I've had mixed connective tissue disease and Raynaud's since I was a teenager. Four years ago I ended up with a subclavian vein thrombosis (a clot near my collarbone). When I was in hospital with the clot everyone I spoke to said it didn't make sense and didn't understand why I had got the clot. Almost every doctor I have spoken to since has told me it must be because of my mixed connective tissue disease and no doctor was prepared to take me off warfarin to do any blood tests, to quote one doc 'if you get another blood clot it could be fatal so we'll keep you on warfarin for life'.
I was referred to a doctor at the Royal Infirmary in Edinburgh a couple of years ago and she eventually agreed to take me off warfarin so I stopped it 4 weeks ago and had a blood test on Wednesday, I'm due to see a different doc in another 4 weeks to get the results. I have been slightly nervous over the past 4 weeks as I'm concerned I could get another clot though my pharmacists have been really supportive and have given me more advice than the doctors I've seen recently.
Has anyone else had a blood clot? If so, do you know what caused the clot?