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CMT & Hip Replacement
Eleven days to go to get a new hip, I have Type 1A CMT, 64 years old, overweight, My balance is poor and was wondering if anyone on here has gone through this ? How did you cope, how easy could you manage stairs after, how long did it take to be able to drive again. I know we are all different but some
Eleven days to go to get a new hip, I have Type 1A CMT, 64 years old, overweight, My balance is poor and was wondering if anyone on here has gone through this ? How did you cope, how easy could you manage stairs after, how long did it take to be able to drive again. I know we are all different but some
Hidden
in
Charcot-Marie-Tooth UK
9 years ago
Thoughts on my blood tests
Hi everyone, I have posted recently - I am currently undiagnosed, but due to a doctor who is unsympathetic, I am paying to see a Cons Endo recommended on here in a few weeks. My main issues: severe migratory pain, fatigue, feeling cold, poor memory and lack of ability to co-ordinate my thoughts.
Hi everyone, I have posted recently - I am currently undiagnosed, but due to a doctor who is unsympathetic, I am paying to see a Cons Endo recommended on here in a few weeks. My main issues: severe migratory pain, fatigue, feeling cold, poor memory and lack of ability to co-ordinate my thoughts.
ariel1973
in
Thyroid UK
9 years ago
NDT to be stopped
FOR ANYONE WHO HAS BEEN TOLD BY GP THERE NDT IS TO BE STOPPED __From TPA INFO FOR All _____________________ Your Local Clinical Commissioning Group (CCG) Has your local CCG written to either yourself, or to your GP telling you (or him/her) that they are no longer able to fund the prescription of your
FOR ANYONE WHO HAS BEEN TOLD BY GP THERE NDT IS TO BE STOPPED __From TPA INFO FOR All _____________________ Your Local Clinical Commissioning Group (CCG) Has your local CCG written to either yourself, or to your GP telling you (or him/her) that they are no longer able to fund the prescription of your
Hidden
in
Thyroid UK
9 years ago
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CMT type 2N
Hello, I'm a 45yr old English woman living in Sweden. I found out last spring that I had CMT. It was a chock and reading up on the illness made it even more difficult to deal with. I live here with my 13 yr old son. I have no other family here and the friends I have 'don't do sicknesses,' .........their
Hello, I'm a 45yr old English woman living in Sweden. I found out last spring that I had CMT. It was a chock and reading up on the illness made it even more difficult to deal with. I live here with my 13 yr old son. I have no other family here and the friends I have 'don't do sicknesses,' .........their
Wurzelone
in
Charcot-Marie-Tooth UK
10 years ago
Vitamin D!
Hi I have HNPP and diabetes and now I have had a letter from my GP to go see the nurse regarding my vitamin D levels!! They won't tell me if they are up/down, I have to wait now til Wedensday when I go see the nurse. The thing I would like to ask anyone out there is...... Can HNPP or Diabetes cause any
Hi I have HNPP and diabetes and now I have had a letter from my GP to go see the nurse regarding my vitamin D levels!! They won't tell me if they are up/down, I have to wait now til Wedensday when I go see the nurse. The thing I would like to ask anyone out there is...... Can HNPP or Diabetes cause any
Pam49
in
Charcot-Marie-Tooth UK
10 years ago
A toe-curling problem
I have just reached the stage where my toes have curled under to the extent that my weight is on the ends of some of them, rather than the pads. It can be jolly painful. For many years it has been very difficult to slide my feet into shoes unless the inside is extremely smooth, as the toes catch on
I have just reached the stage where my toes have curled under to the extent that my weight is on the ends of some of them, rather than the pads. It can be jolly painful. For many years it has been very difficult to slide my feet into shoes unless the inside is extremely smooth, as the toes catch on
Amanita
in
Charcot-Marie-Tooth UK
10 years ago
Is it possible to go overactive on levothyroxine?
Hi everyone, I am currently on 100 mg of Levo after routine thyroid bloods 12 weeks ago (still in 1st year of diagnosis) & finding my TSH was up to 14, which is higher than at diagnosis of Hashimotos (have had TPA test so know I have autoimmune thyroiditis or hashis) back in April. Gp upped my dosage
Hi everyone, I am currently on 100 mg of Levo after routine thyroid bloods 12 weeks ago (still in 1st year of diagnosis) & finding my TSH was up to 14, which is higher than at diagnosis of Hashimotos (have had TPA test so know I have autoimmune thyroiditis or hashis) back in April. Gp upped my dosage
minniemuffinmoo
in
Thyroid UK
10 years ago
Please read & action.
Dory AndersonThyroid group UK 5 hrs · The following was posted on another thyroid Facebook page and the poster has given me permission to share it here. Some of you might be very interested in participating in this and I for one find it a very encouraging development: "I hope it is ok for me to
Dory AndersonThyroid group UK 5 hrs · The following was posted on another thyroid Facebook page and the poster has given me permission to share it here. Some of you might be very interested in participating in this and I for one find it a very encouraging development: "I hope it is ok for me to
Hills
in
Thyroid UK
10 years ago
HASHIMOTO’S HELP PLEASE!! Should I increase or decrease my levothyroxine? Or what should I do?!!
I really don’t know what to do and my GP admits to being clueless. I am waiting for an endocrinology appointment but in the meantime would really appreciate some advice. I was diagnosed with Hashimoto’s hypothyroidism and started on Levothyroxine in June 2014. Started on 50mcg, increased every 3 weeks
I really don’t know what to do and my GP admits to being clueless. I am waiting for an endocrinology appointment but in the meantime would really appreciate some advice. I was diagnosed with Hashimoto’s hypothyroidism and started on Levothyroxine in June 2014. Started on 50mcg, increased every 3 weeks
Evo1
in
Thyroid UK
10 years ago
UK Mother In Prison After Taking Daughter To Dr. Hertoghe For Proper Treatment
This is going to hit the news sooner or later so hopefully some of you that are closer to the situation can check all this out and verify what is happening. Lorraine at Scottish Thyroid Petition posted a letter from Dr. Hertoghe asking for letters of support from people who have had problems with the
This is going to hit the news sooner or later so hopefully some of you that are closer to the situation can check all this out and verify what is happening. Lorraine at Scottish Thyroid Petition posted a letter from Dr. Hertoghe asking for letters of support from people who have had problems with the
PR4NOW
in
Thyroid UK
10 years ago
Follow up advice please!
Hi I posted last week in slight despair about possible hypothyroid. I have had a really bad few days with being so exhausted I couldn't get out of bed this morning and had to miss work - I have felt 'heavy' all over and achey and nauseous. I have been back to the dr twice - on Monday they begrudgingly
Hi I posted last week in slight despair about possible hypothyroid. I have had a really bad few days with being so exhausted I couldn't get out of bed this morning and had to miss work - I have felt 'heavy' all over and achey and nauseous. I have been back to the dr twice - on Monday they begrudgingly
Hidden
in
Thyroid UK
10 years ago
Help - I have antibodies for Hashis and Graves -what does it all mean?
Full blood tests done at BH, please help me understand results : TT3 1.7 (1.2-3.2) TT4 107 (58-161) TSH 0.075 (0.270-4.2) FT3 4.6 (3.1-6.8) FT4 18.96 (12-22) RT3 20 (9-35) TSH Recep AntiB 0.4 (0.0-0.4) TPA 97.2 (60-100 equiv) TGAB 71.6 (>280) Vits and minerals all well
Full blood tests done at BH, please help me understand results : TT3 1.7 (1.2-3.2) TT4 107 (58-161) TSH 0.075 (0.270-4.2) FT3 4.6 (3.1-6.8) FT4 18.96 (12-22) RT3 20 (9-35) TSH Recep AntiB 0.4 (0.0-0.4) TPA 97.2 (60-100 equiv) TGAB 71.6 (>280) Vits and minerals all well
Daffers123
in
Thyroid UK
10 years ago
Hi would you all be so kind as to check my results for me please :-) all advice is welcome.
Nov serum tsh below range 0.09 miu/L (0.2 - 4.0) serum free T4 level 15.3pmol? (10.0 - 20.0) thyroid peroxidase antibody level above range >1300iu?ml (<100.0) above high reference range After the November tests I was sent to see an Endo finally, who tested for all the usual, and changed my levothyroxine
Nov serum tsh below range 0.09 miu/L (0.2 - 4.0) serum free T4 level 15.3pmol? (10.0 - 20.0) thyroid peroxidase antibody level above range >1300iu?ml (<100.0) above high reference range After the November tests I was sent to see an Endo finally, who tested for all the usual, and changed my levothyroxine
whispers
in
Thyroid UK
10 years ago
Help with supplements???
Ferritin 41 ng/ml (11 - 307) Folate 4.8 ng/ml (3.1 - 19.9) B12 415 ng/ml (180 - 914) VIT D 42.0 nmol/L no ranges - Insufficiency TPA 730 iu/ml (0.0 - 50.0) TSH 2.69 (0.2 -4.0) cortisol 276nmol/L no ranges Currently taking 50 mcg levo and 10mcg T3 I have been prescribed D3 3000 iud per day All
Ferritin 41 ng/ml (11 - 307) Folate 4.8 ng/ml (3.1 - 19.9) B12 415 ng/ml (180 - 914) VIT D 42.0 nmol/L no ranges - Insufficiency TPA 730 iu/ml (0.0 - 50.0) TSH 2.69 (0.2 -4.0) cortisol 276nmol/L no ranges Currently taking 50 mcg levo and 10mcg T3 I have been prescribed D3 3000 iud per day All
lexilou
in
Thyroid UK
10 years ago
Frannie58
I am new member, 56 year old, have mother and brother who are both hypo. I have been having symptons for a few years but put it down to menopause. I also have Asthma, chronic spontaneous urticaria and idiopathic angioedema! Meaning i have occasional allergic reactions that involve me going to A&E
I am new member, 56 year old, have mother and brother who are both hypo. I have been having symptons for a few years but put it down to menopause. I also have Asthma, chronic spontaneous urticaria and idiopathic angioedema! Meaning i have occasional allergic reactions that involve me going to A&E
Frannie58
in
Thyroid UK
11 years ago
any body on line who can read my results please, is my iron and ferratin in the normal range?
haematology haemoglobin 16.4 g/dl 11.5 15 .5 HCT 0.481 0.33 0.45 Red cell count 5.19 3.95. 5.15 Biochemistry sodium 142 mmol/l 135 . 145 potassium 5.2
haematology haemoglobin 16.4 g/dl 11.5 15 .5 HCT 0.481 0.33 0.45 Red cell count 5.19 3.95. 5.15 Biochemistry sodium 142 mmol/l 135 . 145 potassium 5.2
merissa
in
Thyroid UK
11 years ago
Has anyone found Activated Charcoal helpful? In which case, what dose have you taken and how often?
AfricanSheila
in
IBS Network
11 years ago
WHY WOULD LEVOTHYROXIN BRING DOWN MY TSH BUT RAISE T4
Endo told me going to monitor for time being no meds despite having hashimos. TSH is at 12.70 range 0.35-5.5 Free T4 18 range 10-19.8 TPA antibodies 6,500 I have a normal thyroid receptor antibody. I was on thyroxin for a year and TSH came down slightly but only to 8 so was taken off. No meds for
Endo told me going to monitor for time being no meds despite having hashimos. TSH is at 12.70 range 0.35-5.5 Free T4 18 range 10-19.8 TPA antibodies 6,500 I have a normal thyroid receptor antibody. I was on thyroxin for a year and TSH came down slightly but only to 8 so was taken off. No meds for
Hidden
in
Thyroid UK
11 years ago
is this a type of Charcot-Marie-Tooth disease
hi i.m 49 years old i.m from Syria from 10 years ago my doctor tell me that i have neuropathy disease when he treat me from back pain and diagnose may be chacot-marie-tooth disease symptoms are : 1- I could not stand up on my toes 2- I could not stand up on my heels 3- the first (big) left toe
hi i.m 49 years old i.m from Syria from 10 years ago my doctor tell me that i have neuropathy disease when he treat me from back pain and diagnose may be chacot-marie-tooth disease symptoms are : 1- I could not stand up on my toes 2- I could not stand up on my heels 3- the first (big) left toe
bawadry
in
Charcot-Marie-Tooth UK
11 years ago
Hnpp and cmt
Hi I hope that this is the right place that I have came to. I got my diagnosis yesterday it was very vague and I'm slightly confuse. I was tested for cmt and it has came back PM22 hereditary neuropathy the doctor didn't know what it was so decided to make me "feel better" by entering the hospital letter
Hi I hope that this is the right place that I have came to. I got my diagnosis yesterday it was very vague and I'm slightly confuse. I was tested for cmt and it has came back PM22 hereditary neuropathy the doctor didn't know what it was so decided to make me "feel better" by entering the hospital letter
Ashley_x
in
Charcot-Marie-Tooth UK
11 years ago
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