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Actemra issues
Actemra
has brought it down to below 0.2mg/l. Anyhow, my knees, feet and hips have felt like I have hot fireplace pokers stuck in them when i move around for the past week.
Actemra
has brought it down to below 0.2mg/l. Anyhow, my knees, feet and hips have felt like I have hot fireplace pokers stuck in them when i move around for the past week.
dwsurquhart
in
NRAS
7 years ago
actemra
The FDA also granted priority review designation for
Actemra
/RoActemra for the treatment of GCA. The designation is based on the positive outcome of the Phase III GiACTA study evaluating
Actemra
/RoActemra in people with GCA.
The FDA also granted priority review designation for
Actemra
/RoActemra for the treatment of GCA. The designation is based on the positive outcome of the Phase III GiACTA study evaluating
Actemra
/RoActemra in people with GCA.
mamacline
in
PMRGCAuk
7 years ago
GCA FLARE WITH PLUS NEW AUTOIMMUNE DISORDER
I was put back on Prednisone 40mg, and have restarted the
Actemra
monthly infusions. I am now on Prednisone 30mg and tapering. I have also been recently diagnosed with ocular myasthenia travis. This autoimmune disorder is causing my right eyelid to droop, plus blurred and sometime double vision.
I was put back on Prednisone 40mg, and have restarted the
Actemra
monthly infusions. I am now on Prednisone 30mg and tapering. I have also been recently diagnosed with ocular myasthenia travis. This autoimmune disorder is causing my right eyelid to droop, plus blurred and sometime double vision.
Joyful13
in
PMRGCAuk
7 years ago
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Actemra
Ask this question months ago if anyone is on at
Actemra
now wondering how they are doing. See rheumatologist tomorrow and I Dr are all pushing it. Just can't seem to get off of 40 mg. Seem to spike when I get down to 33 or 32 are symptoms and CRP elevated.
Ask this question months ago if anyone is on at
Actemra
now wondering how they are doing. See rheumatologist tomorrow and I Dr are all pushing it. Just can't seem to get off of 40 mg. Seem to spike when I get down to 33 or 32 are symptoms and CRP elevated.
casse
in
PMRGCAuk
7 years ago
GCA FLAREUP
I have been off the
Actemra
of which I had monthly IV infusions for 10 months. I stopped the
Actemra
in October. During those 10 months, I slowly reduced the Prednisone to 4 mg. Several weeks ago, I began having severe frontal and temporal headaches, along with some painful jaw claudication.
I have been off the
Actemra
of which I had monthly IV infusions for 10 months. I stopped the
Actemra
in October. During those 10 months, I slowly reduced the Prednisone to 4 mg. Several weeks ago, I began having severe frontal and temporal headaches, along with some painful jaw claudication.
Joyful13
in
PMRGCAuk
7 years ago
Will GCA return?
Was on a monthly infusion of
Actemra
, I've been drug free for 8 months now & doing fine. My Husband of 59 years passed away 1 week ago & I've been a total depressed crying lump since. Do You think this could cause everything to return?
Was on a monthly infusion of
Actemra
, I've been drug free for 8 months now & doing fine. My Husband of 59 years passed away 1 week ago & I've been a total depressed crying lump since. Do You think this could cause everything to return?
beringer
in
PMRGCAuk
7 years ago
Increased shoulder, buttocks and thigh pain- PMR relapse?
I was taken off
Actemra
for the GCA in November due to severe GI problems, although we are not sure if they are related. What I have been thinking is Restless Leg Syndrome, could the severe pain with the restless legs be PMR relapse.
I was taken off
Actemra
for the GCA in November due to severe GI problems, although we are not sure if they are related. What I have been thinking is Restless Leg Syndrome, could the severe pain with the restless legs be PMR relapse.
Joyful13
in
PMRGCAuk
7 years ago
Frightening news - White CBC of 22,000 and liver panels elevated - RA, PMR and GCA with an ALL leukemia history
Secondly, if all is good on that front I do not want to have to go off of
Actemra
. It's the only thing that has worked for me in 14 years. My rheumatologist wants to do labs again in two weeks.
Secondly, if all is good on that front I do not want to have to go off of
Actemra
. It's the only thing that has worked for me in 14 years. My rheumatologist wants to do labs again in two weeks.
Nitrobunny
in
NRAS
7 years ago
Worst Pleurisy of my lifetime - Does anyone have any wisdom for getting through this?
I'm also due to have my
Actemra
infusion Tuesday. I don't know how this latest development will play into if they will proceed with the infusion or not. I will call my rheumatologist in the morning to see if I need to cancel the infusion or not.
I'm also due to have my
Actemra
infusion Tuesday. I don't know how this latest development will play into if they will proceed with the infusion or not. I will call my rheumatologist in the morning to see if I need to cancel the infusion or not.
Nitrobunny
in
NRAS
7 years ago
Rituxan
I refused to start
Actemra
, because of Diverticulosis and hypertension. The nurse tried to have me schedule it but I refused. My Rheumy then sent me to an Internist who refused to approve it without repeating the scope. Hence the switch to Rituxan. I review all data on drugs prior to taking them.
I refused to start
Actemra
, because of Diverticulosis and hypertension. The nurse tried to have me schedule it but I refused. My Rheumy then sent me to an Internist who refused to approve it without repeating the scope. Hence the switch to Rituxan. I review all data on drugs prior to taking them.
Damaged
in
Arthritis Action
7 years ago
Roactemra
Hi I am taking
actemra
injections number 10 tomorrow.just wondering if any else is taking these and how are they getting on.started on enbrel in february had side effects then onto simponi now
actemra
.
Hi I am taking
actemra
injections number 10 tomorrow.just wondering if any else is taking these and how are they getting on.started on enbrel in february had side effects then onto simponi now
actemra
.
Trace1974
in
NRAS
7 years ago
3rd infusion of Actemra next week (first at full dosage) hoping to hear from anyone with success when increasing dosage. Thank you!
Flaring badly from the inconsistent weather, and just short of a week out from my
Actemra
infusion. This will be my third infusion and first at full strength. My hands, feet, fingers and toes are swollen. My joints feel like someone hit them with a five pound sledge hammer. My skin is on fire.
Flaring badly from the inconsistent weather, and just short of a week out from my
Actemra
infusion. This will be my third infusion and first at full strength. My hands, feet, fingers and toes are swollen. My joints feel like someone hit them with a five pound sledge hammer. My skin is on fire.
Nitrobunny
in
NRAS
7 years ago
Actemra injection
Hi I have taken my 8th injection of
actemra
on thursday .Since last week seem to be having an allergic reaction to something?anyone ever have an allergic reaction to
actemra
?
Hi I have taken my 8th injection of
actemra
on thursday .Since last week seem to be having an allergic reaction to something?anyone ever have an allergic reaction to
actemra
?
Trace1974
in
NRAS
8 years ago
A baffling virus
I am in
Actemra
monthly infusions for the GCA, and have slowly reduced the prednisone to 4mg. However, I have developed sciatica this past month. My symptoms are severe pain in the coccyx area, lower back , right hip, and right gluteal muscles.
I am in
Actemra
monthly infusions for the GCA, and have slowly reduced the prednisone to 4mg. However, I have developed sciatica this past month. My symptoms are severe pain in the coccyx area, lower back , right hip, and right gluteal muscles.
Joyful13
in
PMRGCAuk
7 years ago
Pain in coccyx and lower back
I am currently on Prednisone 4.5 mg, and
Actemra
monthly infusions for the GCA. The nights are miserable. I have also tried icing, heat, epsom salt baths and swimming. I am even taking some pain med. at night.
I am currently on Prednisone 4.5 mg, and
Actemra
monthly infusions for the GCA. The nights are miserable. I have also tried icing, heat, epsom salt baths and swimming. I am even taking some pain med. at night.
Joyful13
in
PMRGCAuk
8 years ago
Salvation from Pax Labs..
He will not approve
Actemra
until I have another scope. I am at a loss. How long does this continue.? It could be months before a scope is scheduled. What am I to do in the interim. Then when you consider I have responded badly to so many drugs why would this one be any different?
He will not approve
Actemra
until I have another scope. I am at a loss. How long does this continue.? It could be months before a scope is scheduled. What am I to do in the interim. Then when you consider I have responded badly to so many drugs why would this one be any different?
Damaged
in
Arthritis Action
8 years ago
Actemra verses Methotrexate
Had biopsy dec. 2014 Thinking of the IV done at hospital once a month for the
actemra
. Having a lot of stomach issues so worried about the Methotrexate, plus only one working kidney, scares me. Been tryng so hard to wean down, but just not working. Thank you for any info you can give. me.
Had biopsy dec. 2014 Thinking of the IV done at hospital once a month for the
actemra
. Having a lot of stomach issues so worried about the Methotrexate, plus only one working kidney, scares me. Been tryng so hard to wean down, but just not working. Thank you for any info you can give. me.
cassey1879
in
PMRGCAuk
8 years ago
Remission
Reduced preds rapidly & put Me on
Actemra
infusion once monthly 5 months into it I had a flare so we doubled the dose, all went fine then this last March I was in the hospital 2 weeks with Mrsa & Pneumonia then home to recuperate another 2 months went by & I missed My
Actemra
.
Reduced preds rapidly & put Me on
Actemra
infusion once monthly 5 months into it I had a flare so we doubled the dose, all went fine then this last March I was in the hospital 2 weeks with Mrsa & Pneumonia then home to recuperate another 2 months went by & I missed My
Actemra
.
beringer
in
PMRGCAuk
8 years ago
Still sitting on hold!
I refused
Actemra
until they evaluate both Diverticulitis and hypertension. The nurse who administers infusions was quite put out when I refused to schedule infusion lol I hope I mentioned her comment ,"Doctor knows best". If that where true, I would not have gone ten years undiagnosed...
I refused
Actemra
until they evaluate both Diverticulitis and hypertension. The nurse who administers infusions was quite put out when I refused to schedule infusion lol I hope I mentioned her comment ,"Doctor knows best". If that where true, I would not have gone ten years undiagnosed...
Damaged
in
NRAS
8 years ago
Biologics ? When is enough, enough?
The next drug I am considering is
Actemra
. My concern is two fold. One, I have mild diverticulitis and cardiac issues. I have discontinued all pain meds as well. The problem is it is reeking havoc on my BP and heart rate. I also have been off drugs long enough to realize I feel much better.
The next drug I am considering is
Actemra
. My concern is two fold. One, I have mild diverticulitis and cardiac issues. I have discontinued all pain meds as well. The problem is it is reeking havoc on my BP and heart rate. I also have been off drugs long enough to realize I feel much better.
Damaged
in
NRAS
8 years ago
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