With scleroderma has any one experienced hair loss and for how long?

[CharleneakaCharlie]

This is some what of a new experience for me. I was diagnosis with Limited Scleroderma about 8 months ago and Raynaud's just a few months ago. I'm now down to two medications. I may have to start taking something to help me with the Raynaud's. I'm hoping not if I can help it.

[zenabb]

Like you I have limited Scleroderma and Raynaud's, have had for many many years. Yes, I loose hair and it's annoying but not really noticeable.

About your Raunaud's, I suggest that you don't mess about with it for the sake of avoiding medication. If you have Raynaud's your extrenities do not heal by themselves when they have ulcers and it can lead to losing fingers. I don't want to frighten you. It's in your hands. You can have control.

[suzierwp330 in reply to zenabb]

hi i have hair lose for many years i have to wear wigs now , i avoided it for years wouldnt give in to the wig .have lost eye brows as well .but i can honestly say i wish i would have worn the wig years ago as i lost self asteam through it and havent been in relationship for 17 years .its notthe end off the world you can get 2 wigs a year end believe me ghet the curage to go and try one on youwill feel great .let me know if you do good luck

[CharleneakaCharlie in reply to zenabb]

Thank you for the advise. I have not had any ulcers as of yet. I just find that my hands do not handle the cold well. It take sometime for them to warm up and stop hurting when they get cold. I don't food shop unless I have gloves to put on when I go to the cold food department. Thanks to everyone for your answers. Wishing everyone the best.

[mrsebenezer]

I have CREST and have lost hair on my eyebrows which is very annoying. I have not lost hair anywhere else so it's tough to figure this one out.

[suzierwp330 in reply to mrsebenezer]

i feel for you you carnt change it you can cover it .i wear a wig wish i would have years ago .i get 2 on perscription every year nhs .try one on you will feel great again .good luck .

[SheriFrost]

My hair fell out for the better part of a year, stopped and is falling out again. I dont see much of a pattern honestly.

[joba]

I have limited scleroderma and Raynauds also. I have only had hair loss when I was on the drug Cytoxan; once I was off the drug, my hair thickened up again.

[Irene55]

I was diagnosed with Scleroderma in May and from June have been taking Mycophenolate. Since them my hair has been falling out. Normally my hair is very thick but I am noticing it is getting thin. When I wash my hair a lot drops out. I hope it doesn't get too bad.

[CharleneakaCharlie]

Thanks for the advise to everyone who answered my question. It has been of great help to me to better understand what is happen to my body. I have been looking deeper into the medication I'm on and the side effects and writing down questions for my doctors. I will keep in touch as, I think of things I may experience and don't understand. Wishing everyone a Happy, Health and better New Year! Be Safe Everyone!