RLS and Iron Infusion: I am John, a... - Restless Legs Syn...

Restless Legs Syndrome

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RLS and Iron Infusion

scman profile image
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I am John, a patient of Dr. Michael Earley at Johns Hopkins, Baltimore, MD, USA and have had two of the iron infusion treatments for RLS. I have experienced RLS since 1991 and had all of the possible drugs. I have benefited from the infusions, but have not been among the fortunate 33% who experienced the best outcome. The research at Johns Hopkins has great promise. As most of you know, RLS has a strong genetic component and their research will most certainly benefit future generations.

In the US, RLS folks join the RLS Foundation, a very helpful organization (tips, latest info, etc.). If you have not explored, I strongly, again very strongly, suggest that you do. I am not an officer, just someone with severe RLS.

The Foundation will have a webinar with Dr. Earley concerning the relationship between RLS and iron on January 25.

You may wish to check it out.

Wishing you good sleep in 2018.

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scman
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Joolsg profile image
Joolsg

Thanks for posting John. I will definitely have a look at the US site to catch Dr Earley's webinar. i'm pleased you have benefitted from the Iron infusions. Presumably you will still need to take meds?

scman profile image
scman in reply to Joolsg

Yes, primarily on 1800mg of gabapentin plus other.

marsha2306 profile image
marsha2306

Just FYI, it’s Dr. Christopher Early....

scman profile image
scman

Well, I did make an serious error.

My doctor's name is Christopher J Earley--not Michael. Here is a link to his information about Dr. Earley and a second link with video on his research. My apologies.

hopkinsmedicine.org/profile...

hopkinsmedicine.org/neurolo...

DicCarlson profile image
DicCarlson

Truth be told - the Hopkins website saved my RLS life! I would be using DAs with everyone else except for one sentence: "Since the 1950s, it has been known that iron therapy, even without the presence of anemia has benefits for RLS symptoms." I used Ferrous Bisglycinate and never had to resort to pharma. RLS is still there - just waiting for a trigger and still promoting insomnia most nights.

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