I am 25 years old and was officially diagnosed with diffuse systemic scleroderma in June 2018.
I have poor lung function tests and will be starting a round of cyclophosphamide soon to slow down lung disease. I am nervous as I don’t have children yet and I’m scared about the future regarding fertility. Has anyone got any experience with this?
Other symptoms I have is skin tightening, spotted depigmentation, nail fold changes, fatigue, shortness of breath, loss of appetite and acid reflux.
I just feel a bit lost and very overwhelmed as before being diagnosed I had never heard of scleroderma (as I’m sure is the case with a lot of people) and I feel like everything has just been turned upside down and is moving very fast. It would just be nice to speak to someone who knows what is to come.