself. I was diagnosed with CLL two years ago and remain in stage zero. I am 57 years old and they found it by chance when I was having stomach problems. My could go up and down a little but not enough for treatment. The only thing that concerns
Hello, I am new to this group and wanted to introduce myself. I was diagnosed with CLL two years ago and remain in stage zero. I am 57 years old and they found it by chance when I was having stomach problems. My could go up and down a little but not enough for treatment. The only thing that concerns
noeagaman
in
CLL Support
7 years ago
Managing IPF
Hello all, I am fairly new here, building up courage to talk about this. Two months in from diagnosis, I have returned to work. I am struggling with perfumes and work around a lot of people. My chest feels fine in the morning but is prickly and sore at the end of the day. Should I think about a different
Hello all, I am fairly new here, building up courage to talk about this. Two months in from diagnosis, I have returned to work. I am struggling with perfumes and work around a lot of people. My chest feels fine in the morning but is prickly and sore at the end of the day. Should I think about a different
Cheekychappie
in
Lung Conditions Community Forum
7 years ago
Unmutated Newbie
Hello, all ~ First off, thanks to everyone for sharing information and personal experiences with CLL! I was diagnosed in March of this year, am stage 0, normal karyotype, just barely over the cutoff between mutated/unmutated. My CLL doc considers me intermediate risk due to being unmutated (and positive
Hello, all ~ First off, thanks to everyone for sharing information and personal experiences with CLL! I was diagnosed in March of this year, am stage 0, normal karyotype, just barely over the cutoff between mutated/unmutated. My CLL doc considers me intermediate risk due to being unmutated (and positive
yazbe
in
CLL Support
7 years ago
Cannabinoids shown to enhance chemotherapy treatment.
I know there are some here who have expressed an interest in this subject so I thought I would share this article that I came across. "New research has confirmed that cannabinoids -- the active chemicals in cannabis -- are effective in killing leukemia cells, particularly when used in combination with
I know there are some here who have expressed an interest in this subject so I thought I would share this article that I came across. "New research has confirmed that cannabinoids -- the active chemicals in cannabis -- are effective in killing leukemia cells, particularly when used in combination with
Redlion
in
CLL Support
7 years ago
Over nine years of blogging since transplant for CLL (chronic lymphocytic leukemia) on July 1, 2008
Hi, What a long strange trip it’s been. I just posted one of my old school blog post about my CLL journey: http://bkoffman.blogspot.com Some of you have been along for most of my almost 12 year CLL/ITP/ HSCT/ clinical trial journey and the last 9+ years of blogging about it, and the last 2 + years of
Hi, What a long strange trip it’s been. I just posted one of my old school blog post about my CLL journey: http://bkoffman.blogspot.com Some of you have been along for most of my almost 12 year CLL/ITP/ HSCT/ clinical trial journey and the last 9+ years of blogging about it, and the last 2 + years of
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
The CLL Tribune is full of articles written by CLL experts and fellow patients.
Hi, Last week we proudly published the latest issue of The CLL Tribune (http://www.cllsociety.org/newsletter/). We're so grateful to the patients and physicians who share their experiences and expertise to enrich our CLL Society community. If you would like to share your story, or have ideas for future
Hi, Last week we proudly published the latest issue of The CLL Tribune (http://www.cllsociety.org/newsletter/). We're so grateful to the patients and physicians who share their experiences and expertise to enrich our CLL Society community. If you would like to share your story, or have ideas for future
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
"New blood cancer study announces 'outstanding' results"
This discusses the results from trials over the last three years, carried out by a group headed by my former consultant: http://www2.le.ac.uk/news/blog/2017-archive/april/outstanding-results-announce-from-new-blood-cancer-study Some funding is from Gilead, as disclosed in this interview: https://medicalresearch.com
This discusses the results from trials over the last three years, carried out by a group headed by my former consultant: http://www2.le.ac.uk/news/blog/2017-archive/april/outstanding-results-announce-from-new-blood-cancer-study Some funding is from Gilead, as disclosed in this interview: https://medicalresearch.com
deveritt
in
CLL Support
7 years ago
Need advice on treatment options for relapsed SLL
I will be going for a follow-up visit with my specialist at UPENN after new blood work to check for mutations and to discuss treatment options. My questions is: Based upon my SLL parameters what drugs other than ibrutinib may be an option? I am a female 63, diagnosed in 2008 with SLL. I was treated
I will be going for a follow-up visit with my specialist at UPENN after new blood work to check for mutations and to discuss treatment options. My questions is: Based upon my SLL parameters what drugs other than ibrutinib may be an option? I am a female 63, diagnosed in 2008 with SLL. I was treated
ReneeSusan
in
CLL Support
7 years ago
All things AML
A general discussion thread about
Acute
Myeloid
Leukaemia
A general discussion thread about
Acute
Myeloid
Leukaemia
NicoleLeukaemiaCare
in
Leukaemia Support
7 years ago
I've just reviewed treatments and am more confused!
The range of medical opinions and videos, combined with and problems reading long posts at the moment (various reasons) are beginning to cause me some degree of anxiety, and adding to my confusion. So I'd like some straight, simple information, if possible. I'm failing to understand this completely despite
The range of medical opinions and videos, combined with and problems reading long posts at the moment (various reasons) are beginning to cause me some degree of anxiety, and adding to my confusion. So I'd like some straight, simple information, if possible. I'm failing to understand this completely despite
deveritt
in
CLL Support
7 years ago
All things ALL
A general discussion post to talk about
Acute
Lymphoblastic
Leukaemia
.
A general discussion post to talk about
Acute
Lymphoblastic
Leukaemia
.
NicoleLeukaemiaCare
in
Leukaemia Support
7 years ago
Ibrutinib failure as a result of progressive CLL or Richter's Transformation
This week I'm posting another interview that took place at ASH 2016 with Dr. Adrian Wiestner from the NIH where we discussed ibrutinib failure as a result of progressive CLL or Richter's Transformation. You can view my summary, and watch the interview here: http://cllsociety.org/2017/06/ibrutinib-failure-prog-cll-rt
This week I'm posting another interview that took place at ASH 2016 with Dr. Adrian Wiestner from the NIH where we discussed ibrutinib failure as a result of progressive CLL or Richter's Transformation. You can view my summary, and watch the interview here: http://cllsociety.org/2017/06/ibrutinib-failure-prog-cll-rt
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Worried...
SO I have had SLE for 7 years and never really any major issues. I was on plaqunil 200 mgs for the whole time and blood work was normal. Then I did labs and within one year the WBC count dropped from 3.5 to 1.5. The doc took me off plaqunil and tested me three times again for 5 months and the WBC increased
SO I have had SLE for 7 years and never really any major issues. I was on plaqunil 200 mgs for the whole time and blood work was normal. Then I did labs and within one year the WBC count dropped from 3.5 to 1.5. The doc took me off plaqunil and tested me three times again for 5 months and the WBC increased
jennyall12
in
LUPUS UK
7 years ago
Monoclonal B-cell lymphocytosis or MBL and a new clinical trial for those resistant to ibrutinib and more
Hi, This week I'm posting an interview that took place at ASH 2016 with Dr. Neil Kay from the Mayo Clinic in Rochester, MN where we discussed monoclonal B-cell lymphocytosis or MBL, which is felt to be a precursor to CLL. You can view my summary, and watch the interview here: http://cllsociety.org/2017
Hi, This week I'm posting an interview that took place at ASH 2016 with Dr. Neil Kay from the Mayo Clinic in Rochester, MN where we discussed monoclonal B-cell lymphocytosis or MBL, which is felt to be a precursor to CLL. You can view my summary, and watch the interview here: http://cllsociety.org/2017
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
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