I have been diagnosed in recent months with Systemic Sclerosis. Type and severity not yet known.
I am trying to come to terms with all possible associations; symptoms, medication, lifestyle. It is quite overwhelming but everyone on here seems to know so much about their own diagnoses!
So far I have Raynaud's, poor facial skin flare ups and in recent weeks have been suffering with acid reflux. I have also had IBS for several years.
My first biggest hurdle is trying to work out a routine of monitoring symptoms and knowing how to address these with my Rheum consultant. I become quite panicky every time I experience a change and I'm sure the anxiety is of no help to the symptoms!
I'm not sure how being on here will help me yet. My consultant seems knowledgeable for now but I have read several accounts of misleading diagnoses and inexperience so I am quite wary of taking the right steps.
I am taking azathioprine, which doesn't seem to have worked yet but still early days I think? I am also taking tablets for blood pressure to help the Raynaud's but this never seems to work and I have tried two different types so far.
Not sure I'm after any specific help at the moment, but any words of wisdom would be gratefully received during what has been a strange and turbulent few months, especially during a global pandemic!