Experiences with

Scleroderma

🤗 I have just been told I have Morphoea Scleroderma apparently all part of autoimmune disease ? Just wondering if anyone else has this? If so have you found anything that helps ? Many thanks in advance 🥰

Hello there, I an struggling with gut related problems which have worsened in recent two years. I’m taking antibiotics often with only couple of weeks gap but I’m now getting oesophical spasms and not sure if my ppi is strong enough. I’m waiting at last for a face to face appointment at the Royal Free

Also known as scleroderma, SSc is another autoimmune disease — one affecting the connective tissue that provides structure and support throughout the body.

I'm curious whether anyone with scleroderma or systemic sclerosis has trouble opening veins for IV drugs?, And if anyone has established a cvp line for IV medications?

Hi does anyone know a scleroderma specialist in Northern Ireland?. I am under rheumatologist in Craigavon Hospital. Thanks Take care everyone

My rheumatologist says it can’t be linked to scleroderma, but she’s not very knowledgeable about the disease. So I was wondering if anyone else have anything like this? Thanks in advance.

Understanding Localised Scleroderma publication Our latest booklet, Understanding Localised Scleroderma, goes into the different types, causes, and symptoms of localised scleroderma - also known as morphoea.

I've been trying to find information about this online and found a study suggesting it might be helpful, but another one said it could increase scleroderma symptoms. My next rheumy appointment isn't until the summer, so I can't ask until then, and GP doesn't know about scleroderma.

I would be grateful if you can advise of a dentist with knowledge of CREST/scleroderma to give me some advice. Thanks Sowze

I have been corresponding with a lady who has just been diagnosed by her GP with possible Scleroderma. The lady had been to a podiatrist with a sore toes, the podiatrist passed a message onto her GP to investigate if the lady had Scleroderma. Wow what a fab podiatrist.

Dear all with Lupus, sjorgen syndrome and scleroderma, I have a question I hope you can all help me with. Have you had symptoms like a blocked nose, very itchy or burning skin, red flushes in the face, asthma, burning eyes (with tearing) before you developed lupus, sjorgen or scleroderma?

Thank you for your replies to "wrong words". It was helpful to me. I have always felt young at heart, but some things make me feel more older!!! LoL I feel that the gabapentin and clonazepam are the culprits (I have a bad neck condition. I also get migraines easily with the barometric pressure going

When diagnosed with Limited Systemic Scleroderma a year ago, I was sent info sheets with hand stretching/ flexing exercises and the need to do them often was reinforced in verbal advice.

Is it possible to have G I tract scleroderma without skin issues? Been suffering for 12 years with no diagnosis but worsening symptoms. I do have a peculiar lumps on legs and small blood spots on lips and tongue. Any suggestions gratefully received.

Good morning dear I just diagnosed with scleroderma. With my Nurse specialist in hospital And I been asked to that I can apply for pip support

Hi 👋 Over the last 6 months or so I’ve been suffering with mouth issues. Very dry mouth/tongue and ulcers. The inside of my mouth/cheeks are so sore, I suspect it’s tightening. My latest dentist appointment, when my mouth was stretched it felt like my lips were going to split open, so sore. I’m finding

Or if the scleroderma is responsible, which maybe makes surgery not an option? Thanks so much for any advice.

Anyone know if I should be on any medication as I have Systemic Scleroderma and Parenchymal Pulmonary Pathology? Don't seem to be getting anywhere as specialist I am under never calls back. My GP said they can't prescribe as it has to come from my specialist. Thanks in advance

Hello all! Just for grins and maybe a little help out there for those of us that have to take Cholestyramine every day, I thought we could post how we fix it. I take Cholestyramine light and mix it with icy orange juice as the stand by but I find that way too sweet. Recently I discovered blending

My wife has recently developed purple toes/feet and was experiencing some pain around her joints over the last 3 months, reducing her mobility. She has nearly got full range of motion back but the area around her joints still cause pain particularly in the evenings around knees/elbows. I'm worried this