Oncologist update

[Sarahdellar45]

Hi Everyone

I saw my oncologist today. Over the last few days I have felt a tightness in my chest and been coughing. After having a chest X-ray he that I have some fluid on the outer layer of my lungs as well. He is confident that the chemo which is due to start next weds will reduce the fluid. Has anyone else been given the drug Taxel and the bone drug Denosumab.

Sarah ❤️

[BangorBelle56]

Yes I am having both drugs. At Christmas I could hardly walk up the stairs. I can now walk up steep hills ( but still have to stop occasionally). However a respiratory specialist told me that exercise was sooooo important. I would not just depend on Taxol and denosumab, if you are able to exercise at all. It has been a long hard road with my lungs, but I feel proud of the effort I have put in. Good luck.

[nstonerocks]

Years ago I had Taxol. Worked great for

Me. Only minor neuropathy, which I rarely feel, and having to poop within 2

Hours of infusion. I hope it works well for you too

[Sarahdellar45]

Wow it means so much to hear this, thank you all so much for getting back to me ❤️

[Teddielottie]

Wishing you well with your new treatment ! x 🤗

[Hidden]

Hi Sarah

I couldn’t walk up the tiny slope to my work in April. I had a pleural effusion too. Within a month of starting treatment I could stride up the slope with no problem, and now I cycle to work on my ebike. I’m not on the same treatment, but I’m sure they have a similar effect.

Wishing you speedy results

😉 Clare

[Lcranaudo in reply to Hidden]

What kind of treatment are you receiving or did receive for your Pleural I fusion.

[Hidden in reply to Lcranaudo]

Hi there.

I had it drained a couple of times, but that was for samples.

I have just had my 4th cycle of Letrozole and Ibrance (Palbociclib) tablets. With monthly injections of Denosumab.

I still get fluctuating pain where the right pleural effusion was, so I think it builds up and reduces. It seems to co-incident with where I am with the chemo tablets. Worse when on the week off tablets.

They were considering a thoacentesis (I think that’s the word), if my pain continued. They drain the fluid, then put some talc in the space so it doesn’t fill up again. But my pain is much more manageable now.

🙂 Clare

[Lcranaudo in reply to Hidden]

Thank you...I have a temporary drain on my right side which gets drained weekly by a visiting nurse...was told it goes away by itself an sometimes it takes quite awhile. I already had the talc put in a few years ago when diagnosed but the fluid came back..that is the reason for the drain..I was hoping to hear a new treatment would be good for me but here I am still draining...again thank you for answering me...Hope your feeling much better...

[Hidden in reply to Lcranaudo]

Hi again. That must be frustrating having to be drained regularly. Mind you, it’s doing the trick.

Are you on any other treatment?

I’m feeling much improved thanks. I hope there is something out there to get rid of your drain very soon Clare x

[Lcranaudo in reply to Hidden]

Well monthly I have to go for my shots...Exceva, an Faslodex..I am also on Letrozole and Ibrance...so far all stable..just waiting for my results from my scans....Thank God for everyday...

Also fighting a little depression...

[Hidden in reply to Lcranaudo]

Very similar to me then. I have monthly shots.

Sounds like everything is working for you, so your results should be fine. I will be thinking of you. My 2nd scan is in October!

Sorry to hear about your depression. Not surprising really is it!!! Are you on meds for it? Clare x

[Nelsonyong]

Hi Sarah, sorry to hear about your condition. My mom exactly the same now and awaiting for first dose of Paclitaxel next Wed. Her lungs mets get worst even on faslodex. Onco confident the chemo helps. I trust it helps you too. Take good care.

[mariootsi]

Hoping for good results with your new treatment and healing of your lung issues!