I have suffered from chronic RLS since childhood. I am 64 years old and until I was diagnosed at 48 thought I was the only person in the entire world that had this affliction. At 52 the disease moved thru my entire body.Medications that work for me 100% are the following;
MADOPAR: Completely stops pain 100% with absolutely no side effects
SIFFROL: Completely stops symptoms 100%, however has hideous side effects.
Six years ago I was admitted to hospital for mitral valve replacement surgery. This had nothing to do with RLS whatsoever. However, while at the hospital the surgeons could not understand the amount of Madopar that I was taking, or why, so requested the assistance from the Sleep clinicians. I informed these doctors that I was taking 9/day, overdosing via self-medication. They suggested I take 2 tablets 4/day between 8am and 8pm whether I am in pain or not. They then queried if I had ever tried Siffrol. I said yes about 6 yrs ago but it only worked for about 6 mths and just stopped (which is not unusual for RLS meds). They advised me that there had been significant improvements with Siffrol since then and would I be willing to give it another go. I agreed. The recommended dose they set me was just 2/day. I have not had any RLS pain or symptoms since.
PROOF THAT MADOPAR WORKS
4.yrs ago I fell and broke my left leg where the leg joins the hip. I had total hip replacement surgery. The following day the physio got me out of bed to walk. But I couldn't, and it wasn't because of any pain from the surgery. The pain was in the lower back right leg between my heel, right up my leg to the back of my knee. Every step i took with my right leg was excruciating. My veins and arteries were on fire. I was puzzled and confused as was the physio I'm sure. Then I recognised it as RLS pain. On returning to my room I requested a meeting with the head nurse and asked her to check my medication chart. My suspicions were confirmed. My surgeon had decreased my Madopar intake to 3/day. They were adjusted immediately and within2 days I was able to begin walking the ward to rehabilitate after the surgery.
PROOF THAT SIFFROL WORKS 100% FOR ME
WARNING WARNING. .... Siffrol has hideous side effects. Mainly changing your personality without you realising it.
By the time I realised my personality had taken a nose dive for the worse my life had already begun to crumble. I contacted my doctor and said, 'I need to get off Siffrol'. He asked why and I said, 'It's ruining my life'. He told me that I needed to wean myself off it slowly over a 6 wk period. By the time I was down to 1/day the symptoms had begun to return, but I was determined. Unfortunately I had a fall and landed on my backside onto a pane of glass and I knew that I would require stitches. The nurses knew SFA about RLS and were absolutely furious with me for not laying still in the bed to allow the bangages to assist in stopping the bleeding. By the time the 12 yr old doctor arrived to insert the stitches I was in a full blown RLS seizure. And God bless him, he admitted that he knew nothing about RLS but could see that I was under extreme distress. He said he would wait until the waves of RLS broke and when I informed him that a break was coming (albeit for all of maybe 10/15 secs) he then went to work.
When he had finished and said ok, I'm done. .. OMG the sheer relief. I almost flew off the bed. I was literally like Michael J Fox on steroids. On the way home I told myself that I was never ever ever going off Siffrol again. I cannot control the symptoms of RLS but I can control the side effects.
I hope this has helped some of my fellow sufferers.
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