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Acute leukaemia

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Webinar 3.30pm, Tuesday 6th April - Acute lymphoblastic leukaemia (ALL) treatment update

Please join us for the 3rd in the series of acute leukaemia treatment updates. This webinar will update on how ALL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
Please join us for the 3rd in the series of acute leukaemia treatment updates. This webinar will update on how ALL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
HAIRBEAR_UKAdministrator
in Leukaemia CARE

Webinar 3.30pm, Thursday 11th March - Acute myeloid leukaemia (AML) treatment update

Please join us for our 2nd webinar in the acute leukaemia treatment updates series. This webinar will update on how AML is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
Please join us for our 2nd webinar in the acute leukaemia treatment updates series. This webinar will update on how AML is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
HAIRBEAR_UKAdministrator
in Leukaemia CARE

Webinar 9.30am, Wednesday 3rd March - Acute promyelocytic leukaemia (APL) treatment update

Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
HAIRBEAR_UKAdministrator
in Leukaemia CARE
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Wednesday 13th January 2021 Webinar- Survivorship and late effects of acute leukaemia

Date: Wednesday 13th January 2021 Time: 9:30am Guests: Dr Amit Patel, Consultant Haematologist, Cellular Therapies and Transplantation, The Christie NHS Foundation Trust Dr Steven Knapper, Clinical Senior Lecturer in Haematology and consultant haematologist, University Hospital of Wales. Kate Stallard
Date: Wednesday 13th January 2021 Time: 9:30am Guests: Dr Amit Patel, Consultant Haematologist, Cellular Therapies and Transplantation, The Christie NHS Foundation Trust Dr Steven Knapper, Clinical Senior Lecturer in Haematology and consultant haematologist, University Hospital of Wales. Kate Stallard
HAIRBEAR_UKAdministrator
in Leukaemia CARE

Join us this morning at 11am for the launch or the Acute Myeloid Leukaemia (AML) North of England Virtual Support Group

10th August at 11am – Launch meeting – Hosted by Jessica Turner, Leukaemia Care North-West Regional Coordinator. Our Acute Myeloid Leukaemia (AML) North Virtual Support Group is for anyone who has been diagnosed with AML in the North of England.
10th August at 11am – Launch meeting – Hosted by Jessica Turner, Leukaemia Care North-West Regional Coordinator. Our Acute Myeloid Leukaemia (AML) North Virtual Support Group is for anyone who has been diagnosed with AML in the North of England.
HAIRBEAR_UKAdministrator
in Leukaemia CARE

Webinar - Coronavirus and acute leukaemia

Dr Patel will discuss the potential changes to your care as a result of the coronavirus outbreak as well as providing advice on living with acute leukaemia at this time. Weds 8th April 10.15am Register here https://zoom.us/webinar/register/WN_KeFZJqvmSZ6UEkVptgaaQw
Dr Patel will discuss the potential changes to your care as a result of the coronavirus outbreak as well as providing advice on living with acute leukaemia at this time. Weds 8th April 10.15am Register here https://zoom.us/webinar/register/WN_KeFZJqvmSZ6UEkVptgaaQw
HAIRBEAR_UKAdministrator
in Leukaemia CARE

Videos now available - Webinar talks and Q&A sessions - leukaemia and COVID - 19

These webinars on acute leukaemia and chronic lymphocytic leukaemia (CLL) can now be found on our YouTube > In the videos leading consultants are joined by patients as they discuss and answer questions about how COVID-19 is affecting leukaemia patients.
These webinars on acute leukaemia and chronic lymphocytic leukaemia (CLL) can now be found on our YouTube > In the videos leading consultants are joined by patients as they discuss and answer questions about how COVID-19 is affecting leukaemia patients.
HAIRBEAR_UKAdministrator
in Leukaemia CARE

Join us tomorrow at 4.00pm 5th August for the launch of the AML Virtual Support Group (South UK)

Our friendly virtual support group is open to anybody from the south of the UK that has been affected by a acute myeloid leukaemia diagnosis. This is a great opportunity to meet new people and share in real time your experiences.
Our friendly virtual support group is open to anybody from the south of the UK that has been affected by a acute myeloid leukaemia diagnosis. This is a great opportunity to meet new people and share in real time your experiences.
HAIRBEAR_UKAdministrator
in Leukaemia CARE

WEBINAR - Immunisations and living with the challenges of a compromised immune system – “top tips for staying safe”

University of Birmingham and Queen Elizabeth Hospital, Birmingham Gillian Marshall, Haematology CNS at Queen Elizabeth Hospital, Birmingham Samantha Slaney, acute myeloid leukaemia (AML) patient Nick York, chronic lymphocytic leukaemia (CLL) patient and Patient Advocacy Healthcare Liaison Officer
University of Birmingham and Queen Elizabeth Hospital, Birmingham Gillian Marshall, Haematology CNS at Queen Elizabeth Hospital, Birmingham Samantha Slaney, acute myeloid leukaemia (AML) patient Nick York, chronic lymphocytic leukaemia (CLL) patient and Patient Advocacy Healthcare Liaison Officer
HAIRBEAR_UKAdministrator
in Leukaemia CARE

Reminder 3.30pm Monday WEBINAR - Immunisations and living with the challenges of a compromised immune system – “top tips for staying safe”

University of Birmingham and Queen Elizabeth Hospital, Birmingham Gillian Marshall, Haematology CNS at Queen Elizabeth Hospital, Birmingham Samantha Slaney, acute myeloid leukaemia (AML) patient Nick York, chronic lymphocytic leukaemia (CLL) patient and Patient Advocacy Healthcare Liaison Officer
University of Birmingham and Queen Elizabeth Hospital, Birmingham Gillian Marshall, Haematology CNS at Queen Elizabeth Hospital, Birmingham Samantha Slaney, acute myeloid leukaemia (AML) patient Nick York, chronic lymphocytic leukaemia (CLL) patient and Patient Advocacy Healthcare Liaison Officer
HAIRBEAR_UKAdministrator
in Leukaemia CARE

Video Interview: Acute lymphoblastic leukaemia (ALL) research updates from ASH 2019. How genetic information aids diagnosis and treatment

Whilst there, the team spoke to a number of experts, in these first two videos we hear from Professor Anthony Moorman on how genetic information about the leukaemia cell is used in the diagnosis and treatment of acute leukaemia, along with what research was presented on the topic of genetics and acute
Whilst there, the team spoke to a number of experts, in these first two videos we hear from Professor Anthony Moorman on how genetic information about the leukaemia cell is used in the diagnosis and treatment of acute leukaemia, along with what research was presented on the topic of genetics and acute
HAIRBEAR_UKAdministrator
in Leukaemia CARE

Ppfe

She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?
She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?
Kcn3
in British Lung Foundation

Parp Inhibitors - what are the risks?

syndrome and acute myeloid leukaemia across PARP inhibitor groups was 0·73% (... 21 events out of 4533 patients) and across placebo groups was 0·47% (... three events out of 2774 patients)."
syndrome and acute myeloid leukaemia across PARP inhibitor groups was 0·73% (... 21 events out of 4533 patients) and across placebo groups was 0·47% (... three events out of 2774 patients)."
pjoshea13
in Advanced Prostate Cancer

Acute lymphoblastic leukaemia

Hi is the forum still active for Acute lymphoblastic leukaemia on this site. I can only see CLL posts. Thanks Hayley
Hi is the forum still active for Acute lymphoblastic leukaemia on this site. I can only see CLL posts. Thanks Hayley
Cyprusfan
in Leukaemia CARE

Childhood ALL video update by Dr Sara Ghorashian from the 2019 American Society of Hematology (ASH)

In this video interview Dr Sara Ghorashian describes the remaining challenges in the treatment of childhood acute lymphoblastic leukaemia (ALL), and how these could be addressed. https://youtu.be/o4R9V5OeQoU
In this video interview Dr Sara Ghorashian describes the remaining challenges in the treatment of childhood acute lymphoblastic leukaemia (ALL), and how these could be addressed. https://youtu.be/o4R9V5OeQoU
HAIRBEAR_UKAdministrator
in Leukaemia CARE

Atypical cases of necrotizing sweet syndrome in patients with myelodysplastic syndrome and acute myeloid leukaemia

In approx. 15-20% of SWEET'S SYNDROME patients, their condition can be triggered by CANCER, one of the commonest being myelodyplastic syndromes which can progress to acute myeloid leukaemia.
In approx. 15-20% of SWEET'S SYNDROME patients, their condition can be triggered by CANCER, one of the commonest being myelodyplastic syndromes which can progress to acute myeloid leukaemia.
Shell567Sweet's Syndrome UK
in Sweet's Syndrome UK

Interferon-alpha for treating polycythemia vera yields improved myelofibrosis-free and overall survival

« Interferon-alpha (rIFNα) is the only disease-modifying treatment for polycythemia vera (PV), but whether or not it prolongs survival is unknown. This large single center retrospective study of 470 PV patients compares the myelofibrosis-free survival (MFS) and overall survival (OS) with rIFNα to two
« Interferon-alpha (rIFNα) is the only disease-modifying treatment for polycythemia vera (PV), but whether or not it prolongs survival is unknown. This large single center retrospective study of 470 PV patients compares the myelofibrosis-free survival (MFS) and overall survival (OS) with rIFNα to two
Manouche
in MPN Voice

Sad news

It has taken me some time to write this... but I hope my husband’s journey with MPN is perceived overall a message hope to others. He was diagnosed with PV aged 46 and had a great quality of life for 28 years ,needing only phlebotomy -initially weekly but eventually every six weeks or so . He progressed
It has taken me some time to write this... but I hope my husband’s journey with MPN is perceived overall a message hope to others. He was diagnosed with PV aged 46 and had a great quality of life for 28 years ,needing only phlebotomy -initially weekly but eventually every six weeks or so . He progressed
Joe500
in MPN Voice

Anti inflammatory eating..

Morning.. I am a MF patient, (52 working full time), and for a while have been interested in how nutrition can help me. I can be very good about a varied diet, and then get bored of it, or the perceived effort of planning and doing etc.... However lockdown has made eating well harder, shopping online
Morning.. I am a MF patient, (52 working full time), and for a while have been interested in how nutrition can help me. I can be very good about a varied diet, and then get bored of it, or the perceived effort of planning and doing etc.... However lockdown has made eating well harder, shopping online
Mrs_Average
in MPN Voice

ET OR MYELOFIBROSIS

Hi! I am new to this. You guys Who have ET, did you have any raising levels in LDH? Or anything else other than high platelets? How is the prognosis with prefibrotic myelofibrosis? Do everyone get myelofibrosis? Thank you!
Hi! I am new to this. You guys Who have ET, did you have any raising levels in LDH? Or anything else other than high platelets? How is the prognosis with prefibrotic myelofibrosis? Do everyone get myelofibrosis? Thank you!
Johan2021
in MPN Voice
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