Latest appt with new doctor - SHARE Metastatic ...

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Latest appt with new doctor

PJBinMI profile image
20 Replies

When I saw my onc two weeks ago, she had great news for me! I am stable, on Xeloda since cancer cells changed from E+ to TN. But she thought I should see a gastroenterologist as there appears to be some thickening in the lini ng of my stomach. i didn't like or trust the gastro dr who was part of my inpatient treatment team last October when I had a blocked intestine. His office had alot of decrepid furniture, he didn't like being asked questions and sat behind his huge desk, putting notes into his computer most of the time I was there. (I've found out that I am far from the first woman to feel disrespected, including nurses, too!) In the last week I've talked to gastrologist schedulers about getting an appt with the gastrologist recommended by my palliative care NP. Finally got that appt schrduled abouit a month from now, at the hospital for both a gastroscopy and a colonostomy ! The thought of this makes me giggle! On a totally non-health note, my husband drove to Chicago this morning to pick up his daughter who is coming for her first visit "home" since moving to Florida for a great job opportu nity and a war mer climate. She was about twenty when I first met her, over 20 years ago, and I love her dearly! Like me, she's a social worker, and we've really bonded! I'm really excited about seeing her again. Plus, I have today mostly alone at home, which gives me a chance to catch up on some things! Hugs to all..... Pam

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PJBinMI
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20 Replies
TNVol profile image
TNVol

Yay! for your good news and good luck with tests next month. Now relax and enjoy your visit with step-daughter!

PJBinMI profile image
PJBinMI in reply to TNVol

Somewhere I read that "bonus" sounds so much better than "step!" I sure think of them as the bonus of marrrying my husband! She got here last evening and we had a great time. She looks well, has a nice tan.

jersey-jazz profile image
jersey-jazz

Pam - I just love you!

PJBinMI profile image
PJBinMI in reply to jersey-jazz

You just put a big smile on my face! Thank you!

love2golfwell profile image
love2golfwell

So happy for your good news. Best wishes for your tests next month. Have a great time with your step-daughter. Sending you positive vibes, hugs and prayers.

mariootsi profile image
mariootsi

Pam, such good news. You are amazing!

PJBinMI profile image
PJBinMI in reply to mariootsi

Thank you! If I'm amazing, it's because of how my parents raised me, LOL! They set great examples for me.

mariootsi profile image
mariootsi in reply to PJBinMI

Nice

Granny333 profile image
Granny333

You are very blessed, happy for you.

PJBinMI profile image
PJBinMI in reply to Granny333

Yes, I am! In so many ways.....

Kruza profile image
Kruza

That is good news from the doctor visit to the daughter visit. Bask in this aura of joy.

PJBinMI profile image
PJBinMI in reply to Kruza

Thank you! It really does make me feel good....

NPmary profile image
NPmary

Happy for you that you have a doc who is giving you the respectful, kind care you deserve.You have a plan (the known always feels better to me than the unknown). And you have a bit of time on your own and a happy re-union with a daughter. Wishing you always, continued peace, strength and love. ❤️🌺❤️

PJBinMI profile image
PJBinMI in reply to NPmary

Thank you! My 'plan" has been to control what I can and let go of what I can't! Doesn't always work. Cancer cells are nasty little buggers!

Pbsoup profile image
Pbsoup

You are such an inspiration to me! Am so glad you had a great result on Xeloda--and a new doctor! Enjoy the time with your step daughter! xx

PJBinMI profile image
PJBinMI in reply to Pbsoup

Thank you! One reason I post here is to let "newbies" and others that some of us do well for years, more of us all the time. It was so great to see my step daughter yesterday evening. She looks great. Funniest thing, her sister was just here forr awhile and their hair looks the same color to me (not their natural shades of brown, but darker and both have a tiny bit of red>) I'll have to see them together, but it did make me gigggle a bit!

Aprilfoolz1 profile image
Aprilfoolz1

Stable is great news ! Enjoy your visit with stepdaughter and summer :)

PJBinMI profile image
PJBinMI

Thank you! Stable is worth celebrating! So is seeing step daughter. Summer--I'm a cool weather person and my lungs don't do well in humid weather. I've been indoors almost all the time, just leaving for medical apptssince last fall. Wish I could enjoy outdoors! We're surrounded by woods and I enjoy that thru the windows.

Gingerann1 profile image
Gingerann1

It’s so great to hear your good news about being stable! Celebrating each other when nice things are happening can really brighten everyone’s day. Thanks for sharing and hope your tests go well and you find a great Gastro to help you navigate what may be going on. Hope the good news just keeps coming!

PJBinMI profile image
PJBinMI

Thank you! The Gastro scheduler called (again! LOL) They need my Cardio to "sign off" on my going off tthe blood thinner I'm for quite a few days before the procedure. I already knew that, and he wanted to see me so I scheduled an appt with him as soon as I could get in, and well before the procedure. I told the caller that I'd taken care of that and had an appt with him before the procedure. I guess it's better when they ask the question more (miuch more) than once than not asking at all.!

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