I have had scleroderma over 20 years, Raynaud's even longer, and since 2010 my health has declined with lots of other conditions diagnosed resulting in an emergency ileostomy procedure. Life can be up and down and it would sometimes be helpful to chat to like minded people! Prior to 2010 I had a fulfilling career but now it takes effort to get up out of bed. I get fed up of explaining to people what my conditions are, whilst at the same time get sick of hearing my own voice repeating the same words!
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