Anyone had a 6 week course of Minocyc... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,834 members5,407 posts

Anyone had a 6 week course of Minocycline 50mg bd for calcinosis ?

living-the-dream-ssc-ray profile image

Hi everyone

further to my blog on 'more antibiotics':-

I have completed the erythromycin course for the calcinosis in my left knee, with a marginal improvement but it has not healed so I have now been prescribed minocycline.

Being a self confessed antibiotic junkie, through no choice of mine, I have not had minocycline before so I would be really grateful for anybody else's experience of it.

Thanks - Living the dream :)

Written by
living-the-dream-ssc-ray profile image
living-the-dream-ssc-ray
To view profiles and participate in discussions please or .
Read more about...
4 Replies

I havent, i try to avoid antibiotics like the plague - the last time i had them i ended up with nasty oral candida. Have you tried high dose vit C with Zinc- very good for healing!

hiya inkedup ! thanks for replying !

yeah I had 3months of oral candida at the start of this year thanks to the continual dose of flucloxacillin last year to try and heal my knee, so I like you, try and avoid them and use them as a last resort.

Each morning I juice 2oranges, 1/2 grapefruit, 1/4 pineapple and then blend with live bioactive soya yogurt and 1/2 banana. Ive been doing this for 6months to try and give myself a vit c turbo boost ! as well as nourish whats left of my gut bacteria.

I will try and up my zinc content though - thanks for that suggestion ! Ive got some brazil nuts which I will make more an effort to eat !

I also have a supergreen juice each day which includes apples, cucumber, pineapple, lime, spirulina, wheatgrass and a probiotic capsule. I have certainly noticed a difference in my energy levels and less bloating since consuming this concoction for the last 6 months ! move over Popeye haha !

My mission for this summer is to get this knee healed, it has had 2 winters insitu and is getting quite deep so Ive got to up my game - hopefully the 6 weeks of minocycline will do the trick !

that will take me into the 1st week of being 40 so that really would be a lovely start to a new decade - to get rid of this calcinosis which has made me have to wear track suit bottoms all of the time for the last few years ! yep - thats me, Living the dream :) x

Peanutbutter6 profile image
Peanutbutter6 in reply to living-the-dream-ssc-ray

I have calcium coming out of my left knee, I've been on large does of antibiotics for 8 months, just finished a 6 weeks on 6 weeks off and another 6 weeks on of Minocyclin, still the calcium is coming through the skin. Back to the drawing board x keep smiling x

AHM42 profile image
AHM42

I have not been on minocycline myself but I do know that it has helped some members of the RSA to marginally reduce calcium and soften the skin. Like every medication not all works for everyone as we are all so different.

You may also like...

Hi, am new here but just wanted to know if anyone has experienced large areas of calcinosis?

years ago. Within last 2 years, I have experienced areas of calcinosis under the arms and just...

anyone had lingering chronic pain after cellulitis in the lower leg?

coming to tail end of antibiotics. Most of the extreme pain is gone but whats bee left is this...

Has anyone had a blood clot?

another clot though my pharmacists have been really supportive and have given me more advice than...

Anyone had carpal tunnel surgery? How did it go for you?

syndrome. Surgery recommended. Does anyone have experience of this? Thanks to u all. And merry...

Has anyone with scleroderma in the lungs, actually had a straight answer regarding the prognosis.