hallo everyone, after less than two years on kisqali-fulvestrant my ca 15.3 is increasing and I will have very likely to change treatment soon. Did anyone try eve-exe combo? My Dr. wants me to go on Xeloda, but I am not so eager to start chemotherapy....
Silvia
I have not tried that combo but just wanted to put in a word about Xeloda. I'm on my 4th round and it's been surprisingly side-effect free. Nausea with the first round but adding Pepcid AC twice daily took care of that. And I had scans last week and they've never looked better so it's working
Good luck choosing. I know it's hard.
Agree don’t be afraid of Xeloda
Also agree about not to being afraid of Xeloda. I find it’s side effects are actually less than what I had on Ibrance. The usual tiredness and some cracking on my fingers(SuperGlue really helps!)
Blu! SuperGlue? Can you elaborate, please!
When my finger cracks they are usually small cracks, at the tips near the fingernail, slightly larger than paper cuts, but they hurt when you use your fingers (or eat oranges!). I just put a thin layer of the Super Glue (that comes in a bottle with a brush, although without will work as well) over the crack. Just make sure you let it dry before touching anything. It keeps it from hurting and they seem to heal faster.
Wow! Who would have thunk! Thanks for the insight! Lynn
Everolimus did not work for me and caused my face to swell, strange spots on my skin and deep depression. Xeloda has been pretty easy and knocked my liver mets back initially. I have an appointment today to see if they continue to improve. However, my side has started to ache again, so I wouldn't be surprised if I have progression. It's been 6 mos.Good luck with your decision.
It turns out that Ibrance and faslodex have run their course with me (only 2 years). I have already taken Xeloda and it was great while it lasted (again 2 years). So my oncologist is putting me on the Eve/Exe treatment plan. I am on year 9 with this journey and have gone through many drugs. My hope is that this plan will work for another 9+ years. I will let you know, started last night. I don’t think you can lose with either treatment and there is always the other to fall back on. If you go the Eve/Exe route please let me know how it is working. Thanks.
Could you tell me what’s your cancer type? I’m er/pr+ her2-, where are your Mets located? I am starting on this treatment soon and like you I want a long run!
ilc er/pr+, her2-first diagnosis 3c in 2010, mets in the ovaries 2019, nothing visible in scans. first pet next may
thx a lot for your support! I will let tou know in May what the bext steps will be!s
I am also er/pr+, her2- although when originally diagnosed I was triple negative. We were running out of drug options when my cancer suddenly changed. This was great news for me because it gave me more choices. I have Mets all over my spine. The cervical area (C5, T1) is the worst. I have tumors on either side of my spinal column which are pinching in on the nerve causing all sorts of arm and shoulder pain. I had the area radiated 3 weeks ago but still no relief yet. I also have a few spots on right hip and shoulder blades. Right now I’m dealing with this spot on my forehead that sprang up on the hairline. It’s not in the brain, in the bone or on the skin. Right now we are using it as a diagnostic tool to see if treatments are working. I will let you now if new drugs are helping. Good luck to you!
Hi...after over 5 years on Arimidex, my cancer has decided to spread down my spine, and skull. My doctor wanted me to start the Kisqali set but I could not afford it at the time (I live in Greece and my US insurance was giving me hell, and it took several months to acquire Greek insurance). He put me on Xeloda for 3 sets...next scans still showed a few more bone leisions so I am doing 3 more sets, and then hopefully will switch to Kisqali treatment. Xeloda was okay...some nausea, bone/muscle spasms. How was the Kisqali for you?
Kisqali and Fulvestrant was no issue at all. No real issue except reduction of wbc (w/o infections though). I would have liked to stay on this combo for another 30 years....
I am on this combination of Kisqali and Fulvestrant. I am having severe lower back pain. I was just wondering what is wbc ? I am on my first cycle and have just joined this group.
White blood cells
Nearly 2 years into my diagnosis.
Unrelenting pain post chemo dose
Sharing your diagnosis?
Questions about Ibrance and Ibrance co-pay card and annual deductible 
Questions about screening tests. 
