Experiences with

Acromegaly

The woman 2 at home had Acromegaly and signposted woman 1 to seek help. She brought it up to GP and now after appropriate treatment is feeling great, Everything woman 1 described , resonates with myself and is a really common description of peoples experiences on here. Curious,

I think GPs and consultants are primed to see the facial features in order to think of the possibility of acromegaly as a diagnosis.

(0.27-4.2mm/L) t4-16.8 (12-22pmol/L) 40% through range t3-3.7 (3.1-6.8 pmol/L) 16.2 % through range these are my blood test results from a few weeks ago by monitor my health.As slowdragon said in my first post,t3 is quite low,I was wondering what would cause this,a few years ago I was tested for acromegaly

Buffalo Hump, symptoms of Cushings and acromegaly. Neck also swollen. Blood work normal at current time but previously diagnosed with Graves

Suspect a somatotrophin, growth hormone secreting tumour causing acromegaly. Private genetic testing done 2021 confirms I do not have Marfans Syndrome, which is similar to acromegaly.

I have the condition Acromegaly where my body produces too much growth hormone. I had a macroadenoma pituitary tumour, most of which was removed in 2010 but a few cells remained and i then had stereostatic radiosurgery to eradicate the cells.

His blood results were showing high prolactin and a suspicion of acromegaly. The plan has been changed to dual medication: Cabergoline tablets and monthly Stomastatin injections, both .with many side effects. To review after 6 months then if no shrinkage then radiography.

Ig1f was raised 2 years ago .Still under investigation.. had pituitary mri...had..... gh suppression test aswell and acromegaly and all the other hormones checked.. Only thing was out was ig1f at the time So they are now re checking again as I its been 2 years So got more tests to come.

what does the high IGF1 mean if it is not acromegaly?

The 3rd time she requested a fasting blood test to test IFG1 to rule out acromegaly and it came back within range. She tested it 6 months later and its high again. My calcium is also high this time as well as cholesterol and HDL cholesterol.

I would like to know if there other women who have the condition called familial acromegaly. I inherited that condition from my father and it never bothered him that he had large facial bones.

,sat there in front of him I look too healthy,if I had had it for the last five years I would look dreadful.I replied that not everyone presents with the enlarged extremities and he said every one with acromegaly does actually!

sentence,this got me thinking about a DEXA scan I had as part of a well woman check I had in my 50th year.The results came back that my bones are a third larger than they should be so I was sent for another one to double check(same result came back)and then to a specialist to check to see if I had acromegaly

Family history of Hashimoto’s, underactive thyroid, Cushing’s disease and Acromegaly. Wanting to choose the right specialist on my work’s list. Can anyone message me directly about these specialists and their experiences? Any general advice most welcome.

Hashimoto’s, acromegaly, Cushing’s disease, endometriosis. I definitely feel better when I don’t eat bread, pasta and potatoes. Sugary things can make me feel bad, in particular jelly sweets and ice cream (no idea why!).

It's used to treat acromegaly. A hormone overgrowth which causes large bones. Now, I know I have big feet but come on - that's a bit cheeky. So, I asked the doc when she visited - the loo handle one with the rubbish English - and she looked quite shocked that I had bothered to look it up.

I've read that mildly high IGF1 can be linked to diabetes or hypothyroidism, interested in ruling out possible acromegaly. I would greatly appreciate any input. He is a smart young man but I am worried about his health.

Unlike height variation across the normal range, acromegaly is abnormal growth due to the pituitary gland secreting unusually high amounts of growth hormone [GH] [2]. "A nationwide cohort study (1978-2010) including 529 acromegaly cases was performed."

[/i] [i]SUMMARY:[/i] [i]Endocrinopathies known to cause myopathy include thyroid and parathyroid diseases, disorders of the adrenal axis such as Cushing syndrome, and acromegaly.

My brother has Acromegaly for more than 20 years now. His wife Ekaterina runs Velikan, the Russian pituitary patient organization. And I participate in global pituitary patient activities.