As i have shared in recent posts, my GCA flared up several months ago. I was put back on Prednisone 40mg, and have restarted the Actemra monthly infusions. I am now on Prednisone 30mg and tapering.
I have also been recently diagnosed with ocular myasthenia travis. This autoimmune disorder is causing my right eyelid to droop, plus blurred and sometime double vision. I am still doing testing regarding the ocular myasthenia gravis.
Then I had an epidural 2 plus weeks ago for severe sciatica. The epidural has helped the sciatica pain. However, I have continued to have horrible muscle spasms and mid back pain which is increasing in intensity. My physical therapist contacted the physician who gave me the epidural about my continuing back pain. That doctor is now ordering a full set of spinal X rays of my spine for "scoliosis." I will be consulting with the doctor after the X rays are done.
I am just overwhelmed and so exhausted. Any hours of sleep is rare. I am trying to keep some perspective about all of these additional problems but finding it rough. Thanks to all of you for reading this and listening to me. I know so many of you continue on this difficult journey., Thank goodness we can support one another.