video.google.com/video play?docid=-7766971241156535124&hl=en
Within the above transcript is the following direct quote from Dr. B. His word is gospel and I hope you all feel the same:
"What the guys at Hopkins did, they gave iron intravenously usually about 2 or 3 or 4 series of infusions of this iron, and they got the levels around 200 we'll lose and behold about 80+% of the patients all of the sudden had their RLS symptoms completely vanish. They could drop all their medication and these were severe patients for the most part. They dropped all their medications; they felt great. Tgey said 'my RLS is cured.' Anyway, very interestingly,. 6 months to maybe 2 years later, these patients started calling back saying, 'my RLS is coming back, what's going on?' So they brought them back to Hopkins and rechecked their serum ferritin a and their CSF ferritin, the ferritins around their brain and low and behold these guys were again low on ferritin. Now typically when we get someone with iron deficiency, anemia or not, and we tank them up full of iron, and typically this will be someone who has like a bleeding ulcer or women with heavy menstrual period or God knows what, who get low on iron, once we tank them up unless they bleed again, they're good for life. So this was very perplexing. And now what we believe is that the REAL defect in restless leg syndrome May in fact be a leeching out of iron faster than normal. We all lose a little iron every day but we get it back in our diet, very, very easily. We feel that restless legs patients are losing it much faster, so the normal diet doesn't come close to replacing it. And at least the guys at Hopkins postulate that the genetic defect may be something to do with iron metabolism and that RLS is only secondary to that. "
I say good bye DAWS, hello IRON. 👍👌🙌🙏😍
Oolong, have you approached your Dr about this, (what part of the world are you in again)?
I wonder how easy it would be to get a Dr to go along with it?
Thanks for sharing.
Nah, the bisglycinate always works for me. But maybe u should think about it. Because of your condition u might not always be absorbing much of the bisglycinate from your GI tract. The infusions go right into the bloodstream. The older infusion formulas of iron (iron sucrose) didn't have as much success as newer formulas. That's the great thing about oral iron is that your GI tract will break it down to its lowest common denominator (if it can) and whatever does get absorbed into the bloodstream should be able to cross the BBB. But I say give our tired old stomachs a break and use ferrous bisglycinate which is already broken down into amino acids and more readily enters the bloodstream and from there our brains. But if you got a lot of hepcidin floating around your body on any given day due to your condition then the oral iron won't be of much help to you. 😟
Right am going to have to go and research what your post said
lot of info there thanks.
The only problem I would have about the jab is having to go to the Drs. I spent so much time there in such a bad state I think I have PTSD from it !
Take care.
I am VERY happy that the iron works for you, any time anyone who has RLS can find relief,, it is a positive thing. Everyone has to figure out by trial and error what will work for them.
I am having a problem with taking iron as it gives me the runs but have been in touch with the doc today and asked for the infusions. It wasn't my regular gp so he has arranged for blood test tomorrow to check my levels of iron. I have bought a nutri bullet machine to try and get some drinks from spinach, cabbage, leeks and other veggies with iron in them. If that works or I get the infusions I will let you know. I asked my chemist for bisglycinate iron but he said he hadn't heard of that one but to ask my doc about changing from the ferrous sulphate. He has put me on ferrous fumarate to try until he gets the blood tests results. Thanks to everyone who replied and I wish everyone luck on this site. . At least it gives us some hope of finding something to take away this horrible problem. jonjo.
Hi Jonjo: Are you vegan? Foods contain two types of iron, heme and nonheme. When you want to boost ferritin quickly, the best choice is heme iron found in meat, poultry and fish, ideally red meat, because your body absorbs heme iron two to three times more efficiently than nonheme iron found in veg tables. If you are vegan I found the Vega One All in one shakes have 35% Iron daily intake. I make two shakes a day, but also eat red meat at dinner each night and day time I eat Tuna, Chicken ect.
Ok Raffs, how about an in-between step. There is an over the counter iron patch called PatchMD Iron Plus. It's ferrous bisglycinate plus vitamins A & C. If you are at all interested I will order first and try it. There is a pharmaceutical iron patch that is undergoing human trials and I would prefer that but it could easily be another year before it is available. I might just order that patch right now. Nothing ventured...
Done! I ordered them. I just realized that I've never used a patch before. If I survive I will give u my opinion of them. Oh man I'm allergic to everything including life itself. 😩
LOL
I already have one patch on and it can be a bit of a pain compared to the tablet.
I take it the Vit C is to add absorption? Why the Vit A?
So you have allergies too! I found out when I was a kid I was allergic to punches - and would breaak out in blacky/bluey sort of 'rash' where I was hit! Sometimes I would even bleed, say if I got a punch in the mouth there would be blood!!! Amaznig how my body reacts to stimulli! I recon I have that allergy to life - every bloody thing seems to disagree with me, (particularly the wife and kdis
)
Good luck with the patch!!
I took Vitron C for 3 months and my iron level went DOWN!
Did you find out why?
Nope
Hi I would really appreciate it if you would post some feedback on the iron patch Oolong.Good luck.xxx
Absolutely XO