Hello again everyone! You might remember me, the one trying to get off of ropinerole because, in addition to augmentation issues, it also suppresses prolactin, a hormone necessary to produce and maintain breastmilk. I've had a hell of a time trying to withdraw from it, and I have visited a neurologist through the referral of my OB. This neurologist is the absolute worst, so I am searching for another one (Ask me later for details if you're interested... I have a running commentary with my other doc about how awful she has been. One quick example, however: told me "not to worry" about augmentation issues with dopamine agonists... I "have time," because I'm too young and "we can always just increase the dose." [I was already on 1.5 mg.])
At any rate, one thing she did do was have me get my ferritin levels checked. I figured they would be low, but when the number came back as 7, I was shocked. I knew I felt bad (Neuro told me "all new mothers are tired; it's normal...", but I digress) but now I had indisputable proof that there is something severe going on.
Long story short: I have had to start a series of 5 IV iron infusions. The hematologist has already told me even they can't get me anywhere near the normal range of 50-75 (so, the suggested "over 100" to get relief from RLS is probably out of the question for a long, long time...) but I'm curious: for those of you who have done this treatment, did you get any relief for your RLS, and if so, how long did it take to feel any relief?