Scleroderma and fibromyalgia

[irishgal]

I have been diagnosed with scleroderma 7 months ago and have fibromyalgia about 5 years I know many people with fibromyalgia and we meet up to talk and have a wee moan lol but I can't find anyone with scleroderma in my area so if anyone has scleroderma and lives in northern Ireland could you let me know

[Franji]

Hiya Irishgirl.....

I have Scleroderma and Raynauds

I live in Limavady about halfway between Coleraine and Derry City

I come from Salford in England

I have visited NI for 36 years then have retired and come to live here about two years ago......

Where do YOU live? franni butcher 🌻🌻🌻🌻🌻🌻

[irishgal in reply to Franji]

I live in co.armagh as well as the scleroderma and fibromyalgia I have just been told I have possible epilepsy going for EEG in Feb as if I haven't enough on my plate don't know if it is connected to the scleroderma or not

[Vicmark]

I have scelerdma

[Franji]

Hiya!

I have replied that I live in

Limavady and have had

Scleroderma diagnosis since

1997......

My home phone is

028 777 62186

My MOBY is

07882388147

I am 61 retired Primary School

Teacher from Salford in England

Would love to meet up for a chat

Frances Butcher

[Hidden]

I'm from Bangor. Wonder is there a midpoint we could have a meetup? I'm going to be on the Nirth Coast in a couple of weeks - special offer in the Causeway hotel! Hurrah... Have exchanged messages with Frances via Facebook.

[Sharonmcallister]

Hi, im sharon, i have scleroderma and raynauds and live in Banbridge co Down. Was diagnosed 3yrs ago. Currently on steroids and amlodipine. Would like to hear from more people in NI to relate r probs.

[fruitpastle in reply to Sharonmcallister]

Hi I live very close To banbridge 8 mile away wud u b interested in meeting up it wud b get to meet another person with scleroderma 🙂

[fruitpastle]

Hi iv just come across ur post I have limited scleroderma raynaurds mctd I'm in co. Armagh iv been looking to c if I can find anyone in my area if ur interested in sharing symptoms 🙂

[Sharonmcallister in reply to fruitpastle]

I am on holiday at the moment, when i get bk nxt wk i will b in touch. It would certainly b good to catch up with some1 with scleroderma and same diagnosis since we r rare!! Lol. A wee meet up would b great.

[fruitpastle in reply to Sharonmcallister]

Perfect 🙂 I'm on holiday myself will definitely look forward to it x

[Reike]

Wish I could meet up with you lot, I live in Canada but my family is from Belfast. Have family in Dundonald, Comber, and Crossgar. Haven’t been back since 2016...hoping to get back next year.