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Explainer: what are blood groups and why do they matter?
With leukaemia, you may need blood transfusions when your bone marrow is no longer working effectively either due to leukaemia crowding your bone marrow or when treatment is temporarily suppressing your bone marrow function. Erica Wood, Associate Professor; Head, Transfusion Research Unit and Lucy Fox
With leukaemia, you may need blood transfusions when your bone marrow is no longer working effectively either due to leukaemia crowding your bone marrow or when treatment is temporarily suppressing your bone marrow function. Erica Wood, Associate Professor; Head, Transfusion Research Unit and Lucy Fox
AussieNeil
Partner
in
CLL Support
7 years ago
The start for me on FCR.
Hi all. Though its about time I posted and said hi after following this wonderful resource for so long. WBC at high 80s, and slow growing lymph nodes but plummeting platelets, crushing fatigue and night sweats. So here I am sitting on a bed having my first cycle of rituximab ( FCR ) . Wish me luck and
Hi all. Though its about time I posted and said hi after following this wonderful resource for so long. WBC at high 80s, and slow growing lymph nodes but plummeting platelets, crushing fatigue and night sweats. So here I am sitting on a bed having my first cycle of rituximab ( FCR ) . Wish me luck and
sandydog
in
CLL Support
7 years ago
Efficacy of lenalidomide in relapsed/refractory chronic lymphocytic leukemia patient: a systematic review and meta-analysis
Given the interest in my recent response to Broadbent about whether our immune system will get better after treatment: https://healthunlocked.com/cllsupport/posts/135106098/ibrutinib , I coincidentally came across this recent paper on Lenalidomide/Revlimid, where unusually for CLL treatment (along with
Given the interest in my recent response to Broadbent about whether our immune system will get better after treatment: https://healthunlocked.com/cllsupport/posts/135106098/ibrutinib , I coincidentally came across this recent paper on Lenalidomide/Revlimid, where unusually for CLL treatment (along with
AussieNeil
Partner
in
CLL Support
7 years ago
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Anyone diagnosed with Appendiceal cancer along with CLL?
Waiting on post-appendectomy pathology report. Pathologist thinks it's cancer, my surgeon doesn't. Just trying to have a plan in place should it prove to be a yes. I currently see Dr. Byrd at Ohio State for my CLL, on watch and wait. Wondering how the CLL would limit my ability to receive the typical
Waiting on post-appendectomy pathology report. Pathologist thinks it's cancer, my surgeon doesn't. Just trying to have a plan in place should it prove to be a yes. I currently see Dr. Byrd at Ohio State for my CLL, on watch and wait. Wondering how the CLL would limit my ability to receive the typical
KHuff
in
CLL Support
7 years ago
Ask the expert Ohio state talk. Slide 46. PFS for treatment naïve patients on imbruvica Vs TN FCR patients.
There were only 31 patience on the imbruvica group in blue. This group had mutated and unmutated patients combined. Two were 17 P deleted as well. Unfortunately one of the 17p patients progressed after 4 months but the other I think has not progressed. A few people came off the trial for other
There were only 31 patience on the imbruvica group in blue. This group had mutated and unmutated patients combined. Two were 17 P deleted as well. Unfortunately one of the 17p patients progressed after 4 months but the other I think has not progressed. A few people came off the trial for other
Hoffy
in
CLL Support
7 years ago
CLL/SLL, what to expect?
I am 82 and on w/w for 4 years. No symptoms that I am aware of. Original diagnosis based on bone marrow "The marrow is involved by CLL/SLL 30% of the overall cellularity. Fish reveals 11q deletion. The marrow is otherwise normocellular (30%) and demonstrates maturing trilineage hematopoiesis. Normal
I am 82 and on w/w for 4 years. No symptoms that I am aware of. Original diagnosis based on bone marrow "The marrow is involved by CLL/SLL 30% of the overall cellularity. Fish reveals 11q deletion. The marrow is otherwise normocellular (30%) and demonstrates maturing trilineage hematopoiesis. Normal
aptucxet
in
CLL Support
7 years ago
Eye and facial problems - CLL or something else?
Sorry for the long post but I am running out of ideas. I am on W and W. I was diagnosed 9 years ago with CLL at the age of 37. Over the last year I have been getting problems with my eyes. One or both eyelids would start itching and the next day I would wake up with one or both swollen and almost closed
Sorry for the long post but I am running out of ideas. I am on W and W. I was diagnosed 9 years ago with CLL at the age of 37. Over the last year I have been getting problems with my eyes. One or both eyelids would start itching and the next day I would wake up with one or both swollen and almost closed
danielC
in
CLL Support
7 years ago
Oxford update
Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away
Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away
TheFlyer
in
CLL Support
7 years ago
Vonn65
Hi I have just been diagnosed with essential thrombocythaemia and am taking hydroxycarbamide a little concerned about side effects .
Hi I have just been diagnosed with essential thrombocythaemia and am taking hydroxycarbamide a little concerned about side effects .
Vonn65
in
MPN Voice
7 years ago
Chemotherapy vs Ibrutinib for CLL Frontline Treatment - Dr Susan O'Brien. 12 to 24% of FCR patients effectively cured 6 years after FCR
Anyone interested in the pros and cons of chemotherapy vs non-chemotherapy treatment should watch this 10 minute video by Dr Susan O’Brien, MD, University of California Irvine Medical Center, where [i]'she discusses frontline treatment options for patients with newly diagnosed chronic lymphocytic leukemia
Anyone interested in the pros and cons of chemotherapy vs non-chemotherapy treatment should watch this 10 minute video by Dr Susan O’Brien, MD, University of California Irvine Medical Center, where [i]'she discusses frontline treatment options for patients with newly diagnosed chronic lymphocytic leukemia
AussieNeil
Partner
in
CLL Support
7 years ago
Ibrutinib / Venetoclax
Hi my fellow CLLr's I need some feed back. I just had my 3 month visit to see my Oncologist at M.D. ANDERSON and I'm very confused on what I should do. Even though my doctor says my numbers look ok and I don't have any symptoms other than small swollen lymph nodes and occasional night sweats he offered
Hi my fellow CLLr's I need some feed back. I just had my 3 month visit to see my Oncologist at M.D. ANDERSON and I'm very confused on what I should do. Even though my doctor says my numbers look ok and I don't have any symptoms other than small swollen lymph nodes and occasional night sweats he offered
BCTexas
in
CLL Support
7 years ago
Essential thrombocythaemia with jak2positive..
I need some help.. my mum has been diagnosed with ET jak2 positive, she is 65. Is there anyone out there that is jak2 positive that could give me some more clues on what survival chances, quality of life might be? A bit confused right now..
I need some help.. my mum has been diagnosed with ET jak2 positive, she is 65. Is there anyone out there that is jak2 positive that could give me some more clues on what survival chances, quality of life might be? A bit confused right now..
Red78
in
MPN Voice
7 years ago
Critical illness claim
Hi all, After notifying my insurers that I had been diagnosed with primary myelofibrosis I was encouraged by them to make a claim under my critical illness cover. They promptly rejected it after seeking a medical report from my consultant. now, three years later, I'm thinking that I should challenge
Hi all, After notifying my insurers that I had been diagnosed with primary myelofibrosis I was encouraged by them to make a claim under my critical illness cover. They promptly rejected it after seeking a medical report from my consultant. now, three years later, I'm thinking that I should challenge
si405mon
in
MPN Voice
7 years ago
Ibrutinib resistance mutations often arise early, suggesting potential as a cue for alternative therapy
[i]Mutations in two genes often occurred months before relapse of chronic lymphocytic leukemia (CLL) treated with ibrutinib (Imbruvica), suggesting potential as a cue for alternative therapy, according to a retrospective review of four clinical trials. Among patients who had CLL relapse, acquired mutations
[i]Mutations in two genes often occurred months before relapse of chronic lymphocytic leukemia (CLL) treated with ibrutinib (Imbruvica), suggesting potential as a cue for alternative therapy, according to a retrospective review of four clinical trials. Among patients who had CLL relapse, acquired mutations
AussieNeil
Partner
in
CLL Support
7 years ago
Help! Slow down the progression of CLL
I could really use some advice. I went for my routine three month checkup yesterday. My numbers have increased and the doctors say this is an indicator of progression in my CLL. He wants to see me next month to repeat labs. My ALC doubled, My lymph nodes have increased in size and my LDH has also increased
I could really use some advice. I went for my routine three month checkup yesterday. My numbers have increased and the doctors say this is an indicator of progression in my CLL. He wants to see me next month to repeat labs. My ALC doubled, My lymph nodes have increased in size and my LDH has also increased
Jemisavs5
in
CLL Support
7 years ago
G6PD and Hypercute Heart T Waves
Since my fall still not been feeling great bone pain and now feeling feverish when i eat. Following MY private DNA test RESULTs indicate am suffering from G6PD a and b. How many know about G6PD and DNA mutations and its HEART manifestations. As picture illustrates guess thats why am at doctors a lot
Since my fall still not been feeling great bone pain and now feeling feverish when i eat. Following MY private DNA test RESULTs indicate am suffering from G6PD a and b. How many know about G6PD and DNA mutations and its HEART manifestations. As picture illustrates guess thats why am at doctors a lot
Hidden
in
Lung Conditions Community Forum
7 years ago
Chemo advised for anaemia follow up
Hi everyone I have had my consultation with a different specialist at the Northern Centre for Cancer Care regarding above. The meeting went well My family and I were given 1.5 hours to discuss and help clarify my clinical position and ongoing consultation needs following the previous 2 meetings with
Hi everyone I have had my consultation with a different specialist at the Northern Centre for Cancer Care regarding above. The meeting went well My family and I were given 1.5 hours to discuss and help clarify my clinical position and ongoing consultation needs following the previous 2 meetings with
annmcgowan
in
CLL Support
7 years ago
RECENTLY RESEARCHED ......EGCG
Being unable to sleep I did some research and came across a paper regarding the above.
It was written by a Karl W Oestreich in June 2010. The trials were taking place at the Mayo Clinic?
EpiGalloCatechin Gallate is a major compound found in green tea. It comes in tablet form and has
Being unable to sleep I did some research and came across a paper regarding the above.
It was written by a Karl W Oestreich in June 2010. The trials were taking place at the Mayo Clinic?
EpiGalloCatechin Gallate is a major compound found in green tea. It comes in tablet form and has
Susiecarer
in
CLL Support
7 years ago
Nutrient Study Trial in US
Hey all my MPN friends... A group of MPN people in Australia recently emailed me the following information in relation to a study that aims to control MPNs through food and diet... (please see the information below) ...the Mayo Clinic's new NUTRIENT Trial, which is a survey to investigate the impact
Hey all my MPN friends... A group of MPN people in Australia recently emailed me the following information in relation to a study that aims to control MPNs through food and diet... (please see the information below) ...the Mayo Clinic's new NUTRIENT Trial, which is a survey to investigate the impact
socrates_8
in
MPN Voice
7 years ago
Advice please!
After 4 years on w and w , my consultant found 1 auxiliary nymph node was definitely enlarged. She was concerned because CLL usually manifests in similar swellings in both nodes, and apparently 1 is not normal. I remain on w and w with my next appointment in 3 months. If it has increased in size she
After 4 years on w and w , my consultant found 1 auxiliary nymph node was definitely enlarged. She was concerned because CLL usually manifests in similar swellings in both nodes, and apparently 1 is not normal. I remain on w and w with my next appointment in 3 months. If it has increased in size she
Drayton1
in
CLL Support
7 years ago
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