Experiences with

Acromegaly

Decreases in TBg[/i] [i]concentrations are observed in nephrosis, acromegaly, and after androgen or corticosteroid[/i] [i]therapy. Familial hyper- or hypo-thyroxine-binding-globulinemias have been described. The[/i] [i]incidence of TBg deficiency approximates 1 in 9000.

have long term symptoms of.my GP refuses to make any diagnoses because he -even though a year ago -he agreed that I had symptoms of these conditions and that they can be sero-negative-said blood tests are " normal" I cannot make a diagnosis based on your symptoms"(symptoms which are Lupus.Pagets and Acromegaly

I have Pagets Disease of the Bone,Acromegaly,Lupus,Fibromyalgia and Osteoarthritis in both hands.

[i] I have been diagnosed with Raynauds,disease,Fibromyalgia,Osteoarthritis,Costochondritis,oesophegeal dysmotility,Dysphagia,Gastritis,duodenitis,diverticulitis,Lupus and have symptoms of Acromegaly,Pagets Disease of the Bone,and what I suspect is Lymphoma.I recenly had a "memory block" when leaving

For instance, in cases of Pituitary removal for patients with Acromegaly, hormones were still found in the blood, leading to the conclusion that they were produced by the PP. Another study suggested that the PP plays a compensatory role when the Pituitary is underperforming or malfunctioning.

I think GPs and consultants are primed to see the facial features in order to think of the possibility of acromegaly as a diagnosis.

(0.27-4.2mm/L) t4-16.8 (12-22pmol/L) 40% through range t3-3.7 (3.1-6.8 pmol/L) 16.2 % through range these are my blood test results from a few weeks ago by monitor my health.As slowdragon said in my first post,t3 is quite low,I was wondering what would cause this,a few years ago I was tested for acromegaly

The woman 2 at home had Acromegaly and signposted woman 1 to seek help. She brought it up to GP and now after appropriate treatment is feeling great, Everything woman 1 described , resonates with myself and is a really common description of peoples experiences on here. Curious,

Suspect a somatotrophin, growth hormone secreting tumour causing acromegaly. Private genetic testing done 2021 confirms I do not have Marfans Syndrome, which is similar to acromegaly.

I have the condition Acromegaly where my body produces too much growth hormone. I had a macroadenoma pituitary tumour, most of which was removed in 2010 but a few cells remained and i then had stereostatic radiosurgery to eradicate the cells.

Buffalo Hump, symptoms of Cushings and acromegaly. Neck also swollen. Blood work normal at current time but previously diagnosed with Graves

His blood results were showing high prolactin and a suspicion of acromegaly. The plan has been changed to dual medication: Cabergoline tablets and monthly Stomastatin injections, both .with many side effects. To review after 6 months then if no shrinkage then radiography.

Ig1f was raised 2 years ago .Still under investigation.. had pituitary mri...had..... gh suppression test aswell and acromegaly and all the other hormones checked.. Only thing was out was ig1f at the time So they are now re checking again as I its been 2 years So got more tests to come.

The 3rd time she requested a fasting blood test to test IFG1 to rule out acromegaly and it came back within range. She tested it 6 months later and its high again. My calcium is also high this time as well as cholesterol and HDL cholesterol.

what does the high IGF1 mean if it is not acromegaly?

I would like to know if there other women who have the condition called familial acromegaly. I inherited that condition from my father and it never bothered him that he had large facial bones.

,sat there in front of him I look too healthy,if I had had it for the last five years I would look dreadful.I replied that not everyone presents with the enlarged extremities and he said every one with acromegaly does actually!

sentence,this got me thinking about a DEXA scan I had as part of a well woman check I had in my 50th year.The results came back that my bones are a third larger than they should be so I was sent for another one to double check(same result came back)and then to a specialist to check to see if I had acromegaly

Family history of Hashimoto’s, underactive thyroid, Cushing’s disease and Acromegaly. Wanting to choose the right specialist on my work’s list. Can anyone message me directly about these specialists and their experiences? Any general advice most welcome.

Hashimoto’s, acromegaly, Cushing’s disease, endometriosis. I definitely feel better when I don’t eat bread, pasta and potatoes. Sugary things can make me feel bad, in particular jelly sweets and ice cream (no idea why!).