FOR ANYONE WHO HAS BEEN TOLD BY GP THERE NDT IS TO BE STOPPED
INFO FOR All _____________________
Your Local Clinical Commissioning Group (CCG)
Has your local CCG written to either yourself, or to your GP telling you (or him/her) that they are no longer able to fund the prescription of your Natural Thyroid Extract - or even synthetic T3' We have on-going correspondence on the main thyroid forum regarding this, and we are in the process of collecting information from our members who have now been put into this awful, and frightening situation. Some have had NDT and T3 funded within the NHS for several years and find they are quite unable to function without it. The local CCG's are telling people in their area that they must now ask their GP to prescribe a different medication s/he believes would be suitable.
If you are not sure whether your local CCG will fund NDT if your GP is willing to prescribe it for you, you can find the contact of your local CCG here england.nhs.uk/ccg-details/. This page gives details of clinical commissioning groups (CCGs) that have been authorised to commission healthcare services for their communities. If you have any problems that you are unable to sort out, please see individual websites for contact details.
We are needing as many of you to take part in our new project - in an attempt to get justice for our members and this may involve taking legal action against certain CCG's. If your GP or local CCG has contacted you telling you they will not fund NDT (or T3) for you, please send the details to firstname.lastname@example.org as we are already in correspondence with a firm of lawyers experienced in the field of medical negligence.
Chair – Thyroid Patient Advocacy