I have been diagnosed with Scleroderma and have an appointment with my Rheumatologist next week. As a prelude, I have been reading over the last report he sent to my GP. In the letter he mentions IV Cylophosamide and says this should be considered.
Of course, its all Serbo-Croat to me, I find it strange however that my GP has not mentioned it.
I don't want to be victimised by my inherent paranoia again. I know my white cells are bullying the red ones, and my Auto-Immune has gone on an indefinite holiday. I would be grateful for any information regarding this otherwise I might think something is being held back.
I shall explain this to my Rheumatologist and hopefully he may clarify things, he is a good chap. Just worried about things at the moment and would appreciate information regarding the lymphoma.
Does anyone have burning feet especially at night?
side of hands have a blue tinge
Does anyone with Raynaud's have finger tips like this?
Anyone have symptoms like these?
Anyone else have Raynauds in their 30's
I had to have a course of Chemo when I was diagnosed 2 years ago. been a worrying time, but it works! SO much better these days, GOOD luck, just remember to write down all your questions before you see your rheumatologist.
Mine's a good chap too!
Thank you for your reply.Saw Rheumatologist yesterday. Because the medical profession don't yet have a cure, they rely on the input from the patient to give 'points of reference'. Q; I am tired 24/7 and my left knee has a stabbing pain that feels like a knife.It's worse in cold weather, is it the scleroderma? Answer was...,'probably'.
Self diagnosis seems to be the way forward to work with the doctors,because they have the means but don't yet understand the causes so they rely on patient input.
Having carefully looked through various possibilities, Sjogen's ticks all the boxes and I shall forward this to my GP.
Thank you again for your valuable help, take care.