rigid body

[Kingfisher65]

does anybody go totally rigid? My mum says she starts with shaking and then her legs goes rigid and toes point even so much that her legs raise, she only seems to get respite from totally being on the go. She’s not seeing her neurologist until September!

[Joolsg]

Yes. When my RLS was very severe on Ropinirole.What medications is your mum taking. List them all because many actually trigger RLS. Once you tell us her medications, we can guide you.

Start by reading RLS-UK website.

It sets out treatment, medications to avoid and blood tests she will need.

Raising brain iron through iron pills or an iron infusion can resolve many cases.

[SueJohnson]

Since she is on ropinirole as we advised before she needs to come off it. She does not need to wait to see her neurologist to start coming off it. Also most neurologists are not up to date on RLS and won't be helpful. She probably needs to see one privately. If you tell us where you live in the UK, we might be able to give you the name of a knowledgeable one.

[Joolsg]

I've just seen that you haven't answered anyone's replies.Your mum will never be free from RLS until you tell her what everyone has advised.

[SueJohnson in reply to Joolsg]

Unfortunately that happens so often and it is so frustrating when we are trying to help.