My life is totally tortured who do i turn to my wife has serious problems and gets absolutely totured by the mental health team, she had a coma as a result of going into prison, it doesn't make any sense, she was walking and talking when she left the hospital, had been suffering catatonic mutism after serious side effects from taking olanzapine, it has destroyed all quality of life, i cared for her during her withdrawal period from prozac and olanzapine, she was just starting to het interest in watching tv after several months of serious debilitating adverse effects, including non stop restless legs for days absolutely psychiatric nobody could get in the house, the anger and vibration was insane, just leave you can't help me, it took days for the anger to settle before I could assist her, she got weak after days of 24/7 restless legs and was at risk of falling over, i eventually got her to lay down and rest, i got my mum to help with support shopping and i stayed with her and after she was better she went back to hospital and was totured again and destroyed things in and refractory mental state where she is seriously confused, i tried to reach out to the committee against toture i don't know what more to do, my life has been in jail for almost six months and suffered a coma, she is confused and not thinking clearly and can't get remedy to get out.
Committee against toture : My life is... - Restless Legs Syn...
Committee against toture
I am so sorry to hear this. Most anti pyschotic and anti depressant meds cause severe RLS.Your partner needs a multi disciplinary team to help and supervise her through withdrawals.
Is there a local MP or councillor who can support your case?
As we know, most doctors, neurologists and psychiatrists are totally unable to offer any help or advice on Severe RLS.
You need to find a top RLS specialist to review your partner asap.
There are very few in Australia.
You need one who will NOT prescribe dopamine agonists and who will work with mental health specialists to review and replace all trigger meds.
Thamks for your reply, i appreciate venting my current situation, im psychological totured by her suffer, she got refractory illness, that need advanced care but is forced on treatment orders in prison to comply with offending drugs. Its insane she has been tested and they cause extreme problems, because its Australian mental health they think they are above the law and don't care, i put thousands of hours into getting this woman better only to see it all destroyed, by prozac, i told them not to get her antidepressant for insomnia. And they totured her in September and October then again in December with olanzapine 20mg change in one week to nothing but olanzapine destroying everything and taking her out of remission.
They have Subutex (buprenorphine) in prisons. Can the prison medics issue that?
Not in Australia, they won't.
They actually do. I have first hand knowledge of it.
That is good to know. I was angry when I wrote that, being up half the night with pain and rls.
However, should I become a heroin addict (not saying the person in prison is) to access opioids as 'maintenance therapy' ? Because that is exactly what I need to do to access buprenorphine in Tasmania.
The drug and alcohol service manages it - with the sole intention of reducing the dosage to nil.
I'm trying to imagine any prison in the world that would dispense an opioid, no matter how much good it would do. Maybe on some other planet.
I'd email to Dr. Buchfuhrer for advice.
In Australia they most definitely do. It's generally a pharmacotherapy approach to drug dependency. Many people arriving at prisons need to detox / come down from drugs. Subutex is one way this is managed.
They also offer methadone maintenance programs for opioid dependence.
Amrob is right. There was an article in the newspaper recently about a well-known criminal identity who was trying to avoid going to jail because he has an opioid dependency (street drugs). He got bundled off to hospital (Northern Beaches Hospital in Sydney) and put on buprenorphin and then off to jail (!). He did have a smart (and very expensive) lawyer, though. If RSLCarer lives in Sydney and is able to get in contact with Associate Professor Brendan Yee, but be very firm about not wanting to take Dopamine Agonists, that might be a place to start. Then he can refer your wife on to an appropriate specialist. They do exist, but it can be a matter of trial and error to get to the right one. It is also very important to be firm about refusing dopamine agonists.
But should someone with rls have to resort to street opoids to develop a dependence, just to access 'maintenance' therapy ? Probably in doses way above what is needed for rls ?
I am sorely tempted.
For the record, I wasn't suggesting that people resort to street opioids to access 'maintenance' therapy, far from it. I can only assume you were being ironic. Seriously, there are doctors who will prescribe opioid therapy in Australia - members of this community have nominated doctors for almost every state . The only states which I have not seen mentioned recently are Victoria and the Northern Territory.
Oh, sorry, forgot Tasmania.
Yes I know you were not suggesting resorting to street opioids - I was being ironic, sort of.I live in sodding Tasmania.
Opioids are used for addicts here and for those with cancer pain (reluctantly).
Interstate prescriptions are not accepted here.
To give an example.
15 years ago I was studying with a lady from Sydney. She had had an accident which resulted in chronic pain (this was in Sydney) and she was prescribed morphine.
She had to fly from Tasmania to Sydney every 14 days to see her doctor and have her prescription filled there.
The doctors here are rude, arrogant and ignorant here - running in fear from the psb (pharmaceutical prescribing board), who monitor prescriptions in real time.
My doctor's excuse is that I might 'divert' my medications.
Hence I have to visit the pharmacy once a week to get them.
(Pregabalin and 10 mg of diazepam).
I know I am coming across as angry and probably sound like an hysterical little woman addict - which is how I get treated.
My apologies, I am not meaning you.
Just angry, very depressed and feeling quite alone and helpless right now !
I understand your comments completely, and your anger. We can only hope that one day soon an enlightened and courageous specialist will set things right in Tasmania. From what I know, how Dr Brendan Yee works within the PSB guidelines is to work with a pain specialist and the patient's GP so that their medical decision-making is joint (he called it 'holding each other's hands') and they can satisfy the requirements of the PSB. Hopefully your doctor will learn they can trust you, so you don't have the tedium of a weekly pharmacy visit. For Pregabalin and diazepam? Really? It beggars belief.
I am in the midst of a long and (quite productive so far) correspondence with my local state MP, with regard to this exact thing.An integrative model of holistic care where there is open communication between gps, specialists, pain clinics, drug & alcohol services and mental health, and of course, and most importantly, the lived experience of the patient.
It is a huge problem here and you can imagine the high incidence of 'revolving doors' when it comes to services !
Yes.. my gp really believes I will divert my medications or become an addict. Nothing I can really do.
However, I am hogging the O.P' s thread here and with regard to their appalling situation, I believe that in prisons, they indeed provide a methadone/buprenorphine plan for those already addicted, but really unsure what happens when a person who has no dependence on opioids enters the justice system. I don't think they would prescribe unless for cancer ?
I’m sorry to hear all that you and your partner have been through. Many of us have been given the wrong drugs over and over. It’s more than a setback; it can set back any progress you’ve made. Most medical professionals have no clue how to treat RLS, and they know even less about the drugs that can trigger it. I will keep you in the light and hope you find proper treatment. This is really upsetting to hear of this mistreatment. You are not alone. Hang in and keep seeking the correct help.
Not what you're looking for?
You may also like...
I added Mucinex to my list of DO NOT TAKE over the counter meds.
My 90 year old mom had RLS during the month of June 2017 and she no longer has it.
Advice after knee replacement
CBD Rich topicals against pain
Treatment at MS Therapy Centre
Related Posts
Rhabdomosis and restless legs
BIPOLAR MEDS v RLS 
Retired Runners RLS?
naproxen NSAIDS and restless legs
The key role of adenosine in restless legs syndrome.Moderation team
