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Leukaemia Masterclass ( British Society for Haematology) 28th January 2017 St Marys Hospital in London
Barbara Bain, Imperial College 10.30-11.10
Acute
leukaemia
. Paul Fields, Guy’s and St Thomas’s 11.10-11.30 Tea / coffee 11.30-12.00 Chronic myelogenous leukaemia.
Barbara Bain, Imperial College 10.30-11.10
Acute
leukaemia
. Paul Fields, Guy’s and St Thomas’s 11.10-11.30 Tea / coffee 11.30-12.00 Chronic myelogenous leukaemia.
LCNurse
LeukaemiaCARE Nurse
in
Leukaemia CARE
7 years ago
Just diagnosed on Dec. 9th 2016. Wait & watch stage.
Hi Everyone. My name is Drajan and I am sorry to be dragged into your club but here I am. I am a 49 yo from Ottawa, Canada that was just diagnosed with CLL stage 0. I had None-Hodgkin's Lymphoma 7 years ago and had 8 months of chemo. It was all good until now. However, I am not posting to complain or
Hi Everyone. My name is Drajan and I am sorry to be dragged into your club but here I am. I am a 49 yo from Ottawa, Canada that was just diagnosed with CLL stage 0. I had None-Hodgkin's Lymphoma 7 years ago and had 8 months of chemo. It was all good until now. However, I am not posting to complain or
pesho
in
CLL Support
7 years ago
Pain relief
MY mum had aml and is suffering with painful hands and shoulders sm trying to find some pain releif for her she is not on any medication now onlyba monthly transfusion and is staying with me in Scotland for Christmas
MY mum had aml and is suffering with painful hands and shoulders sm trying to find some pain releif for her she is not on any medication now onlyba monthly transfusion and is staying with me in Scotland for Christmas
Vivsmum
in
Leukaemia CARE
7 years ago
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After Ibrutinib failure, lymphocytes up again. Maybe another trial with Idealisib
Now 8 months since I had to stop the FLAIR trial of Ibrutinib and Rituximab due to side effects (severe and debilitating muscle and joint pain) I have been pretty well with bloods within normal limits. Now, sigh, the lymphocyte count is up again and the concern is how quickly this will increase. It
Now 8 months since I had to stop the FLAIR trial of Ibrutinib and Rituximab due to side effects (severe and debilitating muscle and joint pain) I have been pretty well with bloods within normal limits. Now, sigh, the lymphocyte count is up again and the concern is how quickly this will increase. It
romarin
in
CLL Support
7 years ago
Diagnosed with CLL in August 2016
I was diagnosed with CLL in August with W&W. thank goodness I found this wonderful, informative site. I have learnt so much which makes me far less stressed. My Haematologist said she follows WHO protocol/diagnosis guidelines of over a 5 Lymphocyte count is CLL. Mine was 5.21. I went for my three
I was diagnosed with CLL in August with W&W. thank goodness I found this wonderful, informative site. I have learnt so much which makes me far less stressed. My Haematologist said she follows WHO protocol/diagnosis guidelines of over a 5 Lymphocyte count is CLL. Mine was 5.21. I went for my three
Yelverton
in
CLL Support
7 years ago
Hairy Cell Leukaemia
Hi. My name is Dustina. I was diagnosed with HCL a year ago yesterday (4/12/2015) and had cladribine January this year. Have felt like I was on a conveyor belt and told a number of times if I was to get Leaukemia this was the one to get .... Err no ! Any type is awful to have. Thankfully I'm a strong
Hi. My name is Dustina. I was diagnosed with HCL a year ago yesterday (4/12/2015) and had cladribine January this year. Have felt like I was on a conveyor belt and told a number of times if I was to get Leaukemia this was the one to get .... Err no ! Any type is awful to have. Thankfully I'm a strong
Dustina8
in
Leukaemia CARE
7 years ago
Completed your treatment and don't know what to do next ?
Now that your treatment has ended you can focus on your recovery. Cancer can be life changing so getting back to normal may take some time. To begin with, you may have days when you feel less positive or are still coping with treatment side effects. So try not to expect too much straight away. To begin
Now that your treatment has ended you can focus on your recovery. Cancer can be life changing so getting back to normal may take some time. To begin with, you may have days when you feel less positive or are still coping with treatment side effects. So try not to expect too much straight away. To begin
LCNurse
LeukaemiaCARE Nurse
in
Leukaemia CARE
7 years ago
Hairy cell leukaemia
Hi. My name is Frank and I've just joined this forum. I was diagnosed with HCL and successfully treated with cladribine back in 2003, since when I have pretty much been fine and on no medication at all. However, since June I have been having monthly blood tests and visits to my haematologist. It now
Hi. My name is Frank and I've just joined this forum. I was diagnosed with HCL and successfully treated with cladribine back in 2003, since when I have pretty much been fine and on no medication at all. However, since June I have been having monthly blood tests and visits to my haematologist. It now
frankmok
in
Leukaemia CARE
7 years ago
Diagnosed with CML in 2004
Hi my names is Steven and I was diagnosed with CML in August 2004. I have been on several TKI's and have a very low pcr count of 0.003%. I run the Hammersmith Patient Carer group for Cml and we hold meetings about 4 times a year and is extremely popular with this with CML. I look forward to being in
Hi my names is Steven and I was diagnosed with CML in August 2004. I have been on several TKI's and have a very low pcr count of 0.003%. I run the Hammersmith Patient Carer group for Cml and we hold meetings about 4 times a year and is extremely popular with this with CML. I look forward to being in
Stevenxx
in
Leukaemia CARE
7 years ago
Mom diagnosed with AML - leukaemia, problems with swelled feet and hands
Hello all.. My mom (55 years old) just got diagnosed with leukaemia on Monday and started her chemo on Wednesday. Her feet got swelled first, now hands are getting swelled as well. I would like to ask if anyone had the same problems and what was the reason and if there is anything that can help? Thank
Hello all.. My mom (55 years old) just got diagnosed with leukaemia on Monday and started her chemo on Wednesday. Her feet got swelled first, now hands are getting swelled as well. I would like to ask if anyone had the same problems and what was the reason and if there is anything that can help? Thank
Tanja_M
in
Leukaemia CARE
7 years ago
Disappointing day...
As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after
As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after
jules_c
in
CLL Support
7 years ago
Intro
Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient treatment then and a donor stem cell transplant I'm doing well, being monitored frequently but all's good. I've been writing a blog this year diarying
Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient treatment then and a donor stem cell transplant I'm doing well, being monitored frequently but all's good. I've been writing a blog this year diarying
Christiana_
in
Leukaemia CARE
7 years ago
Advice please!
Hi, I am new and would like to ask a question if possible. I have been feeling very tired of late, more so than usual. I am a type 1 diabetic with fantastic control. I went to the doctor for some bloods and it came back saying that my lymphocyte count was high. 5.41 per 10*9 per litre. Normal range is
Hi, I am new and would like to ask a question if possible. I have been feeling very tired of late, more so than usual. I am a type 1 diabetic with fantastic control. I went to the doctor for some bloods and it came back saying that my lymphocyte count was high. 5.41 per 10*9 per litre. Normal range is
Mangomiss
in
CLL Support
7 years ago
PV or not PV
Hi everyone, So I have my second venusection tomorrow and another one December 5th which will make three in total and I'm really hoping they are going to help with the fatigue i've been suffering with. I had to take a few days of work last week and didn't get out of bed until 1pm and was in bed again
Hi everyone, So I have my second venusection tomorrow and another one December 5th which will make three in total and I'm really hoping they are going to help with the fatigue i've been suffering with. I had to take a few days of work last week and didn't get out of bed until 1pm and was in bed again
James1731
in
MPN Voice
7 years ago
Ibrutinib
I have met with CLL expert and heard that I am the first case he has ever known, of CLL forming brain lymphomas. My CLL, in every other respect is level, requiring no treatment, but only a 'Watch and Wait'. Given these circumstances of no other pathologies,, I am told that my case is more than rare
I have met with CLL expert and heard that I am the first case he has ever known, of CLL forming brain lymphomas. My CLL, in every other respect is level, requiring no treatment, but only a 'Watch and Wait'. Given these circumstances of no other pathologies,, I am told that my case is more than rare
perfecteverytime
in
CLL Support
7 years ago
PAN Foundation has Reopened its CLL (chronic lymphocytic leukemia) Financial Assistance Fund
Friends, It is tough enough to have CLL, but for those of us on Medicare, the cost of some treatments can be prohibitive. Organizations such as LLS and PAN (Patient Access Network) offer help through industry-funded pools of financial aid for those who qualify in the USA. Here is a little early holiday
Friends, It is tough enough to have CLL, but for those of us on Medicare, the cost of some treatments can be prohibitive. Organizations such as LLS and PAN (Patient Access Network) offer help through industry-funded pools of financial aid for those who qualify in the USA. Here is a little early holiday
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
One year from diagnosis/surgery/BR chemo start
We one year ago on Nov 12th..I had a doctor look at me and say "You have a lymphoma". He sent me to another doctor at the Cleveland Clinic. On Black Friday last year...I had my first of 2 surgery's to determine what type of cancer I had. On December 18th, I was diagnosed with CLL and started chemo the
We one year ago on Nov 12th..I had a doctor look at me and say "You have a lymphoma". He sent me to another doctor at the Cleveland Clinic. On Black Friday last year...I had my first of 2 surgery's to determine what type of cancer I had. On December 18th, I was diagnosed with CLL and started chemo the
momof12
in
CLL Support
7 years ago
Myeloprolifative Neoplasms - Has Anyone Else Got One?
Hi 😊 I'm Karen aged 50. I was diagnosed with Essential Thrombocythemia in 2009 its pretty rare so it is difficult to find anyone who has it to chat to 😞 - its great to be part of this group and I look forward to meeting you all x
Hi 😊 I'm Karen aged 50. I was diagnosed with Essential Thrombocythemia in 2009 its pretty rare so it is difficult to find anyone who has it to chat to 😞 - its great to be part of this group and I look forward to meeting you all x
Senoritakazza
in
Leukaemia CARE
7 years ago
ET Sufferer
My first post here, so "Hi" to everyone. I was diagnosed with Essential Thrombocythaemia 6 years ago. I continue to be treated with daily Hydroxycarbamide. I would be interested to share the experiences of others diagnosed with ET.
My first post here, so "Hi" to everyone. I was diagnosed with Essential Thrombocythaemia 6 years ago. I continue to be treated with daily Hydroxycarbamide. I would be interested to share the experiences of others diagnosed with ET.
Buddy167
in
Leukaemia CARE
7 years ago
Early diagnosis of Leukaemia / blood cancers
Please visit our GP training tools for information about early diagnosis of blood cancers. This will help you in your daily work on the haematology ward. http://www.leukaemiacare.org.uk/resources/e-learning-flyer-for-GPs
Please visit our GP training tools for information about early diagnosis of blood cancers. This will help you in your daily work on the haematology ward. http://www.leukaemiacare.org.uk/resources/e-learning-flyer-for-GPs
LCNurse
LeukaemiaCARE Nurse
in
Leukaemia CARE
7 years ago
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