Well I have not treated RA since June 27. Since no RA meds did a cleanse. I have been drug free for nearly three months. I am in an obscene level of pain. I have recently started heart meds back. My BP was far to volatile.
Despite the pain, I must admit I feel much better. The side effects are just to extreme. I see an internists on the 4th of October. I refused Actemra until they evaluate both Diverticulitis and hypertension. The nurse who administers infusions was quite put out when I refused to schedule infusion lol I hope I mentioned her comment ,"Doctor knows best". If that where true, I would not have gone ten years undiagnosed...
My Rheumy, is awesome. She called to schedule internists prior to proceeding. She also ha let me direct which drugs I am willing to consider given pharmacogenetics.
I have been stalling. I am finding it difficult to talk myself into starting again. I still do not sleep more than an hour at a time. I feel like a zombie most of the time.
I take great comfort in reading posts on this site. I do feel terrible for those who are seronegative. Dealing with insurance companies and doctors can be so frustrating. I now go armed with all my blood work via my e health. No more negotiating. They just do what you ask, it is so much easier.
Tonight I am tortured by fear of the unknown. How do you plan when it is impossible to predict from one day to the next if you can function? I am so afraid to start anything or schedule even casual activities. It is so very frustrating. but I know I will find a way to reinvent myself once again...stay tuned warriors and hang tuff