A Girly Post - Medications and Contra... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,823 members5,405 posts

A Girly Post - Medications and Contraception

Hanosity profile image
0 Replies

Well!

The story of yesterday is a bit traumatic!

I thought I would put this post, just to save anyone the problems I had to go through.

I am on a drug called Bosentan (for ulcers in Scleroderma and I really must blog about it soon - it's been fantastic for me). It is quiet a rare drug that I have to get from my hospital.. etc. It has some complex things about it and I know that you can't be pregnant on it as it damages unborn featuses. It also makes hormonal contraceptives not very effective. Therefore, I had spoken to my GP and decided against having them as it seemed pointless and just more side-affects to add into my concoction of drugs. Therefore we concluded as long as I was careful used the barrior method etc (I would be embarassed but after the truama of yesterday, I am over being embarassed and just want to save anyone else this nightmare!).

So anyhow, yesterday I found myself needing the morning-after pill. And to cut a long story of going from a general sexual health clinic, paramacy to my GP, to a phonecall with my consultant (mortifying), it turned out no one had told me and no one seemed to have much idea if I could take the pill with my bosentan and whether it would even be effective. I had to speak to around 10 people, I had had no idea this would be a problem and just felt shattered and completely mortified by the entire experience (and freezing freezing cold with Raynuads Attacks from the stress). In the end I had the pill.. then they phoned up the next day to say that another specialist had phoned back and decided it wouldn't be affective, So I have to go and get an emergency coil on monday.

I'm only 19 and I'm pretty confident but even I just felt totally taken for a ride. I had spoken to everyone I should have and done all the right things, and still no-one had broached this issue with me, I wasn't even aware it would be a problem.

I know not many people will be on Bosentan, or are perhaps older or more organised than me, but word of caution - do cheak what drugs your on and the complications around things you may need in a hurry!

Also, our specialist nurse has been cut due to cut backs, so I can't express how hilariously awkward having to speak to my Male, 40 year old, Eyptain Constultant, who has poor bedside mannar at the best of times was!

Written by
Hanosity profile image
Hanosity
To view profiles and participate in discussions please or .
Read more about...

You may also like...

Advice for seeking medical advice for Raynauds Phenomenon please

because of my job & the implications it could have had for my work as a frontline nurse. I was...

Medication for Raynards

medication for me yesterday but the 5mg version has been discontinued. I have been advised to speak...

Raynauds medication & treatment

raynauds? I struggle with the medications having much affect on my flare ups and suffer terrible...

Advice on medication to manage Raynaud's symptoms

Hi, I've had Raynaud's for many years but it has recently become quite severe and i'm struggling to...

Distributing information leaflets at medical appointments

Hi everyone ! I had to attend my local hospital for my monthly blood test yesterday and I took...