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Aging / not MS
The kids and I stopped riding with her 3 years ago because of the number of near-
accidents
she's had, but she thinks they're all pretty funny. She ripped up the entire rear quarter-panel of her car by parking too close to her house...in a spot made for 4 cars.
The kids and I stopped riding with her 3 years ago because of the number of near-
accidents
she's had, but she thinks they're all pretty funny. She ripped up the entire rear quarter-panel of her car by parking too close to her house...in a spot made for 4 cars.
NorasMom
in
My MSAA Community
2 years ago
Memory book
Has anyone made a memory book to help with a loved one's brain injury? If so do you think it helped? What did it consist of? I've collected a load of photographs but wondered if anything else would be helpful. Hubby still in hospital after a traumatic injury 6 months ago. He is very interactive but
Has anyone made a memory book to help with a loved one's brain injury? If so do you think it helped? What did it consist of? I've collected a load of photographs but wondered if anything else would be helpful. Hubby still in hospital after a traumatic injury 6 months ago. He is very interactive but
Eltonsilver
in
Headway
2 years ago
Prednisone and CSR - wondering about the connection
Hello - I have had PMR almost two years currently at 6mg of Pred. A year ago I was diagnosed with CSR central serous retinopathy and was told its common in type A people and will go away in six months.... well didn't go away went to retina specialist who gave me a shot which seemed to help but he mentioned
Hello - I have had PMR almost two years currently at 6mg of Pred. A year ago I was diagnosed with CSR central serous retinopathy and was told its common in type A people and will go away in six months.... well didn't go away went to retina specialist who gave me a shot which seemed to help but he mentioned
Sunnyday365
in
PMRGCAuk
2 years ago
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MRI Results are in
I think I mentioned on here that my doctor sent me for an MRI..not what I was pushing for but anyway the results are in. I couldn't understand most of what he said but the words EXTENSIVE DAMAGE to muscles and L1 L2 and L5 nerves is why I have foot drop.i.n Layman's terms my lower back and left leg
I think I mentioned on here that my doctor sent me for an MRI..not what I was pushing for but anyway the results are in. I couldn't understand most of what he said but the words EXTENSIVE DAMAGE to muscles and L1 L2 and L5 nerves is why I have foot drop.i.n Layman's terms my lower back and left leg
Survivor37
in
Headway
2 years ago
Eyes not responding
carer for a lady with psp who was first diagnosed 2019 I have been her carer for the last year now and notice things are progressing more and more couple things I was after advice on is firstly her eyes she does not use them any more tries to do everything by feeling rather than looking which of course
accidents
carer for a lady with psp who was first diagnosed 2019 I have been her carer for the last year now and notice things are progressing more and more couple things I was after advice on is firstly her eyes she does not use them any more tries to do everything by feeling rather than looking which of course
accidents
Redaler
in
PSP Association
2 years ago
The PSP-CBD Ice Cream Challenge Day 29
Day 29 - Picking Strawberries Maple Crunch ice cream covered with strawberry tops and pieces. I made the picker from three different sized strawberries. The 'blue' jeans get their colour from a mixture of flour and blue food colouring, belt from Smucker's chocolate magic shell (hair also), shoes - chocolate
Day 29 - Picking Strawberries Maple Crunch ice cream covered with strawberry tops and pieces. I made the picker from three different sized strawberries. The 'blue' jeans get their colour from a mixture of flour and blue food colouring, belt from Smucker's chocolate magic shell (hair also), shoes - chocolate
daddyt
in
PSP Association
2 years ago
Besremi and Phlebotomy
Hello, I had my first PB last week since starting Besremi (January 2022). Besremi is doing great job on my WBC and PLT, but the HCT has climbed above my goal of 42. I waited two extra weeks hoping a higher dose at 110 might knock it down a bit, but no luck. At Hunter's suggestion, HEM approved 250
Hello, I had my first PB last week since starting Besremi (January 2022). Besremi is doing great job on my WBC and PLT, but the HCT has climbed above my goal of 42. I waited two extra weeks hoping a higher dose at 110 might knock it down a bit, but no luck. At Hunter's suggestion, HEM approved 250
Elizka
in
MPN Voice
2 years ago
Back once again with the renegade runner....
Here I am again learning to run for probably the 6th or 7th time. I was out due to injury - a broken hand which meant they advised me not to run for 12 weeks, followed by covid hitting the week I should have been back. Back to the drawing board for me! I've enough residual fitness to start again from
Here I am again learning to run for probably the 6th or 7th time. I was out due to injury - a broken hand which meant they advised me not to run for 12 weeks, followed by covid hitting the week I should have been back. Back to the drawing board for me! I've enough residual fitness to start again from
Eletheelephant
Graduate
in
Couch to 5K
2 years ago
Anyone Taking Linaclotide?
I have been following this forum for awhile but this is my first post. I started Linaclotide a few months ago (first at 145, then a week ago was upped to 290 as I have a very stubborn case of IBS-C). It does seem to be giving me some relief in terms of the gas, pain, and severe bloating I have, but it's
I have been following this forum for awhile but this is my first post. I started Linaclotide a few months ago (first at 145, then a week ago was upped to 290 as I have a very stubborn case of IBS-C). It does seem to be giving me some relief in terms of the gas, pain, and severe bloating I have, but it's
Hidden
in
IBS Network
2 years ago
Have I got IBS?
Hi 2 years ago I was as told I had LPR but having changed my diet the symptoms have eased however I have now developed IBS symptoms with stomach pain frequent diarrhoea and passing yellow water with no warning!!!. I am taking Imodium 2/3 times a week to enable me to leave the house. Is this a symptom
Hi 2 years ago I was as told I had LPR but having changed my diet the symptoms have eased however I have now developed IBS symptoms with stomach pain frequent diarrhoea and passing yellow water with no warning!!!. I am taking Imodium 2/3 times a week to enable me to leave the house. Is this a symptom
Allot
in
IBS Network
2 years ago
Update on “20 years old and Scared”
Hey guys, roughly 11 months ago I posted in this group worried to death about my unspecified polycythemia diagnosis. You guys provided me with so much support during that time, even though I was a bit shy to respond to comments after a couple of days. Well, I was tested for the JAK2 gene which came back
Hey guys, roughly 11 months ago I posted in this group worried to death about my unspecified polycythemia diagnosis. You guys provided me with so much support during that time, even though I was a bit shy to respond to comments after a couple of days. Well, I was tested for the JAK2 gene which came back
Lc06091
in
MPN Voice
2 years ago
Tips on reducing regular bouts of diarrhea.
Still waiting for a diagnosis. 8 days diarrhea, stopped 5 days later 4 days diarrhea. GP told me to wait until I see a consultant, which could be months away. Any tips to reduce this happening on such a regular basis. Living on dry toast and Imodium at the moment.
Still waiting for a diagnosis. 8 days diarrhea, stopped 5 days later 4 days diarrhea. GP told me to wait until I see a consultant, which could be months away. Any tips to reduce this happening on such a regular basis. Living on dry toast and Imodium at the moment.
wb54
in
IBS Network
2 years ago
Trying to get a grip on things
Hi everyone I had a bike accident 2 years ago - I was hit by a car and then I had at least 6-months off work with post-concussion syndrome. The last 2 years since then I have worked abroad and in the last year in a particularly noisy, stressful city. I'm just trying to get a handle on where I am at
Hi everyone I had a bike accident 2 years ago - I was hit by a car and then I had at least 6-months off work with post-concussion syndrome. The last 2 years since then I have worked abroad and in the last year in a particularly noisy, stressful city. I'm just trying to get a handle on where I am at
BoofBear77
in
Headway
2 years ago
Injury years after fibromyalgia diagnosis
So I am already diagnosed with fibro, I hadn’t had a flare for a long time so managed to go back to part time work as a learning assistant Unfortunately yesterday I took a blow to the head with a close contact and hard leather football causing mild concussion and whiplash My body is now in major flare
So I am already diagnosed with fibro, I hadn’t had a flare for a long time so managed to go back to part time work as a learning assistant Unfortunately yesterday I took a blow to the head with a close contact and hard leather football causing mild concussion and whiplash My body is now in major flare
Yara1
in
Fibromyalgia Action UK
2 years ago
First Visit With My MPN Specialist!
Oh my goodness! There was no comparison to the level of care I’ve been receiving and what I experienced today. Thank you all so much for encouraging me to see a specialist. Special shout outs to Hunter and EP Guy! I went to UNC Chapel Hill Cancer Hospital. I saw Dr Brandi Reeves. She was amazing
Oh my goodness! There was no comparison to the level of care I’ve been receiving and what I experienced today. Thank you all so much for encouraging me to see a specialist. Special shout outs to Hunter and EP Guy! I went to UNC Chapel Hill Cancer Hospital. I saw Dr Brandi Reeves. She was amazing
Barbiebreath
in
MPN Voice
2 years ago
Is there a relationship between how the brain sends/receives signals in FND and the body's pain pathways?
So if there's a discord between the brain sending and receiving signals and we look at what causes FND - 1) Trauma (psychological and physical) and this include physical trauma as in abuse and
accidents
; 2) Viral Infections, where there's excessive fever over a longer period of time.
So if there's a discord between the brain sending and receiving signals and we look at what causes FND - 1) Trauma (psychological and physical) and this include physical trauma as in abuse and
accidents
; 2) Viral Infections, where there's excessive fever over a longer period of time.
Hidden
in
Functional Neurological Disorder - FND Hope
2 years ago
Stiff person syndrome
Intriguing articles. Can be confused with PD https://my.clevelandclinic.org/health/articles/6076-stiff-person-syndrome https://rarediseases.org/rare-diseases/stiff-person-syndrome/ “General Discussion Stiff-person syndrome (SPS) is a rare acquired neurological disorder characterized by progressive
Intriguing articles. Can be confused with PD https://my.clevelandclinic.org/health/articles/6076-stiff-person-syndrome https://rarediseases.org/rare-diseases/stiff-person-syndrome/ “General Discussion Stiff-person syndrome (SPS) is a rare acquired neurological disorder characterized by progressive
LAJ12345
in
Cure Parkinson's
2 years ago
The entire world is in an anxiety meltdown particularly in America! Hearts don't go out of rhythm for no reason
Car
accidents
or similar shocks to your nervous system?? The medical machine is not asking any of these questions and the doctors and nurses are just staring into computer screens robotically asking you questions about your height or your medications. They don't know YOU at all.
Car
accidents
or similar shocks to your nervous system?? The medical machine is not asking any of these questions and the doctors and nurses are just staring into computer screens robotically asking you questions about your height or your medications. They don't know YOU at all.
Sparky143
in
AF Association
2 years ago
Week 8 Run 2
Rain was bouncing of the ground this morning so this was the first time since starting c25k where I actually wondered... Do I even have shorts that still fit me? It's a bit of nuisance trying to keep track bottoms from ending up round your knees once they're soaked. There is one pair but hmmm... I
Rain was bouncing of the ground this morning so this was the first time since starting c25k where I actually wondered... Do I even have shorts that still fit me? It's a bit of nuisance trying to keep track bottoms from ending up round your knees once they're soaked. There is one pair but hmmm... I
BrokeyNotSoBusted
Graduate
in
Couch to 5K
2 years ago
Brain damage
Mum in Icu for the past 3 weeks. Totally unexpected shock, she had chest pains and got taken in ambulance with suspected heart attack. Turned out to be a tear in her aorta. Had emergency surgery. The damage went from the top of her legs to her neck/head. When they operated they noticed damage to the
Mum in Icu for the past 3 weeks. Totally unexpected shock, she had chest pains and got taken in ambulance with suspected heart attack. Turned out to be a tear in her aorta. Had emergency surgery. The damage went from the top of her legs to her neck/head. When they operated they noticed damage to the
Cmc87
in
Headway
2 years ago
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