Hey guys, I wonder if anyone can help. I'm hoping to find someone who has been diagnosed with Scleroderma from childhood. My cousin has Scleroderma, Raynaud's, Arthritis, lung problems, swallowing problems, loss of finger pulp...... and the list goes on and on! She was diagnosed at the age of 10, she is now 33 and to be honest they didn't really expect her to live this long. She isolates herself loads and I feel would benefit from having more support and being able to talk to some one who can identify with her condition, situation and circumstances.
If your out there, please let me know so I can encourage her to participate in this forum. If your not, but have helpful suggestions, info about support groups in London etc, I'd be soo very happy to hear from you.
All the best