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Acromegaly

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Acromegaly

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Acromegaly ? anyone here affected.

The woman 2 at home had Acromegaly and signposted woman 1 to seek help. She brought it up to GP and now after appropriate treatment is feeling great, Everything woman 1 described , resonates with myself and is a really common description of peoples experiences on here. Curious,
The woman 2 at home had Acromegaly and signposted woman 1 to seek help. She brought it up to GP and now after appropriate treatment is feeling great, Everything woman 1 described , resonates with myself and is a really common description of peoples experiences on here. Curious,
Polo22 profile image
Polo22
in Pernicious Anaemia Society
2 months ago

I have a diagnosis and it's not hashimotos, it's acromegaly

I think GPs and consultants are primed to see the facial features in order to think of the possibility of acromegaly as a diagnosis.
I think GPs and consultants are primed to see the facial features in order to think of the possibility of acromegaly as a diagnosis.
Souzy profile image
Souzy
in Thyroid UK
1 month ago

ultrasound on neck

(0.27-4.2mm/L) t4-16.8 (12-22pmol/L) 40% through range t3-3.7 (3.1-6.8 pmol/L) 16.2 % through range these are my blood test results from a few weeks ago by monitor my health.As slowdragon said in my first post,t3 is quite low,I was wondering what would cause this,a few years ago I was tested for acromegaly
(0.27-4.2mm/L) t4-16.8 (12-22pmol/L) 40% through range t3-3.7 (3.1-6.8 pmol/L) 16.2 % through range these are my blood test results from a few weeks ago by monitor my health.As slowdragon said in my first post,t3 is quite low,I was wondering what would cause this,a few years ago I was tested for acromegaly
flosslechops profile image
flosslechops
in Thyroid UK
26 days ago
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Has anyone out there had Graves’ disease, left untreated and now have Cushings and acromegaly symptoms?

Buffalo Hump, symptoms of Cushings and acromegaly. Neck also swollen. Blood work normal at current time but previously diagnosed with Graves
Buffalo Hump, symptoms of Cushings and acromegaly. Neck also swollen. Blood work normal at current time but previously diagnosed with Graves
LolaEnglishBulldog profile image
LolaEnglishBulldog
in Thyroid UK
1 year ago

Thyroid Results dating 1988 onwards. Comments welcome.

Suspect a somatotrophin, growth hormone secreting tumour causing acromegaly. Private genetic testing done 2021 confirms I do not have Marfans Syndrome, which is similar to acromegaly.
Suspect a somatotrophin, growth hormone secreting tumour causing acromegaly. Private genetic testing done 2021 confirms I do not have Marfans Syndrome, which is similar to acromegaly.
Wua13262348 profile image
Wua13262348
in Thyroid UK
11 months ago

Advice regarding results please

I have the condition Acromegaly where my body produces too much growth hormone. I had a macroadenoma pituitary tumour, most of which was removed in 2010 but a few cells remained and i then had stereostatic radiosurgery to eradicate the cells.
I have the condition Acromegaly where my body produces too much growth hormone. I had a macroadenoma pituitary tumour, most of which was removed in 2010 but a few cells remained and i then had stereostatic radiosurgery to eradicate the cells.
Hammy1955 profile image
Hammy1955
in Thyroid UK
1 year ago

My husband’s surgery was cancelled several times only to find that a wrong diagnosis has made his prognosis much worse.

His blood results were showing high prolactin and a suspicion of acromegaly. The plan has been changed to dual medication: Cabergoline tablets and monthly Stomastatin injections, both .with many side effects. To review after 6 months then if no shrinkage then radiography.
His blood results were showing high prolactin and a suspicion of acromegaly. The plan has been changed to dual medication: Cabergoline tablets and monthly Stomastatin injections, both .with many side effects. To review after 6 months then if no shrinkage then radiography.
Ashers12 profile image
Ashers12
in The Brain Tumour Charity
1 year ago

Rash Reaction to levo

Ig1f was raised 2 years ago .Still under investigation.. had pituitary mri...had..... gh suppression test aswell and acromegaly and all the other hormones checked.. Only thing was out was ig1f at the time So they are now re checking again as I its been 2 years So got more tests to come.
Ig1f was raised 2 years ago .Still under investigation.. had pituitary mri...had..... gh suppression test aswell and acromegaly and all the other hormones checked.. Only thing was out was ig1f at the time So they are now re checking again as I its been 2 years So got more tests to come.
Spotydave profile image
Spotydave
in Thyroid UK
2 years ago

High IGF-1 Anyone ?

what does the high IGF1 mean if it is not acromegaly?
what does the high IGF1 mean if it is not acromegaly?
MrsClanger profile image
MrsClanger
in Thyroid UK
2 years ago

IGF1 results

The 3rd time she requested a fasting blood test to test IFG1 to rule out acromegaly and it came back within range. She tested it 6 months later and its high again. My calcium is also high this time as well as cholesterol and HDL cholesterol.
The 3rd time she requested a fasting blood test to test IFG1 to rule out acromegaly and it came back within range. She tested it 6 months later and its high again. My calcium is also high this time as well as cholesterol and HDL cholesterol.
Annieza profile image
Annieza
in Thyroid UK
2 years ago

Acromegaly

I would like to know if there other women who have the condition called familial acromegaly. I inherited that condition from my father and it never bothered him that he had large facial bones.
I would like to know if there other women who have the condition called familial acromegaly. I inherited that condition from my father and it never bothered him that he had large facial bones.
Dressmaker100 profile image
Dressmaker100
in Changing Faces
3 years ago

acromegaly update-the great fob off continues

,sat there in front of him I look too healthy,if I had had it for the last five years I would look dreadful.I replied that not everyone presents with the enlarged extremities and he said every one with acromegaly does actually!
,sat there in front of him I look too healthy,if I had had it for the last five years I would look dreadful.I replied that not everyone presents with the enlarged extremities and he said every one with acromegaly does actually!
flosslechops profile image
flosslechops
in Pernicious Anaemia Society
4 years ago

big bones

sentence,this got me thinking about a DEXA scan I had as part of a well woman check I had in my 50th year.The results came back that my bones are a third larger than they should be so I was sent for another one to double check(same result came back)and then to a specialist to check to see if I had acromegaly
sentence,this got me thinking about a DEXA scan I had as part of a well woman check I had in my 50th year.The results came back that my bones are a third larger than they should be so I was sent for another one to double check(same result came back)and then to a specialist to check to see if I had acromegaly
flosslechops profile image
flosslechops
in Pernicious Anaemia Society
4 years ago

Choosing an endocrinologist

Family history of Hashimoto’s, underactive thyroid, Cushing’s disease and Acromegaly. Wanting to choose the right specialist on my work’s list. Can anyone message me directly about these specialists and their experiences? Any general advice most welcome.
Family history of Hashimoto’s, underactive thyroid, Cushing’s disease and Acromegaly. Wanting to choose the right specialist on my work’s list. Can anyone message me directly about these specialists and their experiences? Any general advice most welcome.
Yppah profile image
Yppah
in Thyroid UK
4 years ago

Blood test results (probably Hashimoto’s)

Hashimoto’s, acromegaly, Cushing’s disease, endometriosis. I definitely feel better when I don’t eat bread, pasta and potatoes. Sugary things can make me feel bad, in particular jelly sweets and ice cream (no idea why!).
Hashimoto’s, acromegaly, Cushing’s disease, endometriosis. I definitely feel better when I don’t eat bread, pasta and potatoes. Sugary things can make me feel bad, in particular jelly sweets and ice cream (no idea why!).
Yppah profile image
Yppah
in Thyroid UK
4 years ago

Holby Sh*tty - Epilogue

It's used to treat acromegaly. A hormone overgrowth which causes large bones. Now, I know I have big feet but come on - that's a bit cheeky. So, I asked the doc when she visited - the loo handle one with the rubbish English - and she looked quite shocked that I had bothered to look it up.
It's used to treat acromegaly. A hormone overgrowth which causes large bones. Now, I know I have big feet but come on - that's a bit cheeky. So, I asked the doc when she visited - the loo handle one with the rubbish English - and she looked quite shocked that I had bothered to look it up.
Kryssy profile image
Kryssy
in My Ovacome
5 years ago

Advice on Brother - Endocrinology Related

I've read that mildly high IGF1 can be linked to diabetes or hypothyroidism, interested in ruling out possible acromegaly. I would greatly appreciate any input. He is a smart young man but I am worried about his health.
I've read that mildly high IGF1 can be linked to diabetes or hypothyroidism, interested in ruling out possible acromegaly. I would greatly appreciate any input. He is a smart young man but I am worried about his health.
Andyb1205 profile image
Andyb1205
in Thyroid UK
5 years ago

Acromegaly ...

Unlike height variation across the normal range, acromegaly is abnormal growth due to the pituitary gland secreting unusually high amounts of growth hormone [GH] [2]. "A nationwide cohort study (1978-2010) including 529 acromegaly cases was performed."
Unlike height variation across the normal range, acromegaly is abnormal growth due to the pituitary gland secreting unusually high amounts of growth hormone [GH] [2]. "A nationwide cohort study (1978-2010) including 529 acromegaly cases was performed."
pjoshea13 profile image
pjoshea13
in Advanced Prostate Cancer
5 years ago

Toxic and Endocrine Myopathies

[/i] [i]SUMMARY:[/i] [i]Endocrinopathies known to cause myopathy include thyroid and parathyroid diseases, disorders of the adrenal axis such as Cushing syndrome, and acromegaly.
[/i] [i]SUMMARY:[/i] [i]Endocrinopathies known to cause myopathy include thyroid and parathyroid diseases, disorders of the adrenal axis such as Cushing syndrome, and acromegaly.
helvella profile image
helvella
Thyroid UKin Thyroid UK
6 years ago

Global pituitary community

My brother has Acromegaly for more than 20 years now. His wife Ekaterina runs Velikan, the Russian pituitary patient organization. And I participate in global pituitary patient activities.
My brother has Acromegaly for more than 20 years now. His wife Ekaterina runs Velikan, the Russian pituitary patient organization. And I participate in global pituitary patient activities.
andrusov profile image
andrusov
in Pituitary Community South Africa
7 years ago
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