Experiences with

Bosentan

I have limited scleroderma for 8 years myself, and being on a recent dose of 9 tablets per day (sildenafil, bosentan & hydroxychloroquine) and looking forward to 4 days of Iloprost infusions to manage my symptoms, I am feeling sick thinking of the prospect of giving in and being a pillbox for the rest

I have limited systemic scleroderma and take the following medications: Prednisolone 5 mg,Omeprazole 40mg, Plaquenil, Telfast,Arcoxia, Fluoxetine, Tolterodine, Betmiga, Bosentan, Gabapentin, Monteneuklast, paracetamol, Iloprost every 6-9 months and Rituximab infusions every 6 months.

I am on Bosentan 62.5 mg which they have decided to double and they are introducing a new tablet and they hope that this will bring down the blood pressure in the arteries of the lungs for me (known as pulmonary hypertension for those that don't know).

They started me on Bosentan for my PH which also lowers blood pressure so my diastolic blood pressure measured anywhere between 31-50 over the week, ending up in the 60's by the very end of the week so I was able to come out.

Other drugs include tablets of Sildenafil and in some cases Bosentan, which is used to reduce development of digital ulcers in severe cases." Find out more about how to manage your digital ulcers at: http://bit.ly/2g4ww5K

I wonder if anyone is being affected by "NICE" decisions regarding Bosentan? My husband had great success with a 6 month trial from the Royal Free. NICE are being very unhelpful in granting the use of it.

I am on a drug called Bosentan (for ulcers in Scleroderma and I really must blog about it soon - it's been fantastic for me). It is quiet a rare drug that I have to get from my hospital.. etc.

Anyone actually been prescribed it?