Brand new to Raynaud's

I am so glad to find this site. I found out I have Raynaud's with Chilblains on both my feet. It is only 42 degrees (f) so I am fearful what will happen when it is below zero this winter. Staying inside is not an option for me as I am a hospice nurse and drive to patients' homes in all weather and temperatures.

Can anyone recommend boots and socks that will warm my feet? I have tried wool socks, but when my toes get cold, they do not warm themselves up inside wool socks, they just stay icy. Any suggestions are appreciated!

12 Replies

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  • Hello I use some packets called hot hands. You shake them and they stay warm for like 8 hours they also have some for shoes. You can purchase them at Walmart or a sporting good store. I hope this helps and God bless you for the work you do.

    Karen

  • I never have cold feet when i wear my ugg boots. I live in them all winter

  • Raynauds & Scleroderma Association, I'm a member and they sell all sorts of aids, they will be able to help.

  • You can make your own hand/feet warders using rice. Cut two hand/feet size circles of fabric and sew together leaving a small gap. The fill with rice (don't over fill it, leave enough of a gap so the rice moves inside the pouch) then close the gap. You can microwave these for 1 minute (or more if needed) and they wil stay warm for hours.

    I have raynaulds attacks just opening the fridge, so I have these warmed read to use when I handle cold goods.

  • Hello, suggest you read the answers to Coldfeet's electrically heated trouser question. Best of luck with keeping the feet warm

  • I was given a pair of Astec insoles to try and they are great for keeping my feet warm. I believe that the Raynaud's shop will start selling them pretty soon. I can't wait to get some more.

  • Welcome to the "Family". Don't panic! you will find a lot of support and tips on how to manage your symptoms here. As you would know, everyone's an individual and different things work for different people but there are also a great deal that's similar and familiar to all of us.

    I also did nursing but knew very little about Raynaud's and Scleroderma so was glad to find this site over a year or so ago. It's fantastic! I didn 't realise so many people suffered with this condition.

    I have quite a few medical difficulties one of which is Raynaud's and Scleroderma. I take Nefedipine 20mg tablets daily and find it to be very helpful. There are other medications for this, of course.

    On top of that, I wrap up well when going out in cold weather. I have even had to put glove and socks on when it wasn't even cold. Making sure my head is well covered is a must in autumn, winter and spring. It's just a case of finding what suits you best.

    Make sure to let your doctor know how you feel, take good care of yourself by resting as much as possible. Eat and drink nice nourishing things. Remember to have some treats like chocolate to cheer yourself up during these cold spells. Wrap up well. I recommend thermals. Vests, pants, long johns under skirts and trousers, the lot. I'm not proud when I'm cold. Warmth comes first for me, not fashion.

    Let your family and friends know as much as possible about your symptoms so they can understand and offer you some support. Make sure to keep your doctor informed of any difficulties. You don't have to go it alone. Like I said before, this forum is great for advice, information and support so keep in touch and let us know how you're getting on.

    Best wishes,

    graygirl1

  • I bought some celtic sheepskin boots recommended by a member from this forum. I wear them with thin socks and they are great. I recently bought hand warmers from Trespass they were selling packs of 5 for £5 they are small enough for the handbag and last all day. I keep them in my glove box.

    Take care

    Helen

  • Thanks. I just ordered some sheepskin boots and heated footbeds. It's only October & I'm already having problems

  • I find I need external heat to warm up. Wool socks are not enough. Whenever I can I warm up with an electric throw or/ a hot drink with a small amount of alcohol for example Tia Maria in decaf coffee.

  • LOL. This sounds like the best reply I've seen all day! Sadly, I can't hit the alcohol while I'm driving on the roads and trying to make critical decisions for our very fragile patients. :-)

  • Just seen your question. You don't mention any medication! I keep my chilblains at bay with nefedepin and an annual illoprost iv. My foot chilblains ulcerated hence I follow the nefedepin routine daily x 365 days with prevention being the path to follow. I have just bought the foot warmers you slip under the sole of the foot but I don't find it works efficiently through socks so a bit disappointed. I wish you well.

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