Stage 3c low grade serous cancer tumor pressing against my colon

[LDBottoms]

I am 46 years old diagnosed with stage 3c serous low grade cancer in 2015. I had a debulking surgery and chemo and it returned in a few months. I have been on chemo ever two weeks since then. I was on avastin but I was losing use of my arms, so they took me off of it and put me on the hormone pill they put breast cancer patients on. My ca125 was 99.9 but jumped 45 points in a month. I had a cat scan and my tumor is pressing against my colon. It is not attached yet but I am so scared it will and puncture my colon. If it does attach people usually die between 0-100 days. Has anyone had experience with this and if so what happened. They are telling me surgery is not an option.

[Cynthia18]

I am so sorry to hear your news!!!

I to am a survivor

Don't let them do radiation down there...

Are you set for surgery?

I lost a friend recently due in the radiation put holes in her colon and leaked instead her,then it was terminal.

I pray they can remove it before it gets worse

[LDBottoms in reply to Cynthia18]

They said surgery was not an option for me but didn't say why. Glad you told me about the radiation had no idea. After the put a hole in her colon how long did she live. Thank you for responding to my post I am brand new to this site. Thanks for your prayers.

[Cynthia18 in reply to LDBottoms]

Surgery was not an option for her either.the tumors were to close to other organs

[ecappiello in reply to LDBottoms]

They didn't say why. Need to ask "why". Then get a second opinion or even a 3rd.

[Cynthia18 in reply to Cynthia18]

You should be on some STRONG pain meds for that!!! My friend was in so much pain until they hooked her up with something that finally eased her pain,please there is no need to suffer in pain,let them ease your pain(or demand it)

Can I please have a first name so I can start a pray request for you

[LDBottoms in reply to Cynthia18]

Thank you prayers would be amazing! This site is such a blessing, so nice to have some support. My name is Lisa...

[Cynthia18 in reply to LDBottoms]

How are you doing today,have they eased your pain level

[LDBottoms in reply to Cynthia18]

My stomach is doing much better today!

[Cynthia18 in reply to LDBottoms]

I am so happy to hear good news

[Cynthia18]

I don't know the exact from time of radiation.radiation was the last thing they told her she could try.she was in alot of stomach pain,they told her what the radiation did.she spent the next maybe 3-4 weeks in hospital,gave enough time for her family to come from out of area.

Are you in hospital now?

What state do you live in

[LDBottoms in reply to Cynthia18]

No I am at home, sitting here in stomach pain. Can't sleep hurts to bad.

[LDBottoms in reply to LDBottoms]

I live in Oklahoma.

[Sherryp]

I was diagnosed with stage 4 ovarian cancer in August 2015. After 18 chemotherapy treatments and surgery. I was cancer free and on Avastin. I reoccurred in about 6 months. I don’t know if it really helped me. I have been cancer free since September this time and am on Zejula for maintenance. Working great so far. I hope everything works out for you.

[Northrop in reply to Sherryp]

Hi Sherry, I am now 12 weeks from my last chemo for stage 4 ovarian cancer. Just starting as of this week with serious fatigue. Scared that the cancer is coming back. My doctor suggested Zejula but in reading about all it's side effects, I am scared to try it. It sounds like all the side effects that I had with chemo; nausia, fatigue, weight loss, bad gas and just not being able to function. What is your experience in taking it. Northrop

[Sherryp in reply to Northrop]

I started out on 300 mg about two weeks after finishing chemotherapy. It was too much for me and became anemic. I received two blood transfusions two weeks apart. The doctor lower my dose to 200mg. It still proved to strong for me and I was lowered to 100 mg. I have 5 iron infusions and that ended October 26. I have felt great ever since and my ca125 is down to 15 from 53 when I stopped treatment. It is a new drug and they are learning more about it everyday. Medicine works on me real fast, even Tylenol. My blood counts are getting back to normal. I wouldn’t even know that i’ve Had cancer twice. I hope this helps, Zejula has been a lifesaver for me so far.

[LDBottoms]

Thank you ! Hope you stay cancer free, that's wonderful!

[brender in reply to LDBottoms]

Dear Oklahoma lady, your case seems a lot like mine in New York. I will pray for you. If surgery is not an option, I suggest you look into radiation. Radiation can be done for recurrence and I am sure they will only target the tumor top so that the colon is not harmed. Remember how high stage women used to pass away from the colon burst? That seems long ago. I trust you will get the right care. Praying for a pain free 2018.

[LDBottoms]

Thank you for the information and prayers! Sending prayers your way also. Have a blessed Merry Christmas!