RLS MEDICATIONS THAT WORK 100% FOR ME

I have suffered from chronic RLS since childhood. I am 64 years old and until I was diagnosed at 48 thought I was the only person in the entire world that had this affliction. At 52 the disease moved thru my entire body.Medications that work for me 100% are the following;

MADOPAR: Completely stops pain 100% with absolutely no side effects

SIFFROL: Completely stops symptoms 100%, however has hideous side effects.

Six years ago I was admitted to hospital for mitral valve replacement surgery. This had nothing to do with RLS whatsoever. However, while at the hospital the surgeons could not understand the amount of Madopar that I was taking, or why, so requested the assistance from the Sleep clinicians. I informed these doctors that I was taking 9/day, overdosing via self-medication. They suggested I take 2 tablets 4/day between 8am and 8pm whether I am in pain or not. They then queried if I had ever tried Siffrol. I said yes about 6 yrs ago but it only worked for about 6 mths and just stopped (which is not unusual for RLS meds). They advised me that there had been significant improvements with Siffrol since then and would I be willing to give it another go. I agreed. The recommended dose they set me was just 2/day. I have not had any RLS pain or symptoms since.

PROOF THAT MADOPAR WORKS

4.yrs ago I fell and broke my left leg where the leg joins the hip. I had total hip replacement surgery. The following day the physio got me out of bed to walk. But I couldn't, and it wasn't because of any pain from the surgery. The pain was in the lower back right leg between my heel, right up my leg to the back of my knee. Every step i took with my right leg was excruciating. My veins and arteries were on fire. I was puzzled and confused as was the physio I'm sure. Then I recognised it as RLS pain. On returning to my room I requested a meeting with the head nurse and asked her to check my medication chart. My suspicions were confirmed. My surgeon had decreased my Madopar intake to 3/day. They were adjusted immediately and within2 days I was able to begin walking the ward to rehabilitate after the surgery.

PROOF THAT SIFFROL WORKS 100% FOR ME

WARNING WARNING. .... Siffrol has hideous side effects. Mainly changing your personality without you realising it.

By the time I realised my personality had taken a nose dive for the worse my life had already begun to crumble. I contacted my doctor and said, 'I need to get off Siffrol'. He asked why and I said, 'It's ruining my life'. He told me that I needed to wean myself off it slowly over a 6 wk period. By the time I was down to 1/day the symptoms had begun to return, but I was determined. Unfortunately I had a fall and landed on my backside onto a pane of glass and I knew that I would require stitches. The nurses knew SFA about RLS and were absolutely furious with me for not laying still in the bed to allow the bangages to assist in stopping the bleeding. By the time the 12 yr old doctor arrived to insert the stitches I was in a full blown RLS seizure. And God bless him, he admitted that he knew nothing about RLS but could see that I was under extreme distress. He said he would wait until the waves of RLS broke and when I informed him that a break was coming (albeit for all of maybe 10/15 secs) he then went to work.

When he had finished and said ok, I'm done. .. OMG the sheer relief. I almost flew off the bed. I was literally like Michael J Fox on steroids. On the way home I told myself that I was never ever ever going off Siffrol again. I cannot control the symptoms of RLS but I can control the side effects.

I hope this has helped some of my fellow sufferers.

[Izzybelle22]

Hi Phogan. If you are willing to share, I would really like to know about the side effects of Siffrol. Did you have highs and lows, did you cry more than normal, were you irritable and maybe aggressive at times, were you short-fused? I would love to hear anything you can tell me. Thanks!

[Hidden in reply to Izzybelle22]

No none of the above only the 3 I mentioned

[Pippins2]

Phogan am I reading this right you are taking Madopar and Sifrol?

[Hidden in reply to Pippins2]

Yes could not and will not live without them

[Madlegs1]

What exactly are your rls symptoms?

What you seem to describe are like nothing I've come across.

Thanks.

[Hidden]

Childhood hate remembering all this. Starts with niggle in ankle, changing to tiny darts shooting from one to the other, replaced by thick gushing fluid, you figH it, it fades for maybe 5 secs returning with increased severity. You lose it wins. There startshould your night. ... restlessness, kicking, crying, praying for God to please please cut off my legs. Diagnosed by head of sleep study department prince Charles hospital Brisbane saying that he's never heard of such a severe case of RLS. Total and Permanent Disability pension. 50+ symptoms move to entire body not recognised as different ... itching, pins and needle etc. With age severity increased to be replaced by excruciating pain. Without medication, well I'd be dead. But before I pulled the trigger I would be Michael J Fox on steroids. Could go on for pages. Enough description?

[Hidden]

For anyone reading this post who may not know Madopar is a dopamine med and Sifrol (pramipexole, mirapex) is a dopamine med. Its not advisable to take two dopamine meds together. You just flood your brain with dopamine and that can lead to Augmentation.

[Pippins2 in reply to Hidden]

Exactly what i was going to say Elliise!

[Hidden]

Like I said it works for me

[Madlegs1 in reply to Hidden]

Where does the lack of sleep enter the equation?

[Hidden]

If one withstand the torture of RLS and still sleep I'd love to know how. The nights I had no sleep were the nights I'd be up walking until 4;30 am and the decision had to be made. ... go to bed and chance that I'll hear the alarm at 6:30 or not. As I needed to be at work by 7:30 to open the office, I wasn't prepared to chance it. Insomnia is also a bi-product or RLS