Anyone else having issues with the Actemra (Tocilizumab) wearing off before the next infusion?
I am finding that my infusions hold for around 3 weeks. Then the pain, stiffness and fatigue set in hard! My bloodwork shows absolutely nothing for inflammation which i am thankful for as my c reactive protein reading were between 119 and 157 for an entire year. Actemra has brought it down to below 0.2mg/l.
Anyhow, my knees, feet and hips have felt like I have hot fireplace pokers stuck in them when i move around for the past week. My next infussion is march 30, and the Infusion of the drug really kicks my butt for 3 days afterword then i get to be pain free for 2 1/2 - 3 weeks.
Is it supposed to wear off? My rheumy does not think so as I am the only patient to report this issue to him.
My background, athlete, was very physically fit before becoming ill, usual heart rate pre illness was 58 at rest then went up to over 100 for almost a year., now it is back to 54-58 and bp at 90/60. I am 43, 190# and fatigued as all get out.
Thank you for reading, if you can recommend something that may bring my energy levels up, please forward them to me.