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Roactemra
Hi I am taking
actemra
injections number 10 tomorrow.just wondering if any else is taking these and how are they getting on.started on enbrel in february had side effects then onto simponi now
actemra
.
Hi I am taking
actemra
injections number 10 tomorrow.just wondering if any else is taking these and how are they getting on.started on enbrel in february had side effects then onto simponi now
actemra
.
Trace1974
in
NRAS
8 years ago
3rd infusion of Actemra next week (first at full dosage) hoping to hear from anyone with success when increasing dosage. Thank you!
Flaring badly from the inconsistent weather, and just short of a week out from my
Actemra
infusion. This will be my third infusion and first at full strength. My hands, feet, fingers and toes are swollen. My joints feel like someone hit them with a five pound sledge hammer. My skin is on fire.
Flaring badly from the inconsistent weather, and just short of a week out from my
Actemra
infusion. This will be my third infusion and first at full strength. My hands, feet, fingers and toes are swollen. My joints feel like someone hit them with a five pound sledge hammer. My skin is on fire.
Nitrobunny
in
NRAS
8 years ago
Actemra injection
Hi I have taken my 8th injection of
actemra
on thursday .Since last week seem to be having an allergic reaction to something?anyone ever have an allergic reaction to
actemra
?
Hi I have taken my 8th injection of
actemra
on thursday .Since last week seem to be having an allergic reaction to something?anyone ever have an allergic reaction to
actemra
?
Trace1974
in
NRAS
8 years ago
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A baffling virus
I am in
Actemra
monthly infusions for the GCA, and have slowly reduced the prednisone to 4mg. However, I have developed sciatica this past month. My symptoms are severe pain in the coccyx area, lower back , right hip, and right gluteal muscles.
I am in
Actemra
monthly infusions for the GCA, and have slowly reduced the prednisone to 4mg. However, I have developed sciatica this past month. My symptoms are severe pain in the coccyx area, lower back , right hip, and right gluteal muscles.
Joyful13
in
PMRGCAuk
8 years ago
Pain in coccyx and lower back
I am currently on Prednisone 4.5 mg, and
Actemra
monthly infusions for the GCA. The nights are miserable. I have also tried icing, heat, epsom salt baths and swimming. I am even taking some pain med. at night.
I am currently on Prednisone 4.5 mg, and
Actemra
monthly infusions for the GCA. The nights are miserable. I have also tried icing, heat, epsom salt baths and swimming. I am even taking some pain med. at night.
Joyful13
in
PMRGCAuk
8 years ago
Salvation from Pax Labs..
He will not approve
Actemra
until I have another scope. I am at a loss. How long does this continue.? It could be months before a scope is scheduled. What am I to do in the interim. Then when you consider I have responded badly to so many drugs why would this one be any different?
He will not approve
Actemra
until I have another scope. I am at a loss. How long does this continue.? It could be months before a scope is scheduled. What am I to do in the interim. Then when you consider I have responded badly to so many drugs why would this one be any different?
Damaged
in
Arthritis Action
8 years ago
Actemra verses Methotrexate
Had biopsy dec. 2014 Thinking of the IV done at hospital once a month for the
actemra
. Having a lot of stomach issues so worried about the Methotrexate, plus only one working kidney, scares me. Been tryng so hard to wean down, but just not working. Thank you for any info you can give. me.
Had biopsy dec. 2014 Thinking of the IV done at hospital once a month for the
actemra
. Having a lot of stomach issues so worried about the Methotrexate, plus only one working kidney, scares me. Been tryng so hard to wean down, but just not working. Thank you for any info you can give. me.
cassey1879
in
PMRGCAuk
8 years ago
Remission
Reduced preds rapidly & put Me on
Actemra
infusion once monthly 5 months into it I had a flare so we doubled the dose, all went fine then this last March I was in the hospital 2 weeks with Mrsa & Pneumonia then home to recuperate another 2 months went by & I missed My
Actemra
.
Reduced preds rapidly & put Me on
Actemra
infusion once monthly 5 months into it I had a flare so we doubled the dose, all went fine then this last March I was in the hospital 2 weeks with Mrsa & Pneumonia then home to recuperate another 2 months went by & I missed My
Actemra
.
beringer
in
PMRGCAuk
8 years ago
Still sitting on hold!
I refused
Actemra
until they evaluate both Diverticulitis and hypertension. The nurse who administers infusions was quite put out when I refused to schedule infusion lol I hope I mentioned her comment ,"Doctor knows best". If that where true, I would not have gone ten years undiagnosed...
I refused
Actemra
until they evaluate both Diverticulitis and hypertension. The nurse who administers infusions was quite put out when I refused to schedule infusion lol I hope I mentioned her comment ,"Doctor knows best". If that where true, I would not have gone ten years undiagnosed...
Damaged
in
NRAS
8 years ago
Biologics ? When is enough, enough?
The next drug I am considering is
Actemra
. My concern is two fold. One, I have mild diverticulitis and cardiac issues. I have discontinued all pain meds as well. The problem is it is reeking havoc on my BP and heart rate. I also have been off drugs long enough to realize I feel much better.
The next drug I am considering is
Actemra
. My concern is two fold. One, I have mild diverticulitis and cardiac issues. I have discontinued all pain meds as well. The problem is it is reeking havoc on my BP and heart rate. I also have been off drugs long enough to realize I feel much better.
Damaged
in
NRAS
8 years ago
To all Warriors with experience ?
This leaves
Actemra
...If anyone is currently on
Actemra
infusions, let me know how things are going.
This leaves
Actemra
...If anyone is currently on
Actemra
infusions, let me know how things are going.
Damaged
in
NRAS
8 years ago
Simponi
Hi folks, well it's been 2 years since the RoActemra MTX taper trial started but now the inflammation markers are rising again necessitating 6 monthly preds. So I've had advice that Rituximab is the way to go. I didn't like the look of it and after much consultation we agreed the 2nd best option was
Hi folks, well it's been 2 years since the RoActemra MTX taper trial started but now the inflammation markers are rising again necessitating 6 monthly preds. So I've had advice that Rituximab is the way to go. I didn't like the look of it and after much consultation we agreed the 2nd best option was
harryhunt43
in
NRAS
8 years ago
Do u know about this drug - Actemra ?
Actemra
? I have had RA for many years now..... Just switched to this injection. Read up on this but just wanted to know if anyone has or uses this drug ? Let me know....... Bill
Actemra
? I have had RA for many years now..... Just switched to this injection. Read up on this but just wanted to know if anyone has or uses this drug ? Let me know....... Bill
Billlewis
in
Cure Arthritis Community
8 years ago
Cataract surgery on large dose of prednisone
Just not sure what to do will see Eye surgeon Thursday and tomorrow see Rheumy about maybe going on
Actemra
Was advised to get cataract surgery before going on
Actemra
. Still on 34 hoping to go to 33 on Thursday.
Just not sure what to do will see Eye surgeon Thursday and tomorrow see Rheumy about maybe going on
Actemra
Was advised to get cataract surgery before going on
Actemra
. Still on 34 hoping to go to 33 on Thursday.
casse
in
PMRGCAuk
8 years ago
GCA and use of actemra iv
Can anyone tell me that is on at
actemra
how they are making out? Doctor to review it again with me tomorrow. My insurance said they would cover it since it's done at a networking hospital once a month infusion.
Can anyone tell me that is on at
actemra
how they are making out? Doctor to review it again with me tomorrow. My insurance said they would cover it since it's done at a networking hospital once a month infusion.
casse
in
PMRGCAuk
8 years ago
GCA & ANEURYSMS. ..
I've had GCA PMR 3 years now, I was on preds 3 months then on
Actemra
2 yrs 9mos then I got a lung infection & had a 2 week hospital stay & home for 6 weeks before I felt well enough to get out, I called for my
Actemra
n fusion & needed other Drs note of approval first, now 3 mos have gone by, so I saw
I've had GCA PMR 3 years now, I was on preds 3 months then on
Actemra
2 yrs 9mos then I got a lung infection & had a 2 week hospital stay & home for 6 weeks before I felt well enough to get out, I called for my
Actemra
n fusion & needed other Drs note of approval first, now 3 mos have gone by, so I saw
beringer
in
PMRGCAuk
8 years ago
Walking again
I'm now on 5 mg of Prednisone and the
Actemra
for the GCA once a month. I've learned a lot these past few months. There many wonderful people who have supported and cared for me. My husband and a dear friend have been my principal caregivers during this time.
I'm now on 5 mg of Prednisone and the
Actemra
for the GCA once a month. I've learned a lot these past few months. There many wonderful people who have supported and cared for me. My husband and a dear friend have been my principal caregivers during this time.
Joyful13
in
PMRGCAuk
8 years ago
Reduce or not
In addition I was just told I would be funded for
Actemra
. I think it best not to start a new drug with this stressed out situation as well as my own stomach pain. But speaking with people that have been on
Actemra
it seems to be quite helpful in reducing.
In addition I was just told I would be funded for
Actemra
. I think it best not to start a new drug with this stressed out situation as well as my own stomach pain. But speaking with people that have been on
Actemra
it seems to be quite helpful in reducing.
Nap1
in
PMRGCAuk
8 years ago
gca and Actemra
Anyone on
Actemra
monthly infusions and what can you tell me? Started 60 mgs. of pred. back in December of 2014 got down to 15 jan 2015 but since Feb back on 40 and last month 38, Rhumey prefers Methotrexate, but a lot os tomach problems now, and nuero opthomologist prefers
Actemra
.
Anyone on
Actemra
monthly infusions and what can you tell me? Started 60 mgs. of pred. back in December of 2014 got down to 15 jan 2015 but since Feb back on 40 and last month 38, Rhumey prefers Methotrexate, but a lot os tomach problems now, and nuero opthomologist prefers
Actemra
.
cassey1879
in
PMRGCAuk
8 years ago
Fractured ankle
As mentioned before, I am also receiving the
Actemra
IV for the GCA monthly. So, I am reducing the Prednisone because the
Actemra
has been helping, and for healing of the fracture. I will not be able to bear weight on this left leg for 4-6 more weeks. Then I will start intensive physical therapy.
As mentioned before, I am also receiving the
Actemra
IV for the GCA monthly. So, I am reducing the Prednisone because the
Actemra
has been helping, and for healing of the fracture. I will not be able to bear weight on this left leg for 4-6 more weeks. Then I will start intensive physical therapy.
Joyful13
in
PMRGCAuk
8 years ago
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