Monday was one of my worst days since diagnosis. Tuesday I has a colonoscopy/endoscopy. Today, Wednesday, my daughter was goiing to vist if I were up to it--I am but she isn't!
Monday was the awful colonoscopy prep day, but I felt pretty lousy without that started. Off balance, upset belly, like unlike myself and discouraged. Couldn't get a hold of orthotics people about whether they had gotten needed Rx for ankle braces and specially made shoes. Frustrating, lousy almost but not totally helpless day.
Tuesday--hardly slept last night. Woke up with feces all over the place--the bed, my pants, pajamas (top and bottom) and onto the side of the mattress, bed, rug plus the dog who'd been asleep right by the bed and my walker, plus on top pf my slippers, then after I headed to our master bath, all along the floor, on the shower curtain and the toilet seat and floor around the toilet! I hadn't a clue about any of that until I sat up, turned on the tiny light and stood up. This woke my husband up, and he reacted to the mess he was going to have to clean up, LOL (I can only laugh about that today!) I was able to do my share of the cleaning, including showering from my left shoulder down, right hip down. Actually got to the 7 am appt on time, with a washing machine full of nasty sheets left at home! Every one at the hospital was very nice, and open to joking about these tests, initiated by me, of course. I really liked the anesthesiologist! the sedation was quick acting, and quick ending. I woke up feeling better than I had in several days! Only a little hungry. The rest of the day was pleasant, and I was able to help getting laundry done. Oh, 9/26 is my half year "birthday", now 77 1/2 rather than just 77, lol!
Today I called my daughter to let her know that I felt fine for a visit from her, but she said she was exhausted! She'd taken the day off--she's a 7th grade social studies teacher. She said she'd slept 10 hours last night but still felt so tired. I told her to make self care important and that I sure understand her need for a day of rrelaxation abd self care! I had thought I'd ask her to help me go through some clothes, sort into definitely keep, definately take to Good Will, definitely throw away and undecided. Huge number of trousers and tops tp sort thru. With her not coming, i turned to the frustrating job of phoning medical offices about prescriptions needed/filled or not. More frustration! The gastro-doc sent two new and badly needed Rxs to the specialty pharmacy that I get Xeloda from rather than the local pharmacy where I get all other meds and where they know me and offer me such great service that I buy there rather than the mail Rx ooffered by my med insurance. I phoned the doc's office, then got a call from the specialty pharmacy and after a long conversation, the woman who phoned me said they would get the meds to me tomorrow, and only after that, she told me she'd need a credit card number, though I've never had to poay befor3e Xeloda is sent. I got her me to transfer me to someone who could help me, and that woman was easy to understand, pleasant and helpful! She was going to send the Rxs to someone who could forward them to my pharmacy, which I called next to see if these meds are in stock and they are. In the midst of this phoning, I got two incoming calls that went to answering machine cause
"line in use" and both were also med related! My primary care doc appt was cancelled. It's 4 pm and I'm not dressed yet! I did watch a new mystery series on PBS that we'd recorded and that is very promising, but haven't done anything else yet today.
It feels good to write this all down. I only fixed about half the typos in this, not like me at all.
Written by
PJBinMI
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So sorry you had a bad few days. Colonoscopy prep is so much worse than the actual procedure. You are blessed to have a supportive family. Take a deep breathe and relax. ❤️
Glad you're ok, sending a huge HUUUUUUUUUG! Hubby's favorite little saying is, "bad start good finish"! God bless you and heal us all in Jesus name, amen! <3
You still seem to be in good spirits after all of that!!! I've looked up to you since my day 1, AND STILL after all of that... we get a LOL out of you! Tomorrow will be better I'm sure. This place is definitely the place to vent! 😘🥰😎
How does that go …if I don’t laugh I will cry! Thanks for helping us all to remember the bad days aren’t the end and like you we can all find little nuggets of good in our bad days.
I am so sorry you had such rough days. Hoping you at least got good results from your colonoscopy. Also hoping you are able to get the prescription for the ankle braces and shoes. I think it is good to vent when things go wrong, better than keeping everything bottled up inside. Sending hugs and prayers that things get better for you.
Pam, you have had quite a difficult time. I found it helps to wear an adult diaper come colonoscopy time. So sorry you went through a horrible time. You are so strong. Sounds like you are yourself again. Amazing!
Sense of humor definitely required - I don't know that I could have found mine as quickly as you did! And kudos for you having empathy for your daught! Once again,PJB you are an inspiration. 🌺 Mary
I’m sorry you had a rough couple of days but glad your test went well. What seems like no big deal to people we rely on to get us what we need can be so frustrating! I manage a doctors office and understand how important competency is for those on the other side.
Your humor is a breath of fresh air! I tend to use it myself when I’m going through it on certain days.
Well, I guess you were really cleaned out for the colonoscopy. They let me use Miralax and Vitamin water instead of the regular strong prep stuff because my body is good at diarrhea all the time. I have had my last colonoscopy, though. I aged out. You are a year older than I am, so you should, too.
Goodmorning from East Texas. Doctors appointments are stressful. I went to one yesterday in Dallas Texas. It was good I Have to reschedule to take another round of Zometa and get chest X-rays. This journey that we are on is something we have to take one day at a time and ask God to help us through. You hang in there. You are in my prayers.
Thanks to all who've written a response! Your support and kind words mean alot! Got good news from the colonoscopy/endoscopy. I've had alot of digestive issues since having a bowel obstruction about a year ago. Valve between stomach and small intestine and part of small intestine removed. I'm now taking the Rx meds the gastro dr. prescribed and my belly feels better than it has in months. In and out still not normal. But my mood is much better. I washed three loads of laundry today and did some other household chores--helps me feel more like myself. Living with MBC is not easy, that's for sure. But I'm still hhere and can enjoy my family, pets, music, etc. Love to all...................
Yeah, not fun at all! results were good, though. Just a bit of ulceration at the bottom of my stomach--got Rx pills for that. Results could have been so much worse!
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