I am scleroderma patient.: My name is... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,913 members5,451 posts

I am scleroderma patient.

Lion-yellow057 profile image
8 Replies

My name is farwa munawwar. I am from pakistan. I am 34 years old and patient of scleroderma since 8 years. I have 3 kids. I entered in uk before 6 month. And here i am facing so many challenges. In which biggest challenge is financial challenge because i can't apply benefits from government according to my visa. And second i have no house helper it is also big challenge with 3 kids. And so many health issues. I think i am going in depression now.😭😭

Written by
Lion-yellow057 profile image
Lion-yellow057
To view profiles and participate in discussions please or .
8 Replies
HansaSRUK profile image
HansaSRUK

Hello Farwa have you discussed this with your GP as you should be covered under the disability Act and qualify for disability benefits. Also if your children are at school see if you can get some advice from a local Children Centre or be put in touch with social services through your local council. Good luck I know how awful this condition is and hope you can get some support soon.

Lion-yellow057 profile image
Lion-yellow057 in reply to HansaSRUK

Thank you sister but according to my visa i can't apply for benefits.

Lion-yellow057 profile image
Lion-yellow057 in reply to HansaSRUK

I am new in uk and don't know about local children center or any other.

Lion-yellow057 profile image
Lion-yellow057 in reply to HansaSRUK

Hansa you are from pakistan? Are you scleroderma patient?

strongmouse profile image
strongmouse

Hi Farwa, you should be able to see a GP - a General Practioner Doctor - in your local area. You will need to go to your nearest GP and fill out a form for yourself and your children. You can then make an appointment to see them. You are probably not eligible for health treatment from a hospital.

There are organisations in many areas who can give you advice and support. You can contact the Red Cross for advice and support about what is available where you live. Click on the link below for informatiom -

redcross.org.uk/get-help/ge...

I hope that you find support where you live. Try to take one day at a time, and continue to do what you have done here, reach out for support.

Lion-yellow057 profile image
Lion-yellow057 in reply to strongmouse

Thank you so much i must visit this may be it's helpful for me.

Bluefingers24 profile image
Bluefingers24

This is a charity who should be able to advise you on how to access support. migranthelpuk.org/what-we-do

Lion-yellow057 profile image
Lion-yellow057 in reply to Bluefingers24

Thank you i try here.

You may also like...

i am living with scleroderma

I am 16 and was diagnosed with scleroderma when i was 14, i am now 16 and struggling to write and...

One of the Scleroderma patients

info for scleroderma. I have been diagnosed to have scleroderma for about a year now. Apart from...

hi all i have diffuse scleroderma and raynauds and i am on chemotherapy.

My Reynauds over the past 17 years has now progressed to Scleroderma. I am finding it difficult to cope.

Together with various other problems(scleroderma based), at this time of year I feel like I'm...

Could this be scleroderma? What should I ask from my GP?

tips, and I sent a photo to my GP surgery (no face to face appointments just now) who diagnosed...