HER2 positive treatment recommendation - SHARE Metastatic ...

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HER2 positive treatment recommendation

kanhaiya2 profile image
11 Replies

I am writing on behalf of my mother who has been diagnosed with breast cancer. She has already undergone total mastectomy followed by chemo port insertion. Dr has recommended 4x AC 3 Wkly + (Wkly Taxol *12 + Herceptin(3 Wkly) ). The total cost of treatment is beyond 15L even after Blue tree program. I need urgent help to identify alternative to Roche herclon and the offers given. Also advice on any good hospital or nursing home in Bengaluru, India which allows outside medicine would be of great help. Forgot to mention she has Her2, ER, PR positive. Doctor were mentioning that the growth will be pretty slow due to er, pr being positive. Same was revealed in PET/CT scan.

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kanhaiya2
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11 Replies

I am so sorry to hear about your mom! This disease is bad enough without the additional financial burden. I don't have answers for you, except to contact the manuacturers and ask for help.

Sending you my best wishes for your mom 🙏❤️

SusieIM profile image
SusieIM in reply to

So sorry to hear about your mom. I also suggest, contacting the drug company or drug companies; ask for direction of applying for financial assistance to pay for your mom's treatment. I am running into the same problem.

kanhaiya2 profile image
kanhaiya2 in reply toSusieIM

Thanks Susie. Do you know any drug company who provide assistance for medication. One that I am aware is Blue tree program from Roche in India.

SusieIM profile image
SusieIM in reply tokanhaiya2

I would start with the company who makes the treatment that your mom will be on, they may have a financial assistance program or may be aware of other programs your mom could apply for; there is Cancer Care Co Payment Assistance Foundation, concentrate.org, 1-866-552-6729, Good Days Fund, my.good days.org, 1-877-968-7233, Patient Advocate Foundation, patientadvocate.org, 1-800-532-5274.

Hope this can help.

Figletf profile image
Figletf in reply tokanhaiya2

eli lily has provided myVerzenio thru Lab Corp

kanhaiya2 profile image
kanhaiya2 in reply to

Many thanks for the kind words. I will try to contact the manufacturer.

mariootsi profile image
mariootsi

Sorry to hear about your mom. I would suggest as others have that you contact the companies that make the drugs for help.

Such a shame that money is such an issue in mbc!

kanhaiya2 profile image
kanhaiya2 in reply tomariootsi

Thank you for writing to me I will contact the manufacturer.

Arkait profile image
Arkait

I am her negative er positive and take only Letrozole, which costs about $11 a month at Walmart.

I also take supplements which are more costly, such as Carnivora , Graviola, apricot

pits, fermented tumeric, turkey tail mushroom (capsules)and, soon, will be adding fenbendazole. I still work, so consider my health valuable enough to afford supplements,

I can be more specific ab out supplement costs, if you are interested---but it is not as costly

as Ibrance, for example--- at any rate !~

kanhaiya2 profile image
kanhaiya2 in reply toArkait

Many thanks for the reply. You guidance on the food supplements will definitely help my mother effectively fighting cancer.

Arkait profile image
Arkait in reply tokanhaiya2

Mh first 3 month CT scan and blood work showed breast lymph node tumors

had reduced (looked to be about 25% on computer screen), spine mets

were unchanged. Meanwhile plueral effusion has gone down from around 250

ml per day to around 75 ml per day, now, 6 months later. after 3 months my

tumor markers had gone down to near normal (this was in May) around 44,

Will let you know how things look after my next CT scan on Aug 20, and blood work

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